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    The children in the web of prayer.

  • Charlotte's Web of Prayer
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Events

8th Annual Charlotte's Web of Prayer / Dylan Fortunato Golf Outing

WHEN:  Friday, June 2nd, 12 noon Shotgun
WHERE:  Timberlin Golf Club, Kensington, CT
Donations are $150 per person which includes 18 holes of golf with a golf Cart, a bag lunch, steak dinner and full buffet. ALL the money goes to helping out families with children who have life threatening or terminal illnesses. The golf outing is the largest fundraiser we do for Charlotte's Web of Prayer. For more information, please visit the Events page.


We are now accepting donations via PayPal.

Donations of any size are welcome and are tax deductible (CWOP is a 501C Non-profit).

About Charlotte

About Charlotte

Charlotte’s Web of Prayer was an idea God put in my heart while in Yale New Haven Hospital with my 3 year old daughter Charlotte. She had fallen and hurt her leg one day and had not walked on it for over a week. We did x-rays, MRI's, saw a specialist, but found no break. After a week she became really sick and lethargic. My wife and our pediatrician both decided she was not okay and brought her to the hospital for tests. When she arrived at the hospital, they did blood tests, and found out she was highly anemic. The initial diagnosis was leukemia. The next day we found out it was not leukemia, but the doctors believed it was another form of cancer, because of the low blood levels and pain in her legs. The next day they found no tumors, but discovered blood clots in her lungs. After some more tests, they discovered blood clots had moved to her brain, causing her to have a stroke. We later found out she has a Rare Blood Disorder call Hyperhomocystamenia. The disorder is inherited from the parents, and causes the body to produce clots at a much higher level than normal. Somehow a clot traveled to her head causing the stroke. When she fell down it was not because she hurt her leg, but because she had the stroke.

The first couple of days in the hospital were really hard on Charlotte and all of us. She had bone marrow tests, CT Scans, MRI’s, along with blood being drawn every 4 hours. We had not seen her smile for over 2 days when a representative from Child Life came to visit. They are in the hospital, and give children toys, movies, books… all donated to them. They gave her a Sponge Bob movie and pillow, and there was the first smile from Charlotte in over 60 hours. My wife Susan and I immediately agreed we wanted to be able to return the favor, and give something to bring even a little joy to another sick child. As James, a 12 year old boy who is going through his 2nd round of chemo to fight leukemia said, "There is not a lot of Joy in here (Pediatric ICU’s)".

Throughout our time in the hospital Charlotte had people praying for her all over the country. People all over the Northeast, Oregon, Washington, California, Florida, Texas, North and South Carolina, Michigan, Ohio…. were lifting Charlotte up in prayer. Non-denominational Christians, Catholics, Jews, Muslims, Protestants, and even friends at one time that claimed to be Atheists were reaching out to us, to let us know they are praying for Charlotte. Sue and I are blessed to have many Godly people in our lives that support and pray for us always. The outpouring of support, not only from our close friends, but people we barely know or did not know at all was over whelming. Charlotte had people in over 10 different prayer chains, and many individuals, totaling more than 500+ praying for her. As more and more people prayed for her, her health and spirit were continued to improve. I could not get over a sense of guilt when I looked at my sick neighbors in the hospital, and wondered if they had people praying for them. The reality is there are sick kids in every hospital in the country with conditions from leukemia, other forms of cancer, blood disorders, respiratory conditions, been in car accidents… that are in desperate need of prayer. Many of them are not lucky enough to have so many people praying for them correctly in the name of Jesus as we do. The Lord put on my heart this idea for a mission field. We could set up a massive prayer network through a web site, charlotteswebofprayer.org. The idea is to visit our local Pediatric Intensive Care Unit (PICU), offer these sick children a gift. I would then explain to them that are doing this because when my daughter was sick in the hospital, someone gave her a gift that really lifted her spirit. We would offer to pray for them, and ask if it is okay to post them on charlotteswebofprayer.org. We would update the sight daily/weekly with children to pray for, with specific prayer requests. People can visit the site pray for sick kids and get updates on children already on the site. Many of these children are in urgent need of prayer. Also, when you start your day praying for kids suffering in a hospital with a sorts of problems, the morning commute, your job, and money don’t seem so bad. If you are reading this then Charlotte’s Web has been hatched. Please contact me by email if you would like to get on the prayer network, or have a prayer request that we can post.

The Web of Prayer

19-Feb 2017

Charlotte DePaolo

Charlotte DePaolo - 9 years old - seizures


We are in the ambulance headed to Yale. Char had a small seizure, but we gave her anti-seizure meds that seems to be working. Pray they can stop the seizures and that no new ones start.

UPDATE:
Char was released from the hospital. Doing good but sleepy. She had a small seizure, but she was able to be released.

16-Jan 2017

Maddie, Harold, Aniylah, Keyonna, Marik, Irene, Chloe, Matt G., Jasmine & Aiden

Maddie Sweedler - 18 years old - all leukemia/transplant


Update from mom-
We go to Yale tomorrow for a bone marrow aspiration and biopsy. Maddie and Zack loved their Christmas presents. Maddie hasn't been feeling great, I think she may be coming down with something, she also has lots of pain in her legs. Let's pray that her marrow is healthy and she starts to feel better soon. Let's also pray for Jen's mom who finally came home last week. She had been in the hospital since Thanksgiving. She is doing a little better everyday but it's been a tough road.


Harold - 13 years old - relapse osteosarcoma


Please continue to pray for Harold - he is on palliative care. Yale was giving him a pill but it it is causing him lots of leg pain and difficulty walking. He also has developed a rash on his face. Yale has stopped the pill to address the side effects. Please continue to pray for him and his family,Especially for his leg pain and rash. May they be blessed with a miracle.


Aniylah - 4 years old


Please let's pray for Aniyah, she had a seizure over the weekend.


Keyonna - 8 years old - leukemia


Had her port removed the other day, she is recovering nicely. Thank you for all the prayers.


Marik - 13 years old - osteosarcoma/hearing impaired


Update from mom:
Hello #TeamMarik. There is a season of change upon our family. Yesterday was my husbands last day in the Navy. He begins his new job on Monday, with extensive travel for training over the next few months. We will still be covered under our previous insurance for the next 6 months (Thank GOD)! TriCare has not approved Marik's treatment at Sloan Kettering, and it looks pretty bleak. We have about 1 week to hear, then we must either proceed as cash pay ($2600 initially and over $100,000 by completion) or opt out due to inability to pay. Stressed doesn't even describe my feelings. As a parent I want to give my son the best of everything. The best chance at survival. I don't want money to be an inhibitor in his chances at living a long life. Unfortunately, this is America. In America, without money, your child can and will die without treatment. I feel incredibly blessed that we have made it this far. There is much uncertainty in our future, however I will continue to push forward and expect the best outcome. I have prayed for Gods perfect will all along. I don't know where that leaves us, but hope with all my heart, that it means a miracle for my Marik. Please continue to pray for all the changes our family is facing. So many of them are good, and we certainly don't want to undermine the many blessings that we have been given. So much change and uncertainty. Pray for my sanity, as I am by nature an anxiety driven soul.


Irene - osteosarcoma/amputee


Please pray for Irene has been in and out of the hospital with fevers and phantom limb pain. Let's pray she will go home soon and they can keep pain under control.


Baby Chloe - 1 year old - Neuroblastoma/remission


It has been 3 weeks since we found out that Chloe is in remission. Since then, Chloe ended up in the hospital with a fever and we eventually found out that her broviac was infected. Her broviac was removed and she received antibiotics to be sure the infection didn't spread. Even though this was not the ideal way to have her lines removed, we were happy to have it done sooner than later and joked that Chloe just wanted to be inpatient again to hang out with her amazing nurses! Chloe has been doing well since the end of her treatment. She has been resting a lot as her body is still healing, but has also been super busy and is trying to walk. We have been transitioning from constant hospital visits and a cautious lifestyle to a new normal for our family again. We are so thankful for all of the prayers, love and continued support for Chloe and our family. Thank you all!!!


Matt Garcia - 9 years old - brain tumor/ remission


Matt had his scans last week and they were all clear. He is in school and doing well.


Jasmine - 4 years old - Neuroblastoma- remission


Doing very well, always smiling.


Aiden


Had a great Holiday and thanks everyone for his awesome Christmas gifts.

29-Dec 2016

Chloe, Marik, Irene, Maddie S., Jasmine, Harold & Matt Garcia

Baby Chloe - 1 year old - stage 4 neuroblastoma


Cancer free and has finished chemo! Go Chloe!


Marik - 13 years old - osteosarcoma/hearing impaired


Update from mom:
Marik is a thinker/worrier. He most certainly gets that from me. One way that I try to help him through this process, is to tell him several days beforehand about appointments, scans, events. He gets very frustrated when I just announce things last minute. So for several days beforehand, he knew that we were heading to NYC yesterday. However, he woke up in an awful mood yesterday. He was mad, and didn't understand why "everyone" was in our home ready to leave. He finally yelled "Why is everyone going to the hospital with us?!" Oh man. He thought we were going to NYC to begin the trial. I hugged him and apologized. I explained that we weren't going to the city for treatment, but to have fun. I told him that we would talk about that (the trial) again before we go. His response? "I don't want to talk about it again. I said I want to do it, that's it." So, that is that. The moral of this story is that these kids are tortured. Not just physically, but mentally as well. They are constantly faced with decisions, desperately grasping for hope, happiness, joy. They spend their days mentally preparing for the next poke, surgery, scan, vomit. It's exhausting. Please pray for our family, our son, our daughters. Scans in one week, then a new hospital, new doctors, new protocol, all hopefully tinged with a little bit of #hope. #TeamMarik


Irene - osteosarcoma/amputee


From hospital
The dirty window and my shaky hands don't do this skyline justice! I can see NYC from my room. I've been inpatient since yesterday, very early morning. I have a bad case of the flu. Bronchitis quickly turned into pneumonia. Fever can't be controlled. My heart is having some trouble. Bp is low. Don't know when I get to go home. It hurts to breathe.


Maddie Sweedler - 18 years old - all leukemia/transplant


Maddie Is still dealing with side effects from transplant. Let's pray they can manage the side effects and pain, as well as clean blood results with her bone marrow & lumber puncture. Let's also pray for Maddie's grandmother, who had surgery several weeks ago and is in need of our prayers. Thanks to all who provided gifts to the family, they were so very grateful.


Jasmine - 4 years old - Neuroblastoma- remission


JasmiineHad scans and all are clear.



















Harold - 13 years old - relapse osteosarcoma


HaroldWhen you are sent home with one of these booklets.. #staystrong
Family is in need of prayers, they have been told no other options are available. Please light and candle and let's pray for Harold miracle!



















Matt Garcia-9 years old - brain tumor/ remission


MattPlease pray that his CT scan he had today is clear.

7-Dec 2016

Maddie's grandmother, Dylan's family & Caylee

Maddie's grandmother


Please continue to pray for Maddie's grandmother, she is doing a little better and just came out of ICU, but still has a lot of pain -- hope that the doctors can manage her pain, so she can be with her family as soon as possible.


Dylan Fortunato's family


DylanPlease pray for Dylan's family. This beautiful boy should have celebrated his 16th Birthday. Light a candle or say a prayer. Our family is truly blessed to be a part of a family with a big heart. Love-peace-happiness to everyone for this holiday season, God bless you all.











Caylee Fleming - 8 years old - periventicular leukomalacia


CayleeHappy 8th Birthday to Caylee! May God continue to bless you and watch over you always.

29-Nov 2016

Maddie, Chloe, Keyonna, Harold, Marik & Irene

Maddie Sweedler - 18 years old - all leukemia/transplant


Maddie's grandmother has been in the hospital since Thanksgiving. She very sick and will have to have surgery tomorrow. Sending positive thoughts & healing prayers for her and her family.

Maddie is doing as well as she can. She went to Yale on Monday and her blood counts were low and her stomach is giving her problems.So Maddie will have to check her counts again tomorrow and see if they can give her meds to help stomach. It's been very stressful for them all.


Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeAnd just like that... Chloe is all done with chemotherapy!

















Keyonna - 8 years old - leukemia


KeyonnaShe went to Yale last Tuesday and with the grace of god she is cancer free & off chemo. Keyonna is having some issues with her eyes and they think it's an infection. The doctors are trying to figure out what to give her. Keyonna is also having a skin reaction as well. Let's pray that they are able to prescribe something to help her.











Harold - 13 years old - relapse osteosarcoma


HaroldHe is having severe pain and loosing lots of weight. This trial chemo is making him so sick. He has been very scared and in lots of pain. Les pray they can help him with pain and him with weight loss.

Message from mom-

We are being admitted...... for nutrition reasons. H has lost a significant amount of weight, he has lost a lot within the last week it is becoming a concern with the symptoms he had yesterday, the fatigue, and extreme dizziness. My brother and I have been having to do everything for him. The doctors seen him and evaluated his weight and thought that IV drop at home would be the best option but first that have to make sure his levels are safe inpatient before we can do it at home. So he would be accessed and have a 12 hour drip at night to make sure he gets hydrated and his nutrients.












Marik - 13 years old - osteosarcoma/hearing impaired


MarikUpdate from mom last week-

It's been a pretty low key couple of days, and in the cancer world, that means awesome! Marik isn't eating all that well, but hopefully our big feast tomorrow will change that. We also surprised him with his Nana, and Great-Grandparents that flew in from Louisiana! Lots of hugs and kisses, and Mawmaw's cooking, can't be beat. Can you tell they are cold? Lol #TeamMarik #TheGrands #FoodTime


Irene - osteosarcoma/amputee


IrenePlease let's pray for Irene she has been having lots of leg pain and fevers on and off, she was admitted last week but is home know. Let's pray that soon she will get her results from cat scan and it will be good news. Irene has been waiting such a long time.

22-Nov 2016

Harold, Keyonna, Chloe & Caylee

Harold - 13 years old - relapse osteosarcoma


HaroldHello everyone. I want to THANK everyone for their prayers, kind words and well wishes. H started today at 10:30am at a slow rate and was pre-medicated with pain meds. Doctors increase the intake rate to max after the first hour and everything being stable. H had a reaction to the Leukine injections and started experiencing extreme bone pain, in his back and hips. Pain management came and increased pain medication to try and ease his bone pain. H started feeling fatigue and short of breath so he was placed on oxygen. He cried and then fell asleep and woke up in excruciating pain, screaming he couldn't breathe, when I realized that his oxygen level was at 100 I had to scream at him and to focus and breathe. He immediately started to cry, and said he was scared something wrong was going to happen. I explained to him that everything he's feeling is new and even though it is scary nothing was going to happen to him. Watching him have anxiety and fear that he wasn't going to make it was the worst. it is at that time you wish you can take away his pain. For the most part this therapy is EXTREMELY PAINFUL but I can honestly say he's doing good.

This is an amazing young lady as well! Her name is Daniella and she makes cakes for children with cancer!

Let's pray for Daniela who is 9 years old. she suffers from hemophilia which is a blood disorder and has to have treatment to help keep that in control. She's an amazing you lady. Makes phenomenal cakes, she started learning at the age of 4.


Keyonna - 8 years old - leukemeia


KeyonnaGoing to Yale today to have a spinal tap to check her blood to make sure all is clear! Let's pray that all is well with her blood counts the keyonna can enter the Maintenance phase of the treatment.









Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeChloe has been happy and active all weekend and today. She had a short clinic visit today. Her platelets are pretty low and trending down. We will go back later this week to see if she needs a little boost. She is looking forward to Thanksgiving this year and is most excited about trying all the delicious foods! If Chloe's counts are high enough on Monday she will begin her LAST round of chemo!









Caylee Fleming - 6 years old - periventicular leukomalacia


CayleeGreat news from her mom:

Today was a day of victory for Caylee. The school district agreed to pay for a personal nurse to go to and from school everyday with her. She will go to school all day receive all her occupational services. She will also now be getting services for the blind. Never stop fighting no matter what the odds are. Our children deserve to be treated equally and their voices need to be heard.

18-Nov 2016

Maddie, Marik, Chloe, Harold, Irene Blum & Keyonna

Maddie Sweedler - 18 years old - all leukemia/transplant


Maddie is doing the best she can.last week it was a little rough because her hemoglobin was very low. Maddie went to yale for a transfusion that day felt better. Let's pray that Maddie's blood work today is perfect and her blood work is where it should be & that she gets stronger everyday. The hospital slowly is starting to lift some of the restrictions. Continue to pray for mom and her brother as it continues to be stressful and worrisome for them.


Marik - 13 years old - osteosarcoma/hearing impaired


MarikUpdate from Mom-
This little man. He has been trying so hard to eat. He is taking 3 different medications to increase his appetite, and he lost another 3 pounds. He is down to 94lbs. Please pray his appetite improves, pray he is able to convert his hunger into actually eating meals. Unfortunately his body is working so hard to kill cancer cells right now that his metabolism is actually high. He is quickly burning all the calories he is able to take in. His color looks great today so I don't think he will need blood, but I am worried about his platelets. We will know about those in a few minutes. Keep praying, keep hoping, keep believing. If only I could share my extra pounds with him! #TeamMarik #EatEatEat


Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeChloe has been doing pretty well the past couple days. She has been active and happy when she's awake and hasn't needed any anti-nausea medicine since Monday. We've been laying low because of some low counts. Tomorrow morning we go to clinic for a count check and to see if she needs anything. Let's pray that her counts are all coming up.






Harold - 13 years old - relapse osteosarcoma


HaroldHappy 14th Birthday Harold god bless you always and send you the miracle of healing. Harold got great news but still a long road ahead of him. Harold got accepted for the trial & we hope and pray it that once and for all he will be cancer free.
From his mom:
We should celebrate life everyday, waking up to a brand new day is always a blessing but today I celebrate this day with appreciation, love, strength and inspiration. I celebrate today reflecting on the last 14 years, on where I was then and whereI am now. As today I celebrate my first love, my teacher, my first born as he was given to me on this day so that I can protect, love and raise him the best way I knew how. I didn't know that it would be him to protect, love and raise me, as I strive to be better everyday. I always question myself knowing that I will never be what I thought being a great parent was-"Perfect", but I do know that I will never give up on you nor stop loving you. You my son continue to teach me all new things and I am forever grateful to be on this journey called parenting with you as my coach. HAPPY 14th BIRTHDAY TO MY KING!!! Victor Alvarez I love you.


Irene Blum- 22 Diagnosed with Ewings Sarcoma rare pediatric bone cancer.


Irene BlumUpdate on Irene:
So here's the update...My pulmonary nodules are stable. CT scan of my mandible showed remnants of what probably was osteomyelitis (bone infection), but NO osseous tumor seen. Blood work is semi normal ... Now I'm waiting on Sloan Kettering about femoral tumor pathology. Please continue to pray - Irene hasn't been feeling very well and continues to have fevers. She is still waiting to hear back from Sloan to about her tumor Pathology.






Keyonna - 8 years old - leukemeia


KeyonnaContinues to do well and is loving school. May god continue to bless her.

26-Oct 2016

Maddie, Marik, Harold, & Keyonna

Maddie Sweedler - 18 years old - bone marrow transplant


Thank you all for your prayers great news for Maddie! Bone Marrow is clear!! Please continue to pray for her that her pain gets better.


Marik - 13 years old - osteosarcoma/hearing impaired


Please pray for Marik, he had a fever on Monday.
Message from mom-
Sigh... tachycardic, low blood pressure, fever, congestion. Bleepity bleep bleep bleep!!!! #TeamMarik #Nooooooo


Harold - 13 years old - relapse osteosarcoma


Please let's pray for Harold- He is having a massive surgery tomorrow, with hopes of being eligible for a clinical trial on the other side. The "cure" aka chemotherapy, damaged his kidneys and now they only function at 40%. They need a miracle. Please, pray for this beautiful family!


Keyonna - 8 years old - leukemeia


KeyonnaGot a message from mom saying that she is doing well. Also thanking all of us for helping them.

24-Oct 2016

Maddie, Harold, & Caylee

Maddie Sweedler - 18 years old - bone marrow transplant


Maddie will be going to Yale today to have a bone marrow test. Please let us pray that the bone marrow is clear, that her blood counts have come up, and the awful pain in her legs gets better. Let's also pray for her mom and brother.


Harold - 13 years old - relapse osteosarcoma


HaroldFrom Mom:
And....... we're home!!!! (Playing Video games, that's how you know he's feeling better). FINALLY!!! We were given some home time before surgery on Thursday. Thank you everyone for your support and love.. many blessings and love one another.









Caylee Fleming - 6 years old - periventicular leukomalacia


CayleeLet's pray for Caylee -- that all the tests she had done last week will result in good news and they are able to help her.

19-Oct 2016

Maddie, Marik, Everett, Harold, Chloe & Dylan

Maddie Sweedler - 18 years old - bone marrow transplant


Maddie has been dealing with bad pain in her legs for the past couple of weeks and low counts.Yale has changed her med in hope to help with pain. Mom has been very stressed and concerned—she just wants Maddie to feel better and be able to enjoy things. Let's pray that the new meds work for her pain and that on Thursday, her blood counts are going to be perfect.


Marik - 13 years old - osteosarcoma/hearing impaired


MarikWe had lots of concern with Man yesterday. He was extremely tachycardic, with his heart rates in the 120-160's all day, after receiving 2 units of blood. Around 7 last night they did an EKG and that was unremarkable. So, they released us to come home on "mommy sense." It's like spidey sense, but for cancer moms. We got home about 9:30, and he proceeded to vomit, a lot. I won't lie, he looks atrocious. I will be watching him like a hawk for the next few days. We have clinic on Friday morning, unless something changes. Home is always better than the hospital, so I'm praying for improvement and smiles. He was happily greeted by his pack. #TeamMarik #PuppyKisses #PaleDude
Please pray that Yale can figure out a way to stop the nausea, improve the heart rates.


Everett Gardner - post back surgery


EverettPlease also pray for Everett Gardner, he had back surgery yesterday. Pray for a quick recovery. His daughter is Jasmine who was diagnosed with Neuroblastoma — she's doing well.










Harold - 13 years old - relapse osteosarcoma


As of now it is decided that H will have no more chemo and surgery the 27th of October. Now we have no plan until after surgery. Last time H didn't qualify for a clinical trial because he still had disease left but if this time everything is able to be remove that clinical trial may be available. If all the disease is not removable we will... we have no idea. We will cross our bridges when we get there. Please let's pray for mom as they have been in the hospital for quite some time. I spoke with mom last night just to let her know we are here and want to help any way we can. Mom is very tired and worried about her handsome son H. She's a single mom with little help. Also has small children at home.
*If anyone ones to send H some support for his up coming surgery
Hi everyone H has a PO Box.. many ask how can you send something to H so for those of you who would like to send a birthday card which is November 17th or anything that you wish.
H loves his video games, and H & M.
Harold Alvarez
PO Box 4404
Stamford CT 06907


Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeHad surgery a few weeks ago she was in so much pain- she's ways smiling. God bless this beautiful baby!
Update from mom:
We had a long day at the hospital today. Chloe started her morning with a hearing test at 8am and didn't get home until after 6pm. Her hearing is still in a normal range and has not been significantly affected by the chemo. Chloe also had her 6th round of chemo today. We spent the day with amazing nurses and such a special child life specialist who set up a play area for Chloe today! Chloe felt right at home and it's hard to tell the chemo was running in this picture. Tomorrow, Chloe has an ultrasound to check on a blood clot. We're keeping our fingers crossed that it has gone away! The plan is for just 2 more rounds of chemo after this one.


Dylan - teen


DylanFrom Dad
Dylan was diagnosed with osteosarcoma on April 13th 2016 which is a form of bone cancer located in his femur .Dr's tell me I his father (George Senft) cannot go back to full time work because taking care of him is my full time job at the moment .He has 29+ weeks of treatments, surgery, recovery and therapy, they will be removing his femur completely and replacing it with a titanium bone like structure of some sort to eliminate the bad bone completely .I was let go from my job due to me missing a lot of work going back and fourth to Dr's and was told it was a different reason. In conclusion my unemployment runs out in September and his disability benefits would kick in after unemployment runs out. Unemployment also informed me that in no way shape or form can't benefitsb e extended for any reason. I've applied for both disability benefits for him and food stamps for us and was denied for both on 2 separate occasions. They say I make too much on unemployment which is 534.00 a week. My rent alone is 1500.00 monthly. I am his only care provider and have been since he was 6 years old .I have absolutely no one to turn to for help. I don't want to have to move out of my apartment while my son is going through this battle. I'm giving this a shot because I don't know what else to do .My only other option is to leave him home alone (which Dr's advised me not to). Hospital bills and living expenses are really starting to accumulate as income now is about a 1/3 of what it was before I was let go from my job. I just may have no other choice .Thank you in advance to anyone willing to help.
Thank you
George L Senft


29-Sep 2016

Harold, Maddie, Baby Chloe, Nayeli Rivera, Caylee & Keyonna

Harold - 13 years old - relapse osteosarcoma


HaroldPrayer Warriors!!! Please pray for our friend Harold. Harold has Osteosarcoma and is undergoing another surgery today at Yale. Please Pray for the the medical team, pray for healing, Pray for comfort for the family. We were so grateful to be able to spend some time with Harold at Curefest. Harold and family...WE LOVE YOU!! We will be praying.
UPDATE:  As many as you know this journey is the journey of the unknown. Seating on the edge of your seat everyday , not knowing what's going to happen next. As I packed my bags this morning and was prepared to leave for the hospital my phone rings. I answered and on the other line was the surgeon. My heart raced as getting a call is never good. We said our good mornings and he then he explained how they had a meeting this morning and reviewed H's CT scan from yesterday. As the doctors expected the worst it was to great surprise that the nodules on H's left lung that have been stable for the last 3 months are gone. Yes thats right the scans showed they're gone. The other tumors the are in the middle of his chest and right lungs have decreased in sized. Doctors decided that they would like to do 2 more cycles of chemo to kill off more tumor and then do surgery. His words are that they wanted to have a less morbid surgery for H. I want to thank everyone for their support, prayers and well wishes. This is great news as I always am prepared for the worst. I am grateful for the small miracles and the days that I have been blessed with. I am overwhelmed with such great emotions. So no surgery today!


Maddie Sweedler - 18 years old - bone marrow transplant


Doing a little better each day-- Mom's hoping that her appetite will increase soon. Mom also hopes that pain In her legs will get better. Let's continue to pray for Maddie and her family.


Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeWe went to clinic this morning and Chloe's counts were great, so she didn't need any blood or platelets! Typically her counts are still dropping at this point after chemo, but this time she is recovering early. We should be doctor-free until Monday! Please keep Chloe in your continued prayers as she will have surgery on 10/4.








Marik - 13 years old - osteosarcoma/hearing impaired


Message from mom:
We are so happy to be home. The last admission felt like 5 years! Marik had THE BEST surprise waiting for him at home. His big sister, who has been away at college, took the semester off to be here with us while he is in treatment. He hugged her and didn't want to let go. He is in a fantastic mood, and his only real complaint is extreme fatigue. He is having trouble even going to the bathroom without a rest. We are just going to soak up home and family for a little while. #TeamMarik #FamilyFirst #BigSisterHugs


Nayeli Rivera- Aml Leukemia/Forever 4


NayeliToday would have been Nayeli's 8th birthday. We miss you so much but we know you and Dylan and all the angels are rocking the heavens. Thinking and praying for the Rivera Family today! Best friends forever in heaven.














Caylee Fleming - 6 years old


CayleeDoing as well as can be expected.














Keyonna - 8 years old - leukemeia


KeyonnaContinuing to do well and doing great in school!


16-Sep 2016

Maddie, Chloe, Harold, Marik, Caylee & Keyonna

Maddie Sweedler - 18 years old - bone marrow transplant


Maddie is doing a little better each day. We pray she continues to gain strength and have more of an appetite, and continue to have good labs. It's been such a difficult road for all of them. Many blessing and much needed peace and strength.


Baby Chloe - 1 year old - stage 4 neuroblastoma


ChloeOverall she is doing well considering all the treatment. Many positive vibes for this beautiful baby girl and that she continue to do well! Happy 1st Birthday to the bravest baby we know! We love you SO much! Keep fighting! We are so excited to celebrate today and know we will celebrate many future birthdays cancer-free!





Harold - 13 years old - relapse osteosarcoma


Let's pray that he stays strong and continues to do as well as he can. It's been a rough few weeks for him and his mom's car broke down and lots of emotions due to all news regarding Harold's health.


Marik - 13 years old - osteosarcoma/hearing impaired


MarikUpdate from Mom:
Little Man isn't feeling too hot today. He is exhausted, full of bruises, and just generally feels rough. He has lost so much weight, and it's really starting to show. Praying he starts eating before chemotherapy next week and we lose the opportunity. (He never eats inpatient.) Sometimes I just stare at him sleeping and wonder how I got so lucky. I'd choose him every time. #TeamMarik #GoGold


Caylee Fleming - 6 years old


Caylee...hanging in and smiling away, lets pray she continues to do well!









Keyonna - 8 years old - leukemeia


KeyonnaShe is doing well and going to school. Let's pray she continues to do well and stay healthy.


5-Sep 2016

Harold, Maddie, Baby Chloe & Marik

Harold - 13 years old - relapse osteosarcoma


HaroldHe just recently went to Yale for a scan and his mom got updated with results. Over the weekend he was admitted for fever and pain. Please let's pray for a speedy recovery. Also for mom and family for peace, strength.

So I sit here with so many emotions but over joyed. It's crazy to feel so happy but so sad and broken as this is a true journey of the unknown. So H's scans showed that he is responding to the chemo that had only 10-12% chance of working. As I asked how am I suppose to feel I was told "happy but as a doctor I don't trust this disease". That pauses me in my tracks but I think of how much time I've had with my precious H. So the doctors suggested to continue this chemo and surgery as they empathize that once chemo is done they don't know how aggressive the cancer will be. So I think wait H had surgery and relapsed in 3 weeks what if he under goes this surgery and relapsed so quickly is it worth putting him through pain.. It never stops the on going battle but my focus should and will be the fact that he's responding.
(This was an update an hour ago) Harold had a fever this morning, so we will not be going home today... They are re -running labs and adding some additional test


Maddie Sweedler - 18 years old - Bone Marrow Transplant


Maddie has been going to Yale a few times this week to check her blood counts and to make sure all the transplant meds are the correct levels. The levels came back a little high so they will change the dosage until it's where they are supposed to be. It's been so hard for Maddie being in pain and not feeling well. Maddie has to be homebound and unable to go places to keep her safe from germs until her immune system and body recovers. Let's pray that her levels get better soon, that Maddie continues to get stronger. Pray for Mom as it's so hard to see your child like that. You feel so helpless to see them hurting, not being able to do anything.


Baby Chloe - 9 months old - Stage 4 Neuroblastoma


ChloeUpdate from mom: here we are tonight... Chloe was sleeping all day long. After talking to the on call doctor, we ended up in the ER to have blood drawn to check Chloe's counts. It turns out all of her counts dropped so we were admitted earlier this evening and Chloe needs a blood transfusion tonight and maybe platelets tomorrow morning.

Today's update:
Chloe is happy, energized and feeling much better after her transfusions. Her cheeks are the rosiest we've seen them in a long time! We are looking forward to a great day at home today! Thank you for all the love, good vibes and prayers!


Marik - 13 years old - osteosarcoma/hearing impaired


Update from Mom: Little Man is feeling relatively well considering he just completed 5 days of chemotherapy and developed a blood clot. He is definitely on the weak side, and is sleeping more and more, but has managed to eat at least one meal a day, which is awesome. He is currently on post hydration and we will draw his Anti-Tenase level (clotting factor) at 11:00. It should be back some time this afternoon and will either let us go home, or trap us here for a bit longer. We already have 2 clinic visits scheduled for this week to check as well. If you are spending today with your family and friends, please appreciate every minute. Tomorrows' aren't guaranteed. Happy Labor Day #TeamMarik. #PediatricCancer

Please let's pray that they are able to control the blood clot in his arm and that he is able to go home soon from the hospital.

29-Aug 2016

Maddie, Marik, Baby Chloe, Keyonna, Harold & Caylee

Maddie Sweedler - 18 years old - Bone Marrow Transplant


Last week was a rough week made had to have surgery to have port removed & replaced. considering Maddie was still weak and not feeling well at all. Maddie was able to go home the same day. Mom said Maddie was going to Yale today to check her counts let's pray that those all come back good. Also Maddie continues to sleep, not eating much, not feeling well at all. Please let's pray that soon Maddie will regain strength, eat more and most importantly be able to enjoy being with her family and being the Maddie again. Let's pray for Mom who is feeling very anxious and stressed.


Marik - 13 years old - osteosarcoma/hearing impaired


MarikPlease pray for Marik that his Chemo he receives goes well with minimal side effects and that he is able to go home soon. Marik should be starting his first day of 8th grade today. Instead he is fighting for his life. Aside from being tired and some bruises, he is feeling pretty good. Just in time for his chemotherapy admission on Wednesday morning. He is none too thrilled about his 7 day hospital stay, but we will do what we can to make the best of it. So, for now I'll take small blessings, like sleeping late on the first day of school! Have a great year American School for the Deaf! #TeamMarik #LastYearofMiddleSchool #BraveWithBruises #ASDTigers. This is a picture of him at camp.



Baby Chloe - 9 months old - Stage 4 Neuroblastoma


Lets pray that Chloe that her counts recover soon. This weekend Chloe went from scooting around to crawling strong and is totally on the move! Can someone please tell us how this happened overnight?!? Today is day 7 in the chemo cycle and her "counts" are dropping. She already has some bruising on her back and is sleeping more than usual. Chloe has been able to recover on her own after her second and third chemo cycles. We return to clinic tomorrow morning and will wait and see what happens this week. Everyday we think about how lucky we are to have Chloe and are amazed by her strength and resilience.


Keyonna - 8 years old - Leukemeia


KeyonnaKeyonna is doing well. This photo was taken at camp last week.


















Harold - 13 years old - relapse osteosarcoma


HaroldPlease continue to pray for Harold and family for continued strength!











Caylee Fleming - 6 years old


Caylee...enjoying the sun. Please continue to pray for her and that she stays as healthy as she can.


22-Aug 2016

Maddie, Isaiah, Marik & Baby Chloe

Maddie Sweedler - 18 years old - Bone Marrow Transplant


Maddie had to be admitted back into the hospital because her broviac tube needs to be replaced. It was not working properly, causing a lot of discomfort for Maddie. The surgery was scheduled for today. Pray that the surgery went really well, and that the new broviac will work perfectly. Pray for a quick recovery, and that Maddie can go home tonight. She is not to excited to be back in the hospital. Also, continue to pray that her body engrafts, and that the bone marrow transplant rids her of cancer, once and for all. Pray her body gets stronger, and that she feels better each day.


Isaiah - 12 years old -car accident


Isaiah was run over by a car a few weeks ago. This is the main focus the doctors are working on now: Isaiah still has severe brain damage and a fractured hip. He will be hospitalized indefinetly. Pray that Isaiah's body will heal up quickly. Pray that his brain will stabilize, and that he will get full function of his body and mind.


Marik - 12 years old - Ewing sarcoma


Marik is going to camp this week, which he loves. Mom is really concerned for his health and safety. Please pray that Marik's stays healthy and is full of energy for this week at camp. Pray that he has a great time at camp, and pray for peace for mom and the family, as they are worried about him.


Baby Chloe - 9 months old - Stage 4 Neuroblastoma


Chloe had a great clinic appointment. Her blood counts were excellent and many in the normal range of a healthy non-cancer patient. She completely recovered from her last round of chemo without any extra blood or platelets! We also got to see Chloe's two friends who also were diagnosed with Neuroblastoma around the same time as her. So I guess you can say it was a Neuroblastoma party at clinic today! These little guys are all fighting together!

Chloe's last MIBG scan shows significant improvement in many parts of her body. The disease is gone or almost gone in most areas except for her liver and belly. This is great news, it means the chemo continues to work! We are doctor-free until Friday(hearing test) and then we will pack our bags for round four of chemo on Monday! We are so happy that the medicine, prayers and support are all working. Thank you all!

15-Aug 2016

Maddie, Marik & Baby Chloe

Maddie Sweedler - 18 years old - Leukemia/Transplant


Maddie was able to go home on Saturday- Mom said Maddie is not feeling very well, extremely tired and dealing with the side effects associated with the transplant. Let's pray that mom and Maddie are able to get much needed rest and that she continues to stay stable. They are all happy that they are able to be home together— especially Zack (brother) it has been so hard on him as well. We can't thank you enough for all the prayers, support, and love for the family.


Marik - teen - Ewing sarcoma


Update from Marik's mom:  Some days there is so much pain and chaos that I can hardly catch my breath. Other days I make muffins and French fries, and listen sneakily to him laughing from outside his door. Today was bad, tomorrow will be better. I said it a thousand times yesterday, I repeated it a thousand times last night. Sure, the bad is still present, but so is the good. It's Skittles and Powerade, and giggles when I dance after he eats. It's finally sleeping late and waking up with a smile. Thank you from the bottom of my heart for all the love. Thank you for sharing my posts and strengthening our support system. Thank you for the prayers and kindness. Thank you to a very special Momma whose "Quiet your Mind" message came just when I needed it most. We are making a difference, you are making a difference. #TeamMarik #Brave #ShareForAwareness


Baby Chloe - 9 months old - Stage 4 Neuroblastoma


Chloe had a great clinic appointment. Her blood counts were excellent & many in the normal range of a healthy non-cancer patient. She completely recovered from her last round of chemo without any extra blood or platelets! We also got to see Chloe's two friends who also were diagnosed with Neuroblastoma around the same time as her. So I guess you can say it was a Neuroblastoma party at clinic today! These little guys are all fighting together!

Chloe's last MIBG scan shows significant improvement in many parts of her body. The disease is gone or almost gone in most areas except for her liver and belly. This is great news, it means the chemo continues to work! We are doctor-free until Friday(hearing test) and then we will pack our bags for round four of chemo on Monday!

We are so happy that the medicine, prayers and support are all working. Thank you all!

2-Aug 2016

Maddie, Keyonna, Isaiah, Marik & Baby C

Maddie Sweedler - 18 years old - Leukemia/Transplant


As many of you know Maddie had her bone marrow transplant about 2 weeks ago. She has been hanging in there, and has been sleeping a lot. She still has a lot of mouth sores, but overall the doctors say everything is going according to plan. She had her last dose of chemo on Saturday, and now we need to pray that her counts will come up, and that her body will start to engraft. Please continue to pray for Maddie whenever you can. Pray that her blood counts will go up and that she will regain her energy. Pray that her body will except the new cells, and that it will engraft. Pray for peace for Maddie and her family, and that someday soon, she will be cancer free once and for all!!!


Keyonna - 8 years old - Leukemeia


Keyonna is at Yale receiving more treatment. She has been suffering from mouth sores. Pray that she can receive all her treatment, and that her counts remain high. Pray that the mouth sores go away, and that she has no side effects from the treatment.


Isaiah - 11 years old - Hit By Car


I do not know a whole lot about Isaiah's situations, just the following: Isaiah is in very serious condition after being hit by a car in Allentown, PA. They had to remove part of his left skull, and this helped his brain to respond well. Please pray that Isaiah will continue to heal from his injuries, and makes a full recovery. Pray his brain function returns to normal, and for a blessing on Isaiah and his family.


Marik - teenager - Bone Cancer


Below is a post from Marik's mom after they found out he had relapsed. Marik lost his leg to cancer a while back but was in remission until they found out on June 23rd. Here is the post:
"3 Years. 3 Years of waiting, worries, prayer, hopes.. Today we heard the word you never want to hear, Replase. Marik has a large tumor in his lower right lung. Surgery is scheduled(late June), and the fight begins again. We are shattered, scared and broken today. Marik is most scared about me(mom). Pray, send all the love you can, we certainly need it." - June 23rd.
Please pray that the surgery went well, and that they could remove all the cancer. Pray that they caught it early before it spread, and that it can be treated. Pray for peace for Marik and for all his family, as they are devastated by the news. Also, pray for wisdom for the doctors how to best treat this cancer, and pray he is someday cancer free to good.


Baby C - 9 months - Stage 4 Neuroblastoma


Baby C has Stage 4 Neuroblastoma, and has tumors in her tummy. Doctors are encouraged because the tumors are shrinking. Please pray that they can get rid of the tumors through treatment, and that her condition continues to improve. Pray that her side effects are minimal from the treatment, and that the cancer is out of her body soon.

24-July 2016

Maddie & Caylee

Maddie Sweedler - 18 years old - Leukemia


Maddie had a terrible night - she did get a fever and they started her on antibiotics. Her nose was bleeding really bad overnight and they gave her 3 platelet transfusions - they packed her nose this morning - we were up all night and she has been sleeping most of the day. Please pray that her blood levels come back to normal and she no longer has a fever, that they are able to manage her pain and keep her comfortable. Most important, make her body begin to accept the donor cells.


Caylee Fleming - 6 years old


Caylee Is finally home after surgery. It was a very tough recovery and trying to manage pain. Please pray for a speedy recovery and that they are able to keep her pain in control.

20-July 2016

Maddie, Caylee & Trista

Maddie Sweedler - 18 years old - Leukemia


Maddie had her transplant yesterday and it went as well as can be expected. Today, mom says she is feeling very ill. Maddie is dealing with mouth sores, nausea, vomiting, extreme weakness, and neutropenia. Let's pray that she recovers quickly and gets her strength back. Most importantly, that the new cells she received are accepted. Let's pray for her donor, that he also has a speedy recovery and many blessings to him for the gift of life and giving Maddie this blessing. Pray for much needed strength for Mom, her brother and family.


Caylee Fleming - 6 years old


Caylee is at Yale having surgery. Let's pray for the surgery to go well and a speedy recovery. Pray for her and her family for strength and guidance through this difficult time.


Trista (Dre's mom)


Please continue to pray for her, and hopefully soon she can get some answers. May she be blessed with good news.

16-July 2016

Maddie, Keyonna & Caylee

Maddie Sweedler - 18 years old - Leukemia


Maddie Sweedler has completed her radiation, which was twice a day for the whole week. Maddie started high doses of chemo which is very intense! Maddie is not feeling well after the treatment, which she needs in order to get ready for her transplant. Please pray for minimal side effects in preparation for her transplant on Tuesday. Pray for her mom, brother, and family for strength and peace while going through this difficult time. Please let me know if anyone would like to get the families some gift cards and/or care packages while they are in the hospital.


Keyonna - 8 years old - Leukemia


On Tuesday, Keyonna has an appointment at Yale. Let's pray for all her blood counts to come back perfect and that she continues to be in good health.


Caylee Fleming - 6 years old


She will be having a procedure at Yale next week. Pray that the surgery goes well and for a speedy recovery.

11-July 2016

Maddie Sweedler

Maddie Sweedler - 18 years old - Leukemia


This morning Maddie will be admitted to Yale New Haven Hospital to start the process before transplant. Tuesday through Friday Maddie will have full body radiation twice a day. On Saturday and Sunday she will have high doses of chemo therapy. On Monday, Maddie will have a rest day. The Donor Bone Marrow will be collected to get it ready to be given to Maddie. Tuesday Maddie will receive a Bone Marrow Transplant. Please pray for Maddie to give her strength, peace throughout this tough treatment she is about to receive. Most of all, that her body will accept the donor cells with minimal to no side effects. Pray for the doctors who are caring for Maddie, to guide them in her care, help with the complete healing of Maddie. Let's pray for Mom , Zack and family for God to give them the much needed strength while going through this very difficult transplant process that is so very scary. If anyone would like to send a care package, please email myself (Grace Fortunato). Also anyone would like to donate gift cards to the family while in the hospital let me know. Walgreens gift cards are good, which is across the street from the hospital, as well as Dunkin Donuts, Visa gift cards for purchase of food within the hospital and gas cards. Also If anyone would like to donate gift cards like Dominos, Subway, things like that Her son Zack can can get while mom is in the hospital, that also would help them so much.

28-June 2016

Maddie, Caylee, Cachet, Courtney, Keyonna & Nico

Maddie Sweedler - 17 years old - Leukemia


Maddie has been battling cancer for almost 7 years. She had Immune therapy done in October at CHOP. There are signs that some of the cancer cells are trying to come back. Doctors want her to do the bone marrow transplant ASAP, before the cell come back. Maddie is scheduled to be admitted into Yale NH Hospital on July 11th, to begin treatment. They hit her with chemo and radiation to try and wipe out her immune system. The bone marrow transplant is scheduled for July 19th. Maddie has been doing extensive testing pre-surgery, and overall her body and organs are doing good. She has a long road ahead. Please pray first for peace for Maddie and her mom and brother, as they get closer to transplant day. Pray that her cancer stays in remission, and that her body holds up during the pre-treatment. Pray that she does not have ANY side effects, and that everything goes way better than anyone could have expected. Pray her pain and sickness is manageable. Lastly pray that she will have the will to fight, and get through this really hard procedure.


Caylee Fleming - 6 years old


Caylee has not been doing great lately. She has been really sick, and has been suffering from a lot of seizures. Please pray that her seizures stop, and that she returns to good health. Pray for her parents, who just lost a close relative as well.


Cachet (20 years old) and Courtney (26 years old) - Sickle Cell Transfusions


I met a family at Yale with 2 children who in the last month, both had surgery to treat Sickle cell. Their sister Unity is the match for both siblings, and was the donor for both Cachet and Courtney. The mom has her hands full with 2 kids in the hospital in the last month with surgery. Please pray that both children recover quickly from their transplant surgery, and that the treatments are a huge success. Pray that they will be cured of this sickness.


Keyonna - 8 years old - Leukemia


Please continue to pray for Keyonna as she receives Stage 7 of her chemo. Pray her counts remain high, and she does not get any nausea or fevers.


Nico Matos - 10 years old - Leukemia


Good news for Nico. He had his port removed last month, and is in the maintence phase of his treatment. Pray he remains healthy, and that the cancer never comes back.

7-June 2016

Keyonna and Esther & Andrew Brilliant

Keyonna - 7 years old - leukemia


Keyonna is having a spinal tap done today, and she begins Cycle #5 of her chemo treatment. The last spinal tap had complication, so her mom is asking for prayers. Please pray that Keyonna's spinal tap goes really smooth, and she has no problems. Pray that the spinal tap comes back clean. Also, pray that as she begins Stage 5 of her chemo, that her counts will always stay high, and that she has no real side effects from the chemo. No fevers or nausea. Pray for peace for Keyonna, her mom, and all her family.


Esther and Andrew Brilliant - both are post Renal Reflux surgery


Here is an update on the 2 kids from their mom:
Andrew will be 3 weeks post surgery tomorrow. He is doing wonderfully. He is energetic and back to his normal self. We just got home yesterday. Esther will be one week post surgery. She is still having some pain, but is playing and smiling. She is on restricted activity for another week. Please keep us in prayer as we continue to rest and recuperate from all of this. We won't officially know if the surgery worked until December. Due to swelling and healing our urologist will wait 6 months to do any checking. Please pray that Esther stays UTI free as this surgery (when successful) only stops the UTIs from going into the kidneys. It does not stop UTIs. Her bacteria has become resistant to all but one oral antibiotic. She is allergic to it. We are praying she stops having UTIs all together. Continue to pray for the kids as they recover from surgery. Pray that they do not get anymore infections, UTIs, fevers....and that the surgery is a complete success. Pray that in 6 months they find out their kids no longer have to deal with these problems.

1-June 2016

Esther Brilliant

Esther Brilliant - Bilateral Reflex


Esther is having surgery this morning to hopefully correct her renal reflux problem. Please pray that the surgery goes great, that it corrects the problem, and that there are no complications. Pray she will be fine with the anesthesia, and will recover quickly. Also, pray for peace for the family.

23-May 2016

Maddie, Caylee & Andrew

Maddie Sweedler 17 years old - Leukemia


Maddie had her monthly scan and tests at Children's Hospital of Phily, and unfortunately they found signs in her bone marrow and blood, that the cancer cells are coming back. Maddie has been battling cancer for 7 years, and had immunotherapy done at CHOP. It worked well, and put her cancer in remission, until her last check up. The next to last alternative is to have transplant surgery. Maddie is not sure if she wants to go through transplant, as it can be really painful, difficult, and can cause several side effects. They have to wipe out her immune system, and replace her bone marrow, with a donor's clean bone marrow. The good news is she is still in remission as of now, and her organs are in good health. Please pray that Maddie has the will to fight another tough battle. Pray that they will find a perfect match for her bone marrow, and that she will stay in remission until she has the transplant surgery. Pray for strength and peace for Maddie and her mom and brother, as they are all really concerned and afraid. Give Maddie a strong will to fight this cancer, and that she will someday be cancer free for good.


Caylee Fleming - 6 years old


Some good news on Caylee. She did not suffer a stroke, but actually a Grand Mal Seizure. That is the same kind Charlotte had 2 months ago. They are extremely scary, as the child is non responsive, foaming at the month, body flailing around...They thought it might have been a stroke, because her face is sagging a little, and she has a lot of affected area. She is home now, but her mom says she is really upset, and there is something wrong with her. Pray that Caylee will make a speedy recovery, and that the new higher dose of anti-seizure meds will get rid of the seizures. Pray for wisdom for the doctors on how to best treat her, and that she will get back to feeling normal.


Andrew Brilliant - 4 years old - Recovering from Surgery


Andrew is still in the hospital. He had a rough night last night. They tried to take him off antispasm medicine. He screamed for a good hour last night and wimpered for the rest of the night. They put him back on the medicine. It is painful to walk, but good for him. His catheter is suppose to come out today. Please pray he urinates on his own as the antispasm medicine can make that difficult. They are saying he will be able to come home today or tomorrow if he is able to urinate on his own. We can not believe we will be going through this again in a little over a week. We are worn and emotionally taxed. We are so grateful to the many friends who have held us in prayer. The prayers are keeping us going. Pray that Andrew's pain will go away, and that he can get off the pain meds. Pray the surgery is a complete success, and that he will no longer have any problems. Also, pray for peace and strength for Andrew and his mom and dad, as they help Andrew recover, and look ahead to another surgery for their young daughter Esther.

21-May 2016

Caylee F.

Caylee F. - 6 years old


I just got word that Caylee is being rushed to the hospital. They believe she is having a stroke. Please pray that the doctors can stabilizer her, and that if it is a stroke, there is minimal damage. Pray for wisdom for the doctors, how to best treat her, and that whatever is causing the blockage, clears up but does not cause any further damage. I will update you once I hear something.

18-May 2016

Andrew B., Jasmine, Nico & Keyonna

Andrew Brilliant - 4 years old


On Wednesday, our sweet son Andrew (4 years old) will be having reimplantation surgery. Please pray that the Lord guides the surgeon's hands. We are praying for no complications and no blockages to form. Bladder spasms are common but we are praying he doesn't get them. Please pray that Andrew has peace and recovers quickly. Please pray for Esther as she is with family and friends. Her surgery will be June 1st. Please pray she stays ferebral UTI free for surgery.


Jasmine - 4 years old - Neuroblastoma/ Transplant


Jasmine just had her full body scans and tests. She is 3 months cancer free. Continue to pray she remains cancer free for the rest of her life.


Nico - 10 years old - leukemia


Nico was able to get his port removed, and is into the Maintenance Phase of his chemo treatment. Pray he can finish his treatment and that the cancer never comes back

Keyonna - 7 years old - Leukemia


Keyonna received treatment last week. Pray her Counts stay high and that she does not have any side effects. Pray she stays in remission and the cancer never comes back.

12-Apr 2016

Aniylah, Keyonna & Jasmine

Aniylah - 3 years old


Aniylah had a bunch of seizures yesterday, and had to be rushed to the hospital. Please pray that the doctors can get the seizures under control, and that she has no brain damage or side effects. Pray for a speedy recovery, and for peace for the family.



Keyonna - 8 years old - Leukemia


Keyonna has her blood work today. Pray that the results come back clean, and that her counts remain high. She recently started Stage 5 I believe of of 7 stages of chemo therapy. Pray she remains healthy, and her counts remain high through the rest of her treatment.

Jasmine - 4 years old - Neuroblastoma


Jasmine has been doing well overall. She had to go to the hospital for a scan, but sounds like everything looked ok. Please continue to pray for Jasmine, that she will remain cancer free for the rest of her life, and that she will effect so many people with her story and amazing personality.

06-May 2016

Esther and Andrew Brilliant, Neymar Rivera & for the families of children who have passed away

Esther and Andrew Brilliant - Bilateral Reflex


Esther has benn dealing will a bunch of health issues because of her bilateral reflux. Now the family fond out that her older brother Andrew has it too. They were hoping to avoid surgery for Esther, now it looks like both children will require surgery. Here is an email from their mom:
"We could use a lot of prayer. The children both had testing this week. We found out that Andrew has grade 4 bilateral reflex. He also has a kink in his urter. Esther's reflex is the same bilateral grade 4. Long story short they both need reimplantation surgery. They will be reimplanting the urters into the bladder.They will be in the hospital for 4 or 5 days following the surgery. Please pray that there are no complications and that they heal quickly. Many children experience bladder spasms that are very painful following surgery. It will be several weeks of recovery. Andrew's surgery is scheduled for may 18. Esther has had 3 ferebral utis in the last 9 weeks. In order for her to get the surgery she needs to be uti free for 6 weeks. We found out today that she currently has an infection. She is scheduled for surgery June 1, but that may change due to infection."
Please pray for healing for both Andrew and Esther. Pray that the surgery goes better than expected, and that this eliminates the problem for good. Pray that Esthers infection clear up quickly, and that there are no side effects from the surgery.


Neymar Rivera - 9 months old - Cranial Plate...


Neymar's mom is asking for prayers for Neymar. He has had some health issues as well including requiring a Cranial Plate on his head. He needs it so his cranium will fuse together correctly. He has had some other problems with too much fluid in his head, and some hearing problems. He had to have tubes placed in his ears as well. Please pray that Neymar's head develops perfectly, and that the fluid in his head and his hearing clear up.


Prayer for Families of Children who have passed away. May is a really hard month for a lot of families on Charlotte's Web of Prayer:


Nayelis


Neymar's Sister Passed Away 4 years old yesterday(Cinco de Mayo), after courageously battling cancer for several years. If you ever had the fortune to meet her, you would never forget her. Please pray for her Mom Yvette, dad Omar, younger brother Nandy, and all her friends and family who all miss her dearly.


Casey Rose


Casey also passed away on May 5th. It was her 8 year anniversary of her passing. Please pray for her mom, dad, siblings, and friends and family.


Dre Baker


May 15th, 2015. It will be 1 year on May 15th that Dre passed away. Like all these other kids he found cancer courageously for several years. Pray for him mom Trista and his siblings, who miss him dearly.


Mikey and Josh


Mikey was 7th years old when he passed away 2 years ago. He was the happiest, cutest little kid and was loved by everyone who met him. He died from a terminal illness called Pierson's Syndrome, living longer than any other children with the same diagnosis. Please pray for his Mom Melissa and his sister Mariah, along with his dad and all his extended family. Pray for some peace for Melissa and Mariah, and hope they will remember all the great memories of Mikey and Josh.


Dylan Fortunato


May 21, 2014. I can't believe it will be 2 years on May 21st that Dylan passed away. He is missed by some many people, because of his loving personality and selflessness. He touched so many lives including mine, and will never be forgotten. He was like a big brother to so many kids at Yale NH Hospital, as well as many adults. He introduced me to many of this children on CWOP, because he wanted to see if I could help out the children and their families. He never asked me for anything for himself, and always looked to help others, even in his toughest times of suffering.

26-Apr 2016

Maddie, Jasmine & Keyonna

Please Pray for Caylee's Dad who has been at Yale for the past week with a bad infection. Let's pray that that the doctors can get infection under control and he is able to get home to his family soon.

Please pray for a 9 year old boy that has been newly diagnosed with cancer. May we keep the family in our thoughts and prayers.


Maddie- 17 years -leukemia


She just recently visited CHOP Hospital of Philadelphia and all looked good with her blood work. Maddie still has pain and side effects from the therapy she received to get her in remission. Let's continue to pray for Maddie.She will have a bone marrow and spinal next month to check to see how's she's doing. Let's keep up with the prayers for Maddie and her Family.



Jasmine - 4 years old - Neuroblastoma


Jasmine is so far doing well! Let's continue to pray for good health.

Keyonna - 8 years old - Leukemia


Keyonna is doing well and going to school. Let's pray for continued good Health.

12-Apr 2016

Aniylah, Keyonna & Jasmine

Aniylah - 3 years old


Aniylah had a bunch of seizures yesterday, and had to be rushed to the hospital. Please pray that the doctors can get the seizures under control, and that she has no brain damage or side effects. Pray for a speedy recovery, and for peace for the family.



Keyonna - 8 years old - Leukemia


Keyonna has her blood work today. Pray that the results come back clean, and that her counts remain high. She recently started Stage 5 I believe of of 7 stages of chemo therapy. Pray she remains healthy, and her counts remain high through the rest of her treatment.

Jasmine - 4 years old - Neuroblastoma


Jasmine has been doing well overall. She had to go to the hospital for a scan, but sounds like everything looked ok. Please continue to pray for Jasmine, that she will remain cancer free for the rest of her life, and that she will effect so many people with her story and amazing personality.

01-Apr 2016

Teagan Hawkins & Maddie Sweedler

Teagan Hawkins - 6th grader


Cheshire is mourning the loss of Teagan Hawkins. She is a 6th grade girl who loved Cheerleading and went to Doolittle School. She passed away on Wednesday, after a brief illness. Below is an article from the Cheshire Herald.

"Cheshire is mourning the loss of a young student and cheerleader, who died Wednesday after an unexpected illness landed her in the hospital late last week. Teagan Hawkins, 11, who attended Doolittle School, was rushed to the hospital last Saturday, according to reports. Hawkins apparently was suffering from appendicitis. A vigil was held on Tuesday evening at Bartlem Park, where friends, family, and classmates came together to pray for the youngster as she remained in intensive care. On Wednesday evening, reports began to surface on social media that Hawkins had died. A GoFundMe page has been started to aid the family during this time. The page, started by Aprille Lynne Paige, states, "Lisa and Ed are two of the most loving devoted parents I have ever met. They adopted Teagan when she was just a baby because Lisa felt compelled to mother a miracle ... Although this will not take away the pain or bring their precious Teagan back, I'm hoping to help ease the financial burden of the extensive medical care and untimely funeral costs."

To donate click here.



Maddie Sweedler - 17 years old - leukemia/immune therapy


Please continue to pray for Maddie that her cancer stays in remission for good, and that her counts remain high. Pray that the pain i her legs and body go away, and that her body is strengthened.

29-Mar 2016

Teagan Hawkins

Teagan Hawkins - 6th grader


There is a young lady named Teagan Hawkins that has become very ill. Teagan and her family live here in town, and she is a 6th Grader at Doolittle School. Teagan is a fellow cheerleader on the USA Wildcats team. At last report, she is at Yale-New Haven Children's hospital, and is a very sick little girl. Please pray that Teagan's body will respond to the treatment she is receiving. Pray for wisdom for the doctor on how to treat her, and to guide their hands through any procedures she may need. Pray God puts his hand on her, and heals her completely.

28-Mar 2016

Maddie S., Esther B., Charlotte D., & Josiah G.

Maddie Sweedler - 17 years old - leukemia


Maddie has been battling Leukemia for around 7 years. She has relapsed twice and the 7 years of chemo and other treatments has taken a toll on her body. Maddie has been doing Immune Therapy at CHOP in Phily for a few months. When she went there, the luekemia was in over 50% of her body. She received the manufactured cells over a month ago. Last week she had her very important Spinal tap and Bone marrow test. The tests came back CLEAN. Maddie's cancer is in remission. This is the best news and results that we were praying for. This is great news, but Maddie is far from out of the woods. We need to keep praying for Maddie that her T Cells stay and that no B Cells come back for at least a few months. If any B Cells come back, they will have to consider transplant as an option. Please pray just that, that the T Cells stay put and the B cells never come back. Also pray for healing for Maddie, who is really tired and still having pain in her legs.



Esther Brilliant - 15 Months Old - Bi-Lateral Renal Reflux


Please pray for Esther she has been vomiting for a week. They admitted her to Yale yesterday for dehydration, fever, and vomiting. It is a virus, but she is having a terrible time getting over it. They checked her urine. The culture came back clean. Please pray that Esther will heal up quickly, and that the nausea will stop. Continue to pray for her, as she is schedule for a surgery to correct the Bi-Lateral Renal Reflux. Pray the procedure goes better than expected, and it illiminates the side effects(UTI's, organ problems, fever...)



Charlotte DePaolo - 9 years old - seizures


Char is doing really good all things considered. We believe she had several Grand Mal seizures almost 2 weeks ago. She lost consciousness and was foaming at the mouth for over an hour. She remembers nothing from the night. She went back to school for a couple days last week. Her eyes are still very light sensitive and at times look a little out of focus, but overall she feels good. Please pray that Charlotte's new higher dose of anti-seizure meds, prevent any future seizures. Pray that she makes a full recovery and her eyes stop bothering her, and can go back to normal activities in her life.



Josiah Gonzalez - 16 months old - Kidney and Liver Transplant


Josiah was in the room next to us st the Yale PICU. I spoke briefly with the mom. Josiah was born with a genetic condition, and had to have a liver and kidney transplant. I do not know much more than that. Pray that the surgery is a complete success, and that his body will accept his new organs. Pray he will make a full recovery and be able to leave the hospital soon.



Aniylah and Derek are doing really good lately. They are both going to school. Caylee has been feeling better too. Pray she continues to stay healthy and can go back to school soon.

20-Mar 2016

Charlotte DePaolo & Maddie Sweedler

Charlotte DePaolo - 9 years old - seizures


She is doing really good, and is acting normal. Her eyes are still really sensitive to light, but overall she has recovered great. Continue to pray that the new higher dose will prevent any future seizures, and that she will be able to do all her normal activities, with no seizures.



Maddie Sweedler - 17 years old - immune Therapy for Leukemia


Please take some time to pray for Maddie today and the rest of this week. She has very important tests tomorrow at Children's Hospital of Philly. She will be having her spinal tap and bone marrow test, to see how well the immune therapy is working. She really all the tests to come back clean, and needs her cancer to be in remission. She has been battling cancer for over 7 years, and this immune therapy has to work. The test results will be done on Friday, and hopefully Maddie can go home for Easter. Please pray that Maddie's tests come back clean, and that the immune therapy has eliminated most or all of the cancer cells. Pray that the therapy is working even better than the doctors expected, and that she be able to go home next weekend. Pray that she is cancer free, and that it will never come back. Lastly pray for peace for Maddie, her mom, and brother Zachary, as they are really worried about the results.

17-Mar 2016

Charlotte DePaolo

Charlotte DePaolo - 9 years old - seizures


PM:  Charlotte is doing much better and was able to come home this afternoon. It has been 5 years since Char's last seizure, so it came as a surprise to us all. She suffered a complex seizure, somewhere around 5 seizures at around 10-11 pm last night. Her seizures lasted over an hour, including the ambulance ride to the hospital. It took several doses of anti seizure meds to stop them. Amazingly she is doing great right now. She is like her old self. She still is a little woozy, but she is talking and wants to go outside and play. The seizure came from the same brain damaged area from her stroke, as the last one. Her neurologist thinks she may need a higher dose of anti seizure meds, because she has grown so much. There was no sign of a stroke. Please pray that Charlotte will no longer have anymore seizures, and that the new sized dose will prevent them. Pray she will recover fully, and that there are no long term side effects. Thanks again for all the prayers. Keep them coming.



AM:  Char woke up last night and started to have seizures. She had to be taken by ambulance to Yale HN Hospital. She suffered 5+ seizures, for more than an hour straight, and was non responsive. After several doses of anti seizure meds, she stopped seizing. They did several tests last night, and so far no signs of any strokes. Please pray that the tests will find out what caused the seizures, and pray that there is no brain damage. Pray she has no long term side effects, and she makes a full, quick recovery. She is up this morning and is talking with mom and dad. She does not remember anything from last night, but is doing well this morning.

16-Mar 2016

Charlotte DePaolo

Charlotte DePaolo - 9 years old - seizures


Please pray for Charlotte DePaolo- Chris and Sue are headed to Yale New Haven Hospital with Charlotte she is having seizures. Please Father god watch over Charlotte and give her family much needed strength may you guide the doctors to help keep her safe and give them answers.

15-Mar 2016

Esther B., Maddie S., Maddie & Francis K.

Esther Brilliant - 15 Months Old - Bi-Lateral Renal Reflux


Esther has been having some health issues, and was diagnosed with Bi-Lateral Renal Reflux. It causes her to have problems with her kidneys, and she suffers from UTI's, and some infections. Doctors are also concerns because she has not gained any weight, and the last time they checked, her kidney had not grown. They were hoping to avoid surgery, but they now feel it is necessary. She is scheduled to have surgery on April 19th. She is having a VCUG Test done today to see where the reflux is at. Please pray that if Esther has to have surgery, that it is a complete success. Pray the surgery will start the kidneys to function correctly, and begin growing again. Also pray that it gets rid of the reflux and the UTI's once and for all. Also pray for her brother Andrew, who has not been diagnosed with anything yet, but has had UTI's and has even higher levels of infections. Pray that he does not have it, and that he is fine.



Maddie Sweedler - 17 years old - Immune Therapy for Leukemia


Please be praying for Maddie this weekend. On Monday March 21st they will do a bone marrow test/LP to check that the stem cell therapy has done what it's supposed to. Pray that the manufactured cells placed in her body has taken out the cancer cells. Please continue to pray that she is healed and that Maddie is cancer free once and for all.



Maddie - Leukemia


Maddie's leukemia is now in 80% of her body. The doctors have nothing they can do anymore for her. Please pray that Maddie will not have much discomfort or pain. Pray that every day she has with her family are blessed days. Pray for peace for Maddie and her family, as they go through this difficult time.



Francis Kalanga - 18 Years Old - Bone Cancer - Bridgeport, CT.


Francis passed away over the weekend, after battling bone cancer since 2014. We did not know him personally, but we ask for prayers for his family as they grieve the loss of this great kid. He played on Varsity Football and Basketball, loved music, and played the drums for his church. His wish was to bring some joy to the other smaller kids at Yale by providing them with toys, gifts...Grace is going to try and reach the family to see if we can help collect toys...to donate to Yale NH Hospital in Francis' memory.

11-Mar 2016

Keyonna & Maddie

Keyonna - 7 years old - leukemia


Keyonna is doing well. She had also finished her cycle and she will be starting the new cycle .She is due for an LP on Tuesday, she will be getting treatment. Please pray for her.



Maddie Sweedler - 17 years old - leukemia


She received her stem cell therapy-Last week Maddie wasin the ICU with high fevers and oxygen support, it was so very scary for her family. With the grace of god and all your prayers she is out of ICU doing so much better but still very weak and dealing with side effects. Maddie goes 2-3 times a week to get checked for her blood counts and to see if she needs any blood products. On March 21st they will do a bone marrow test/LP to check that the stem cell therapy has done what it's supposed to. Please continue to pray that she is healed and that Maddie is cancer free once and for all.

1-Mar 2016

Maddie, Caylee, Madeline & Keyonna

Maddie Sweedler - 17 years old - leukemia


Please continue to pray, as Maddie has been placed in ICU last night as her condition is fragile and still running high fevers.



Caylee - 6 years old - periventricular leukomalacia


Caylee's mom said she has lots of hip pain as well as a bad infection/ bed sore on her hip that they are unable to heal. Please pray that her hip will heal soon and she will no longer have pain/bed sore.



Madeline- 9 years old


Relapsed 6 months post transplant Aml - leukemia
Please pray for this beautiful family as they are faced with no other treatment options. Pray for Strength, peace, understanding.



Keyonna - 7 years old - leukemia


Doing well- her blood counts are good and she is attending school. Pray that Keyonna continues to stay healthy and strong.

25-Feb 2016

Maddie Sweedler

Maddie Sweedler - 17 years old - leukemia


Maddie is running fevers of 103-104, which is expected with the cells doing what they are supposed to. It has been a really hard day for Jen to have to watch Maddie go through this -- it's so scary. They may need to bring her to ICU to help with her breathing if needed as well as keep an eye on her blood pressure. Please keep the prayers coming. God bless Maddie and her family and please keep Her safe and once and for all, for her to be rid of leukemia.

22-Feb 2016

Maddie Sweedler

Maddie Sweedler - 17 years old - leukemia


Last Sunday Maddie and her mom flew out to Philly -- Maddie went through very intense chemo from Monday through Thursday in order to get her ready for her stem cell therapy tomorrow. Maddie is not felling well, has pain, and feeling extremely tired. Please let us all pray and even light a candle for Maddie. May the cells she will receive put her in remission once and for all, may we also pray for the doctors and nurses taking care of Maddie, that they will be able to manage her side effects and keep her safe. Also please keep her mom in your thoughts and prayers as well as her brother who is home attending school.

19-Feb 2016

Jasmine, Maddie & Caylee

Jasmine Gadner - 4 years old - Stage 4 cancer


Jasmine is getting a bunch of inportant tests today, to see how she is doing. This was the email from her father: "At Yale. Doing MRI, MIBG last one starts at 1300, then bone marrow test Follows. From August report: tumor bed is clear, bone marrow is clear, bone spots diminished emensly. So far tests look good." Please pray that the MRI, bone marrow and MIBG tests all come back clean. Pray that all tests are good news, and that Jasmine can recover quickly.



Maddie Sweedler - 17 years old - leukemia


Maddie is at Philadelphia Children's Hospital. She is receiving treatment and cells for immune therapy for her Leukemia that returned a third time in October. I hear she has been really tired, and I hope to get an update soon. Please pray that the treatment and immune therapy work, and that Maddie can get through all the necessary treatment. Pray that CHOP will diagnose and treat her cancer correctly, and that they can get rid of her cancer once and for all.



Caylee - 6 years old


Caylee went back into the ICU last week because of an incident at school. She threw up during a feeding and almost choked to death. She suffered a collapsed lung and now has aspiration pneumonia. Pray that her health will bounce back again, and that the pneumenia goes away. Pray she does not have any more problems with her feeding or with her breathing.

10-Feb 2016

Jasmine, Maddie & Caylee

Jasmine Gadner - 4 years old - Stage 4 cancer


Jasmine's dad has asked for some prayers for this week. Jasmine will be getting results from her scan from Yale soon. She has Stage 4 neuroblastoma, and has gone through immune therapy and a transplant. She has begun feeling good, even eating food and playing in the snow. Please pray that when the results come back, that she is still cancers free. Pray that the cancer will never come back, and that Jasmine and her family can return to a somewhat normal life.



Maddie Sweedler - 17 years old - leukemia


Please pray for Maddie as she continues her battle with cancer. Her leukemia came back in November, and she has been receiving treatment. The doctors need her cancer to go into remissions asap, so they can start her immune therapy on Feb. 15 in Philadelphia. Her cancer levels have not gone down enough, and she has been dealing with a bad nose bleed, and other complications. Please pray that Maddie's cancer will go into remission this week, and that she can start her immune therapy. Pray that the nose bleeds stop, and her side effects go away. Please pray for her over the next several weeks, as she will be staying at Children's Hospital of Phily for the next 5-6 weeks. Pray the immune therapy works better than expected, and that she will be cancer free for good soon.



Caylee - 6 years old - periventricular leukomalacia


Caylee was able to go home a couple of weeks ago. She was in really bad shape for a while, needing a ventilator to help her breathe. Please pray that she will remain healthy, and she will not have any more problems.

26-Jan 2016

Caylee, Maddie & Keyonna

Caylee - 6 years old


Caylee was able to go home on Friday!! The family has been through a crazy few weeks. Caylee had to be rushed to the hospital a couple weeks back, because she stopped breathing. Her breathing was so bad they put her on a ventilator, and she went into a coma for a few days. She has a tube put into her chest to get rid of fluid. Doctors and her parents were really concerned if she was going to make it . Caylee is a tough kids, who has been through a lot. She began to recover more and more, and the doctors were able to take her off the ventilator.She finally was released from the hospital on Friday. Please pray that Caylee's lungs continue to gain strength, and her breathing will continue to improve. Pray she does not have any more health issues, and that she can get through winter with no more hospital visits.



Maddie Sweedler - 17 years old - leukemia


Maddie's cancer came back the end of November for the 2nd time. She has already been through over 5 years of treatment, so the doctors are treating her with chemo, to try and get her in remission. Today she is receiving some of the harshest chemo, so keep her in prayer. She is waiting for cells that she had taken from her body, to manufacture into cancer fighting cells. The treatment is called Immune therapy. She is scheduled to go to CHOP(Children's Hospital of Philadelphia) soon to begin the treatment. She could be there for 2-3 weeks. Please pray for this great kid, that she can receive all her treatment this week, and she will be clean. Pray that this go around will put her cancer in remission, and pray her body is strong enough and ready to receive the immune therapy. Pray that her counts stay high and she has zero side effects from her treatment. Also pray that the immune therapy is a huge success, and that she will soon be cancer free for good.



Keyonna - 7 years old - leukemia


Keyonna is back at school, after being out for a long time. She just had treatment last week for her cancer, and her counts are 1500. That is a really good number. Keyonna's mom always texts me updates, and asks me to keep the prayers coming. So keep the prayers coming. Pray Keyonna can make the adjustment to going back to school. Pray she will love school and make new friends. Please pray she remains healthy, and that her counts remain high, so she can continue to receive her treatment.



Continue to pray for Jasmine and Aniylah (who started a new school), and all the other kids on Charlotte's Web.

14-Jan 2016

Caylee

Caylee - 6 years old


Caylee has been in a non-medically induced coma for a couple days. On Tuesday night Caylee was not breathing well, and there was fluid forming in her chest. The doctors put a tube into her chest to remove some of the fluid. Yesterday she was more comfortable and breathing better. She had been opening her eyes on and off, and has been more responsive. Please continue to pray for healing for Caylee. Pray that the tube will get rif of all her fluid in her chest. Pray she can soon come off the ventilator, and that she will make a full recovery.

11-Jan 2016

Caylee & Maddie

Caylee - 6 years old


This is a letter from Caylee's mom. They had a really tough day, and were questioned by doctors as to why Caylee had some bruises on her. As you can read below, the Lord intervened to help diagnose her problem. Her mom and dad are great parents, and have spent their entire life taking great care for her.
Today was very rough day. We found out that Caylee has Streptococcal Toxic Shock Syndrome. The survival rate is not good at all. Tomorrow she will have a blood transfusion, and will remain on the ventilator. Her body is shutting down.
We met with a host of medical professionals today. They had accused us of poisoning her and blamed us for her bruising. They told us that we were not allowed to be alone with her. They claimed that caring for her was too much and we were looking for a way out. They said I was a liar and an abuser. I never felt so terrible. I was interrogated and harassed. I sat in that room and asked God to save me from the fire because I was innocent. I didn't know what I was doing wrong. Suddenly I had a moment of clarity. I thought of Stephen from the Bible and I looked up to heaven asking God for answers. Suddenly the word purpura came into my mind. I have never heard of this word in my life!! I went straight to google and researched the term. BAM!! When someone's body has a low platelet count they suffer a pooling of blood under the skin on points of pressure which cause severe bruising. We called a meeting and told them about what we had found. low and behold...she was diagnosed with purpura. They claimed a doctor must have alerted me to the condition. Nope, it was caring an amazing God not a doctor!! When we were getting off the bus a random man came to to us and said "God is with you , always". and he just walked away!!! Needless to say, we are praying that she will wake up and recover. Right now she is on no sedation medication because she is so sick and her body is so tired that she is in a coma. Her kidneys are shutting down and she has almost no pulse. We will not give up. Caylee is a fighter and has defied the odds on so many occasions. Its just a game of patience now.
Please pray that Caylee's body will respond tonite, and her organs will start working better. Pray she will come out of her sedated state, and will come back to good health. Pray she can soon come off the ventilator. Pray for wisdom for the doctors on how to best treat her, and that the things they are giving her, will work. Pray for peace for her mom, dad, brother, and other family members. Caylee is a really tough kid, and has been in really bad shape before. Please pray she will recover completely, with no long term side effects.



Maddie Sweedler - 17 years old - leukemia


Maddie was able to go home Friday, after her infection cleared up, and her blood counts improved. Maddie is being flown tomorrow to Children's Hospital of Phily(CHOP). She needs to get more cells taken from her body. They will manufacture those cells, to be used in her immune therapy treatment. Please pray that Maddie's trip is a smooth one, and that the cells they take this time, will be the cells used for a successful immune therapy. Pray for peace for Maddie, her mom and brother, on this trip, and throughout her treatment. Pray she will be able to complete the therapy, and that she will quickly go into remission. Pray she will one day be cancer free, and it will never come back.

10-Jan 2016

Caylee & Maddie

Caylee - 6 years old


Caylee stopped breathing and had to be rushed to the hospital. Thing have gotten a lot worse, and she just had to be intubated. Please pray that the doctors can stabilize her, and she will be ok.



Maddie Sweedler - 17 years old - leukemia


Maddie has been stuck in the hospital with low blood counts and an infection. Please pray Maddie's infection clears up and her counts go up. Pray she is home or will be home soon.

Events What's Happening

8th Annual Charlotte's Web of Prayer / Dylan Fortunato Memorial Golf Outing

WHEN:  Friday, June 2nd, 2017
WHERE:  Timberlin Golf Club, Kensington, CT
TIME:  12 noon, shotgun
DONATION:  $150./per person which includes 18 holes of golf with a golf Cart, a bag lunch, steak dinner and full buffet.

100% of the proceeds benefit the families and children of Charlotte's Web of Prayer and Acts 4 Ministry.

Sponsors:
Dinner:  $2,500
Platinum:  $1,000
Gold:  $500
Silver:  $250
Bronze:  $100
Donations of any amount are welcome

The golf outing is the largest fundraiser we do for Charlotte's Web of Prayer.

For event questions, directions or for sponsorship, please call Chris DePaolo at (203)232-7172 or email me. Click here for the registration form. Complete the form by May 16, 2017. Please make checks payable to Oasis and write "CW Golf Outing" on the memo line. Please mail to:

Chris DePaolo
771 Allen Avenue
Cheshire, CT 06410
phone: (203)232-7172

As always thanks for all your continued prayers and support for Charlotte's Web of Prayer.

God Bless,
The DePaolos

We are now accepting donations via PayPal.

Donations of any size are welcome and are tax deductible (CWOP is a 501C Non-profit).

The kids Pray for them

Here are the kids of Charlotte's Web of Prayer. Click on their names to learn about them and see all of their postings.

Alex - 18 years old - Krones Disease
I do not have too much info on Alex. He is 18 years old, and is suffering from a severe case of Krones Disease. They had to already remove some of his intestines, and they are afraid they may have to remove more.
Please pray that surgery is not necessary and that his health greatly improves.
Alexa - 6 months old
14-March 2012:  We met Alexa and her mom (Shannon) at Yale when Charlotte had her blood work done last week. She is a beautiful little girl with big blue eyes. She had a big black and blue on her arm. After a bunch of tests, they discovered a tumor in her arm and her lungs. She has a rare form of cancer that only 30 children a year get diagnosed with. If the cancer comes back, it is untreatable, which means she might have to loose her arm to save her life.
Please pray for Alexa and her family. Pray that the treatment takes away the cancer, and that it does not come back. Her mom said she "just wants her little girl to live a long healthy life."
Mikey Anderson
20-Jan 2014:  Mikey had to be admitted to the ICU on Sunday. He was having trouble breathing, so they admitted him to the PICU. He was moved today to a regular room, and is still getting IV meds. Please pray that his breathing goes back to normal, and that his body is strong enough to go home.
  • 04-Apr 2014:  Please keep praying for Mikey who is in the hospital. Pray his body heals up and gains strength so he can stay out of the hospital.
  • 26-Mar 2014:  Mikey had to be re-admitted into the hospital earlier this week. He had an ear infection that spread to other parts of his body. He woke up shaking, so Melissa brought him to the hospital. His blood suger was over 1200. Please pray that Mikey's condition improves, and that the doctors can diagnose and treat his problem. Pray for peace for Melissa.
  • 03-Feb 2014:  Mikey had to be admitted back into the PICU at Yale. His condition continues to go downhill as soon as the doctors start to wean him off his meds. Mikey's mom is worried his body will not be strong enough without the meds. Pray that Mikey's body will stay strong and his counts high, even after they take him off the meds. Pray his body gets stronger and he recovers fully from this episode.
  • 26-Jan 2014:  Please pray for Mikey Anderson. His mom said he was admitted into the PICU at Yale yesterday. Mikey has had a hard time breathing, and his condition can deteriorate quickly.
Anthony
14-June 2013:  I know less about Anthony. He has been at Yale as a inpatient for 3 months. The family needs help and prayer, and pray whatever is ailing Anthony heals.
Isabelle Baptiste - 20 months old - Brain Tumor
18-April 2011:  We met Isabelle and her mom today at Yale. She was this beautiful little girl playing at the table when Char, Mal and I came in. She had a visible scar on the back of her head. Her mom and I started talking, and she told me the story of how she found out Isabelle had a brain tumor. She began by saying "God always for a reason". She said Isabelle had hit her head, and when the doctors said she was ok and just had a cold, her mom did not think so. Isabelle was not herself, really lethargic, tired. When you doctors agreed to give her a head scan, they discovered a mass in the back of her head. That was on June 11, 2010. She had brain surgery right after that to remove the tumor in her head. The surgery went well, and Isabelle has been receiving chemo and radiation. She has been getting all her nutrients and food through a G-Tube since the surgery last year. Pray that she can start to eat solid foods again soon.

24-May 2011: Isabelle's mom called me to let me know that the results came back negative for cancer in her spine. She also said the doctors like the way her head is healing. She asked me to Thank everyone who prayed for her, and to continue to pray for Isabelle.

16-May 2011: Isabelle is getting the results today from the MRI she had 1-2 weeks ago. She had a brain tumor removed from the back of her head, and has been undergoing chemo and radiation to fight the cancer. The doctors told Isabelle's mom they saw something in her spine that was of concern.

Please pray for her this morning, that the results from the MRI are good news. Pray there is no cancer signs in her spine, and that her head continues to heal. Also, pray for Isabelle's parents, as they are very concerned for their little girl.

26-Apr 2011: I made a mistake on Isabelle's first posting on Charlotte's Web. Her MRI is scheduled for today, to check her brain and spine. Her mom said it is a very important MRI because the doctors were concerned about something they saw in her spine. Isabelle is an adorable 20 month old girl. She had a brain tumor in the back of her head removed, and has been undergoing chemo and radiation.

Please pray that the MRI goes well, and that Isabelle comes through it fine. Also pray that the results from the MRI are good, and that there is no new signs of cancer in her spine. Also pray that her brain looks good, and is continuing to heal. One last thing, please lift up her mom, dad, and brother as they are concerned for their little girl.

11-Apr 2011: Her mom asked us to pray for her MRI, that takes place on June 26th on her head and spine. They found some changes in her spine, and they want to see how her brain is doing.

Please pray that they have good news from the MRI. Pray that there is no cancer in her spine, and that her brain is healing well.

Pray that Isabelle continues to develop, and that her blood levels remain good. Also pray for her family, as they care for Isabelle, and for her 4 year old brother, who is trying to deal with having a sick sibling.
Anthony
14-June 2013:  I know less about Anthony. He has been at Yale as a inpatient for 3 months. The family needs help and prayer, and pray whatever is ailing Anthony heals.
Andrew Brilliant - 4 years old - recoveing from surgery
23-May 2016:  Andrew is still in the hospital. He had a rough night last night. They tried to take him off antispasm medicine. He screamed for a good hour last night and wimpered for the rest of the night. They put him back on the medicine. It is painful to walk, but good for him. His catheter is suppose to come out today. Please pray he urinates on his own as the antispasm medicine can make that difficult. They are saying he will be able to come home today or tomorrow if he is able to urinate on his own. We can not believe we will be going through this again in a little over a week. We are worn and emotionally taxed. We are so grateful to the many friends who have held us in prayer. The prayers are keeping us going. Pray that Andrew's pain will go away, and that he can get off the pain meds. Pray the surgery is a complete success, and that he will no longer have any problems. Also, pray for peace and strength for Andrew and his mom and dad, as they help Andrew recover, and look ahead to another surgery for their young daughter Esther.
  • 7 June 2016
    Here is an update on the 2 kids from their mom:
    Andrew will be 3 weeks post surgery tomorrow. He is doing wonderfully. He is energetic and back to his normal self. We just got home yesterday. Please keep us in prayer as we continue to rest and recuperate from all of this. We won't officially know if the surgery worked until December. Due to swelling and healing our urologist will wait 6 months to do any checking. Continue to pray for the kids as they recover from surgery. Pray that they do not get anymore infections, UTIs, fevers....and that the surgery is a complete success. Pray that in 6 months they find out their kids no longer have to deal with these problems.
Esther Brilliant - 15 months old - Bi-Lateral Renal Reflux
Esther Brilliant18-Jan 2015:  Esther is a newborn at our church. She is an adorable baby, who has been in and out of the hospital. She has had fevers of 104 degrees, and problems with UTIs. The doctors gave her a bunch of tests (Ultrasounds, CT scans...), to try and find out the cause. After a second test, they found the Urinary Track Infections. She will soon have a bunch of new tests to hopefully rule out any Anatomy Defects. They are hoping she only has a MILD case of Renal Reflux, which means the urine goes back into the body. Please pray for Esther, that the doctors can diagnose the problem, and that it is nothing serious, and easily treated. Pray there are NO Anatomy Defects, and that the UTI's and the fevers go away. Also pray for peace for the parents.

  • 7 June 2016
    Here is an update on the 2 kids from their mom:
    Esther will be one week post surgery. She is still having some pain, but is playing and smiling. She is on restricted activity for another week. Please keep us in prayer as we continue to rest and recuperate from all of this. We won't officially know if the surgery worked until December. Due to swelling and healing our urologist will wait 6 months to do any checking. Please pray that Esther stays UTI free as this surgery (when successful) only stops the UTIs from going into the kidneys. It does not stop UTIs. Her bacteria has become resistant to all but one oral antibiotic. She is allergic to it. We are praying she stops having UTIs all together. Continue to pray for the kids as they recover from surgery. Pray that they do not get anymore infections, UTIs, fevers....and that the surgery is a complete success. Pray that in 6 months they find out their kids no longer have to deal with these problems.
  • 1 June 2016
    Esther is having surgery this morning to hopefully correct her renal reflux problem. Please pray that the surgery goes great, that it corrects the problem, and that there are no complications. Pray she will be fine with the anesthesia, and will recover quickly. Also, pray for peace for the family.
  • 06 May 2016
    Esther has benn dealing will a bunch of health issues because of her bilateral reflux. Now the family fond out that her older brother Andrew has it too. They were hoping to avoid surgery for Esther, now it looks like both children will require surgery. Here is an email from their mom:
    "We could use a lot of prayer. The children both had testing this week. We found out that Andrew has grade 4 bilateral reflex. He also has a kink in his urter. Esther's reflex is the same bilateral grade 4. Long story short they both need reimplantation surgery. They will be reimplanting the urters into the bladder.They will be in the hospital for 4 or 5 days following the surgery. Please pray that there are no complications and that they heal quickly. Many children experience bladder spasms that are very painful following surgery. It will be several weeks of recovery. Andrew's surgery is scheduled for may 18. Esther has had 3 ferebral utis in the last 9 weeks. In order for her to get the surgery she needs to be uti free for 6 weeks. We found out today that she currently has an infection. She is scheduled for surgery June 1, but that may change due to infection."
    Please pray for healing for both Andrew and Esther. Pray that the surgery goes better than expected, and that this eliminates the problem for good. Pray that Esthers infection clear up quickly, and that there are no side effects from the surgery.
  • 28 Mar 2016
    Please pray for Esther she has been vomiting for a week. They admitted her to Yale yesterday for dehydration, fever, and vomiting. It is a virus, but she is having a terrible time getting over it. They checked her urine. The culture came back clean. Please pray that Esther will heal up quickly, and that the nausea will stop. Continue to pray for her, as she is schedule for a surgery to correct the Bi-Lateral Renal Reflux. Pray the procedure goes better than expected, and it illiminates the side effects(UTI's, organ problems, fever...)
  • 15 Mar 2016
    Esther has been having some health issues, and was diagnosed with Bi-Lateral Renal Reflux. It causes her to have problems with her kidneys, and she suffers from UTI's, and some infections. Doctors are also concerns because she has not gained any weight, and the last time they checked, her kidney had not grown. They were hoping to avoid surgery, but they now feel it is necessary. She is scheduled to have surgery on April 19th. She is having a VCUG Test done today to see where the reflux is at. Please pray that if Esther has to have surgery, that it is a complete success. Pray the surgery will start the kidneys to function correctly, and begin growing again. Also pray that it gets rid of the reflux and the UTI's once and for all. Also pray for her brother Andrew, who has not been diagnosed with anything yet, but has had UTI's and has even higher levels of infections. Pray that he does not have it, and that he is fine.
  • 2 Apr 2015
    After several tests, Ester's parents found out she has severe renal reflux. She is a Level 4 on a scale to 5. She has suffered from high fevers, and UTI's, and her condition may someday require surgery. Please pray that her condition improves, and that her body can fight off the UTI's. Pray the renal reflux goes down, and that she will never require surgery.
Callie
28-Aug 2012:  A little girl we know about in our "craniofacial community" who recently had the same surgery Justin had recently---a metal halo placed in/on her head/face to reconstruct her facially is having severe difficulties...and needs prayer....

23-Aug 2012:  We have encountered a new problem tonight! i noticed earlier today that something looked a little different with the device but wasn't sure, kurt was out of town today so he just got to look at it about an hour ago, the device has shifted and looks like it is pulling down instead of pulling the mid face out like it should, and there is some bleeding tonight, and the screws on the side of head is moving, so we called plastics tonight, they said don't distract tonight or in the morning (uh,no) and i have to have her up there tomorrow. more x-rays, more agonizing waiting, more nausea (which is already started) more FEAR, Please GOD, hear our cries again! its SO hard not to ask WHY sometime????? THANK YOU again for all your prayer and everything, she literally walks to the mailbox every day to see if she got a card, it's the highlight of her day!!! oh, and pray for traveling mercies too, i gotta do this alone again. Please continue to pray for her and her family.

8-Aug 2012:  I have had some sort of bladder spasm the last two hours, very acute pain and near black out. We are hoping that I will not have to be admitted tonight. This is I believe a complication from a previous surgery, I am under doctors' care and have had several tests in the past month but was getting ready to get referred to another specialist but had to put it on hold due to Callie's surgery.

Now, on to Callie. She was still not doing well at all, really no improvement. I said yesterday that she had gone down, something is wrong and I wanted her off the narcotics, still couldn't drink any, Kurt and I stayed with her last night and it was a tough night, but today has steadily gotten worse, I said enough, I called the plastics secretary we've known for years told her what's going on and that they need to order tylenol and ibuprofen, that should have been done! and that i wanted to see dr Argenta again tonight , she looks like she's in a coma, very alarming! more complications, Callie only takes grape tylenol and they don't have it here so kurt had to go out and buy it and then the doctors had to write orders for it and then the doc came in, things were starting to happen very quickly now, he got her weight, she d lost 3 pounds, has a low grade fever, he said if she's not eating by tomorrow he will do a scan to check for excessive swelling and see if the titanium plates and device are in place and nothing is wrong. i really didn't want to report this but i wanted everyone to know how to pray. as always we are full of gratitude for your love and constant prayers, love, sandy and kurt.
Campbell - 3 years old - Brain Tumor
14-March 2012:  I do not know a whole lot about Campbell, but heard he too has relapsed with his cancer. Just pray for him and his family, and they too are very concerned for their boy.

7-May 2012:  Campbell has been going to Boston's Children's Hospital, to receive a special laser radiation treatment. That are trying to get rid of a tumor on his optic nerve. The treatment has been going well, and he only has 1 week to go.

Pray that the radiation works to get rid of the tumor, and has no long term effect on him. Also pray for the family as they worry about their little boy after his relapse.

27-March 2012:  Campbell and his family have gone up to Massachusetts General to begin receiving a special treatment called Proton Radiation. He was cancer free for 6 months, when they found out a tumor grew back in his optic nerve. They are doing a "simulation" this week, and he is getting fitted for a mask for the radiation.

They are hoping this special treatment can target the tumor, and get rid of it. He will be in Boston for 6 weeks for the treatment.

We are planning to raise some money for the family, because they have to stay at a hotel for the 6 weeks. If you would like to send a check, or if you have free hotel rooms, email me back or call me.

Pray that this treatment will get rid of the tumor in his brain. Also pray that his blood counts remain high, and that his cancer levels go down. Also, pray for the family and all his friends and family, as they go through this tough time.
Baby Chloe - 9 months old - stage 4 neuroblastoma
Chloe

2-Aug 2016:  Baby C has Stage 4 Neuroblastoma, and has tumors in her tummy. Doctors are encouraged because the tumors are shrinking. Please pray that they can get rid of the tumors through treatment, and that her condition continues to improve. Pray that her side effects are minimal from the treatment, and that the cancer is out of her body soon.



  • 16-Jan 2017
    It has been 3 weeks since we found out that Chloe is in remission. Since then, Chloe ended up in the hospital with a fever and we eventually found out that her broviac was infected. Her broviac was removed and she received antibiotics to be sure the infection didn't spread. Even though this was not the ideal way to have her lines removed, we were happy to have it done sooner than later and joked that Chloe just wanted to be inpatient again to hang out with her amazing nurses! Chloe has been doing well since the end of her treatment. She has been resting a lot as her body is still healing, but has also been super busy and is trying to walk. We have been transitioning from constant hospital visits and a cautious lifestyle to a new normal for our family again. We are so thankful for all of the prayers, love and continued support for Chloe and our family. Thank you all!!!
  • 29-Dec 2016
    Cancer free and has finished chemo! Go Chloe!
  • 29-Nov 2016
    And just like that... Chloe is all done with chemotherapy!
  • 22-Nov 2016
    Chloe has been happy and active all weekend and today. She had a short clinic visit today. Her platelets are pretty low and trending down. We will go back later this week to see if she needs a little boost. She is looking forward to Thanksgiving this year and is most excited about trying all the delicious foods! If Chloe's counts are high enough on Monday she will begin her LAST round of chemo!
  • 18-Nov 2016
    Chloe has been doing pretty well the past couple days. She has been active and happy when she's awake and hasn't needed any anti-nausea medicine since Monday. We've been laying low because of some low counts. Tomorrow morning we go to clinic for a count check and to see if she needs anything. Let's pray that her counts are all coming up.
  • 19-Oct 2016
    Had surgery a few weeks ago she was in so much pain- she's ways smiling. God bless this beautiful baby!
    Update from mom:
    We had a long day at the hospital today. Chloe started her morning with a hearing test at 8am and didn't get home until after 6pm. Her hearing is still in a normal range and has not been significantly affected by the chemo. Chloe also had her 6th round of chemo today. We spent the day with amazing nurses and such a special child life specialist who set up a play area for Chloe today! Chloe felt right at home and it's hard to tell the chemo was running in this picture. Tomorrow, Chloe has an ultrasound to check on a blood clot. We're keeping our fingers crossed that it has gone away! The plan is for just 2 more rounds of chemo after this one.
  • 29-Sep 2016
    We went to clinic this morning and Chloe's counts were great, so she didn't need any blood or platelets! Typically her counts are still dropping at this point after chemo, but this time she is recovering early. We should be doctor-free until Monday! Please keep Chloe in your continued prayers as she will have surgery on 10/4.
  • 16-Sep 2016
    Overall she is doing well considering all the treatment. Many positive vibes for this beautiful baby girl and that she continue to do well! Happy 1st Birthday to the bravest baby we know! We love you SO much! Keep fighting! We are so excited to celebrate today and know we will celebrate many future birthdays cancer-free!
  • 5-Sep 2016
    Update from mom: here we are tonight... Chloe was sleeping all day long. After talking to the on call doctor, we ended up in the ER to have blood drawn to check Chloe's counts. It turns out all of her counts dropped so we were admitted earlier this evening and Chloe needs a blood transfusion tonight and maybe platelets tomorrow morning.
    Today's update:
    Chloe is happy, energized and feeling much better after her transfusions. Her cheeks are the rosiest we've seen them in a long time! We are looking forward to a great day at home today! Thank you for all the love, good vibes and prayers!
  • 29-Aug 2016
    Lets pray that Chloe that her counts recover soon. This weekend Chloe went from scooting around to crawling strong and is totally on the move! Can someone please tell us how this happened overnight?!? Today is day 7 in the chemo cycle and her "counts" are dropping. She already has some bruising on her back and is sleeping more than usual. Chloe has been able to recover on her own after her second and third chemo cycles. We return to clinic tomorrow morning and will wait and see what happens this week. Everyday we think about how lucky we are to have Chloe and are amazed by her strength and resilience.
  • 15-Aug 2016
    Chloe had a great clinic appointment. Her blood counts were excellent & many in the normal range of a healthy non-cancer patient. She completely recovered from her last round of chemo without any extra blood or platelets! We also got to see Chloe's two friends who also were diagnosed with Neuroblastoma around the same time as her. So I guess you can say it was a Neuroblastoma party at clinic today! These little guys are all fighting together!

    Chloe's last MIBG scan shows significant improvement in many parts of her body. The disease is gone or almost gone in most areas except for her liver and belly. This is great news, it means the chemo continues to work! We are doctor-free until Friday(hearing test) and then we will pack our bags for round four of chemo on Monday!

    We are so happy that the medicine, prayers and support are all working. Thank you all!
Giovanni Clark - 6 years old - Seizures, weight loss
Giovanni

Lisa, Giovanni's mother, asked for us to pray for him. He has some form of seizure disorder that has something to do with his chromosomes. Will update more information as I learn more about him. We can pray that the doctors and nurses correctly diagnose Giovanni, and that it is something treatable. Pray that the seizures subside and that him body is strong enough to fight off whatever is causing the problems. Also pray for emotional strength for Lisa and her fiance as they go through this.

  • 08-June 2015
    A Letter from Giovanni's Mother
    Giovanni's respiratory infection has gotten better and then this morning we noticed a bright, red rash that was hot to the touch all over the right side of Gio's face and neck! The doctors are not sure what is causing the rash that is now all over him with a new unknown virus that he has! Keeping a close eye for the next 24 hours and if symptoms worsen the doctors will make a judgement call! Nebulizer treatments, Benadryl and ibuprofen as needed until further notice! Please keep Giovanni and our family in your prayers. Pray that Gio's infections completely clear up, and that his rash goes away quickly. Pray that the doctors can easily diagnose and treat Gio's problems, and that there are no real complications. Also, continue to pray that his seizures go away, and his platlets remain high.
  • 01-June 2015
    A Letter from Giovanni's Mother
    We are sorry we didn't get to attend the golf tournament due to Giovanni being sick with a upper respiratory infection and a round of high fevers and seizures! He has gained weight back and platelets are back to where the doctors want them to be!!! Thanks again for keeping Giovanni and our family in your prayers!!! Please pray that Gio continues to gain weight, and his platelets stay high. Also, pray that the seizures stop completely, and his body gains strength.
  • 18-May 2015
    A Letter from Giovanni's Mother
    Hello! Just thought I would send an update on how Giovanni is doing we have gained back a bit of weight and he still is having some trouble with keeping up an appetite but we are working on it daily, gio has been back to school and doing great, the platelets are almost where the doctors want them to be and the levels are well on their way to being at a normal dose! Giovanni was changed to the seizure medicine known as Keppra and it seems to be working well we have had no seizure activity yay!!!! Please keep us in your prayers!
  • 7-May 2015
    Last week, Giovanni had a good meeting with his doctor. He is able to go off one of the meds and now is being put on Keppra which is a good anti-seizure medication. Charlotte is on that as well. Please continue to pray that the seizure stop for Giovanni, and that he can gain back a lot of the weight he has lost. Also pray for the knowledge for the doctors so they can diagnose his problem and find the best ways to treat it.
  • 27-Apr 2015
    Giovanni is a 6 year old boy with hydrocephalus, seizure disorder, chromosomal abnormality with a deletion in chromosome 5Q in addition to chromosome 12p! Currently Giovanni is having issues with systematic seizures, Low platelets, and high Depakote levels! Giovanni has lost his muscle control in his right eye due to having a seizure that lasted 15 min long. The neurologist is trying to find a New seizure medicine that will work best to control Giovanni seizures better! Also the doctors have discovered a heart murmur and are following up to make sure it doesn't further affect him!
  • 20-Apr 2015
    Gio is not really a new posting. He was one of the first kids on CWOP, but I have not heard from him in several years. Giovanni's mother has asked for some prayers. Her son Gio had suffered from seizures, like Charlotte when he was a little boy( we met in clinic). His condition had improved for several years, until recently. He has been in and out of the hospital a lot lately, suffering from several seizures, and a tremendous amount of weight loss. The doctors have been unable to keep Gio's platlets up enough. He has had to give so much blood, his arms, legs...are all bruised up. He has to go back to the hospital this week for more tests. Please pray that Gio's blood counts and platlets come up this week. Pray that he will get his appetite back, and will start to gain back the weight he has lost. Pray for wisdom for the doctors, to diagnose his condition, and be able to treat it easily. Also, pray for Peace for his mother Lisa. She is having a really hard time watching her son go through this. She has lost time at work, and can use all the prayers we have.
  • Dec 2009
    Giovanni was having seizures, sometimes multiple times a day, for the last several months. Doctors still have not been able to diagnose the problem yet. I spoke with Giovanni's relative on Christmas Eve. He has not had a seizure in over a month. PTL. Keep up the good work all you prayer warriors.
Mikey Clark - 5 years old - Pearson's Syndrome
Mikey Clark14-June 2013:  

Mikey was born missing 83% of his Myto DNA. Melissa Mikey's mom, "We had 5 hours of happiness with our little boy then he was rushed to the ICU for blood transfusions." He was send home from hospital, but at 3 weeks he would sleep 22 hours a day, and wouldn't eat or gain weight. Melissa knew something wasn't right and she took him to Yale. The nurse took him from her without saying anything, and brought him to the PICU. His hemoglobin level was 2.5, and he could have died. After being diagnosed with Diamond Blackfan Anemia, then bone marrow failure syndrome, Mikey's bone marrow was shutting down, getting infections, kidney problems....

Finally test results from Canada correctly diagnosed Mikey with Pearson Syndrome. That when they found out he is missing 83% of his mitochondria DNA. There is no cure!! Melissa said her old surgeon said she should "take him home and make him comfortable b/c he is not going to live long". Melissa refused and begged to have a feeding tube put in Mikey. Once Mikey was strong enough, they had the risky surgery, and through a lot of prayer, the surgery went well.

  • 12 Oct 2014
    Mikey Clark passed away this afternoon to be with his little brother Joshua, after fighting his illness for a long time. He was one of the kindest, loving, and special kids I have ever come across. Please pray for his mother (Melissa) and his older sister Mariah. Mikey was born with a terminal illness, and doctors told his mom he would not live past 6 months. He not only lived for more than 6 years, but affected everyone he came in contact with. Melissa is an amazing mother to Mikey, and her love and caring for Mikey was second to none. Please pray for her, for peace and pray she can remember a lifetime of good memories with her son.
  • 10 Oct 2014
    Mikey has fallen into a deep coma. Doctors did an EEG, and he has only limited brain activity. Doctors are not sure what to do. Pray that Mikey will come out of his coma, and his brain activity will increase today! Also pray for Melissa and the doctors as to what next step to take.
  • 09 Oct 2014
    Mikey's mom texted me this morning. Mikey is in critical condition, and his oxygen levels are really low. The doctors are doing an EEG to see how his Brian waves are functioning. He is still on the life support to help him breath. Please pray that God will put his hand on Mikey, and heal his body. Pray he is not in any pain or discomfort as well. Also,pray for peace for Melissa his mom, who is really scared.
  • 06 Oct 2014
    I spoke with Mikey's mom today, and she told me Mikey had to be put back on life support. They had to intubate him because he was not breathing well on his own. Please pray that Mikey's lungs will get stronger, and he can quickly come off the intubator. They do not want him to be intubated for too long, because his lungs can stop working. Doctors are only giving him a 50/50 chance to come out of this, so please pray for Mikey, and his mom Melissa, who is really scared she will lose another son.
  • 30 Sep 2014
    I spoke with Mikey's mom last night. He was in a coma last night, and breathing by life support. As of this morning, he was breathing on his own, but has not woken up. Please continue to pray for Mikey, that he responds to the treatment, and he wakes up. Also pray his lungs and body gains strength so he can fight off this attack.
  • 28 Sep 2014
    Mikey is in the hospital because of continued problems with his health. He has had problems controlling his electrolytes and sugar levels. He has had less energy and is loosing some of his vision. Please pray that the doctors can figure out the best way to treat him. Pray that Mikey's body gets stronger and more stable. Also pray for Melissa (mom) for peace, who is still grieving over the loss of her son, Joshua.
  • 11 Aug 2014
    Mikey has been doing pretty good overall, but is still having a hard time with his kidneys not working correctly. Mikey also has a new baby brother, Joshua. Please pray that Mikey still feels good, and that his organs will start to work better. Also, pray for Melissa (mom) for blessing and peace as she now has to care for a newborn and a child with a terminal illness.
  • 16 July 2014
    Melissa (Mikey's mom) had a baby boy named Joshua. He is 6 lbs. 14 oz, and everything looks good. His mom was concerned because Mikey was only born with 83% of his DNA and has Pierson's Syndrome, which is a terminal illness. Thank you for all the prayers!! Please continue to pray that everything is fine with Joshua, and pray for healing for Melissa, as she has to care for baby Joshua, and Mikey, who is still in the hospital. Melissa was able to see Mikey yesterday, and his Potassium levels are down which is good. Pray they can all heal up soon, and go home.
  • 11 July 2014
    Mikey had to be admitted into the Yale PICU because his lips turned blue. They found out his kidneys were failing, and his potassium levels were only at 9. His condition has improved a little, but his mom is asking for more prayers. His body is too weak for dialysis. Please pray that Mikey's kidneys start working better, and that his levels of potassium stabilize. Also pray he can come out of the hospital soon. Also, please pray for him mom, Melissa, who is due this month with Mikey's brother. Pray that the baby is healthy, and has no health issues. Also pray the delivery goes smooth and the baby is fine.
  • 12-May 2014
    Mikey has been in and out of the hospital, because his tremors have increased. Doctors are not exactly sure why he is shaking so much. Please pray that Mikey's shaking will slow down, and that his body gains strength. Pray that the doctors can figure out how to best treat him.
  • 18-Apr 2014
    Mikey has been in and out of the hospital a lot lately. He was discharged, but this week, began coughing up blood. The doctors are not sure why. Please pray that the doctors can figure out what is causing the bleeding, and that it is easily treatable. Please pray for Mikey's overall health, and that his body will get stronger to fight off any illness or side effects from his condition.
  • 28-Feb 2014
    Mikey was going in for a procedure because he had some kind of blockage in his intestine. Pray the surgery went well, and that it was nothing serious. Pray he heals quickly.
  • 24-Feb 2014
    Pray for Mikey. He has been in the hospital over a month and has not been able to fight off his illnesses. The doctors are now concerned about his digestion. He has had diarrhea for the last 2 weeks, and they now have to do surgery and a biopsy on his Intestine. Please pray that there is nothing serious, and that they can heal his digestive tract. Pray Mikey gets strong enough to fight off his illness on his own, and that he can go home soon.
  • 10-Feb 2014
    Mikey has been in the hospital for a few weeks. His condition goes downhill everytime they take him off the meds. The doctors have mentioned, his condition might not get better. Mikey suffers from a terminal illness, and his mom was told by the docotrs he would not live past 6 months. Pray that Mikey's conditon improves, and that his body gets stronger, and can remain strong without the meds. Pray Mikey continues to prove the doctors wrong, and that he will make a complete recovery.
  • 30-Jan 2014
    Mikey is still in the hospital so he can receive medication through an IV. Mikey has Pearson's syndrome, and was born with only 83% of his chromosomes. His condition can quick get worse, because of a weaker immune system. His mom said his counts are getting better, and that he is out of the PICU. His counts have gone down when they ween him off the steroids. Please pray that his body will get stronger, and his count will stay up without medication. Pray that his breathing and overall condition improve, and that he can go home soon. Also pray for his mom as she looks for a new place to live.
  • 16-Apr 2013
    He has to take increased amounts of steroids, because his body does not produce enough. His kidney's were operating at or below 50% for more than a 2 years. We sent out a prayer request last week that his kidney's would start working better.

    Mikey went to Yale Nh Hospital on Friday to have his levels tested, and his one liver can back over 50% and the other was 75% for the first time in years. Melissa, Mikey's mom, said she broke down in tears. The doctors call it a miracle, and have no idea how this happened. Melissa asked that we keep the prayers coming, and please pray for Zachi, and all the kids on Charlotte's Web of Prayer.
  • 28-Mar 2013
    Went to visit Mikey yesterday as well. He has not been feeling great for a couple months, but doing well overall. His mom said when he is sick they have to increase the steroids, because his body does not generate enough steroids. His Pierson's syndrome effects his organ functions, and his kidney's only operate a 50%. As long as they remain at that level he is ok. Pray that Mikey's body gets stronger, and that his kidneys function higher than 50%. Pray for mom and dad that they continue to stay close to God.
  • 3-Jan 2013
    Mikey has been feeling a little sick since the weather has become cold. He has not had the energy lately, and is having a hard time fighting of sickness and infections in his ear. Pray that his immune system gets stronger so he can fight off the sickness.
  • 31-Jan 2012
    Also pray for Mikey and his family. They are moving back to Connecticut, and will be driving up from Florida this week. Pray for safe traveling mercies, and a smooth adjustment to living in CT.
  • 8-Sep 2011
    Mikey is having some digestion issues right now and he's on new meds to help his pancreas. His calcium level and his carbon dioxide is low too. Please pray for Mikey that health improves, and that the new meds help his pancreas. Also pray that his calcium and carbon dioxide levels will elevate to normal levels.
  • 25-Feb 2011
    Mikey and his family just left on a journey to move to Florida. Part of the reason for the move, is to get out of this miserable cold, so they can worry less about Mikey getting sick. The Lord has been one step ahead of them through this decision to move. They found a great doctor, who has dealt with a lot of children with Pierson's syndrome (Mikey's condition), just 30 minutes from their home. They have a place to stay, and family that can help care for Mikey. Just pray that they make it down there safely, and that Mikey has no problems. Also pray for his sisters, as they are dealing with moving, and having to leave some of their friends and family.
  • 9-Oct 2010
    Mikey was admitted into hospital a few days ago, because he had trouble with his breathing. His condition improved enough to be able to go home yesterday. Mom says,"Thank you to all for your continued prayers"
  • 22-July 2010
    Mikey and his family just came back from Orlando, Florida after a week down there. Make a Wish Foundation flew the family down and gave them a much needed week of fun and relaxation. Mikey celebrated his 3rd Birthday and continues to gain weight. Keep praying that he remains healthy and continues to get stronger everyday.
  • 15-May 2010
    Mikey was brought back into the hospital a week ago because he turned gray and his lips turned blue. He is still in the hospital but doing a lot better.
  • 4-May 2010
    Mikey is doing good. He has gained a lot of weight and his energy levels are good. Please be praying for the family as they are looking for a new place to live. They have also been contacted by Make a Wish, and Mikey and his sisters may be going to Disney. Please pray they are accepted, as they are so deserving and in need of some blessings.
  • 30-Mar 2010
    Mikey is still in the hospital dealing with the infection in his broviak line. Yesterday they put in a new PIC line for feeding in order to try and clear up the infection in his broviak line. He has gained a little weight, but his parents are concerned because his blood work has been bad(low potassium,calcium, sodium...), and he is at risk of a stroke. Please pray the infections clear up finally, and his blood labs improve. Also keep praying that Mikey continues to gain weight.
  • 19-Mar 2010
    Michael was released on Sun around 3pm from his admission that started the Monday before he was here for failure to thrive due to RSV. It caused him to lose weight very rapidly and caused his bowels,and other organs to shift which caused his intestine to become pinched and a little twisted making it so he couldn't digest his food maybe a tiny bit was passing through which is very dangerous so we got to the bottom of that and figured out a treatment plan which includes him on continuous feeds through is G-Tube for life with a four hour break after every 20 hours. During his stay he must have gotten some bacteria in his broviac b/c when we went home Sunday. We were only there around 14 or 15 hours before he was rushed in for shaking and breathing funny. He had to be hooked up to a machine to breathe for him which freaked me out but after 10 hours he was back to breathing on his own...Thank God!
  • 11-Mar 2010
    Mikey was admitted back into the hospital because he continues to lose weight. The doctors agreed it was a good idea to see if they can put some weight back on him. Pray that he is able to gain weight and that he remains healthy. Also pray for his mother as she is going through a rough patch emotionally. Also pray that Mikey's dad finds work to help their financial situation. Pray for emotional strength for Melissa and her fiancee Anthony as they go through this. Also pray for blessings for their other 3 children, as they struggle to understand and deal with the situation. Pray they are excepting of the fact that Mikey needs special attention. Continue to pray that Mikey's body will be strengthened. That his organs and his bone marrow will start to function better, and that the medication will absorb better into his body. Please pray that his infections will clear up. Pray that his body grows stronger everyday, so that if he requires surgery, he will be fine through it. Also pray for the doctors and nurses, that they correctly diagnose and treat Mikey, and that his health will improve. Also a special prayer request for Melissa(mom) and Anthony(dad). Pray for their continued emotional strength through this time in the hospital. Melissa said Mikey kept crying and asking to go home. It is so hard to see your child suffer. God turned away from Jesus as he was dying on the cross. So pray that they can handle whatever the day throws at them, and pray that God shows his mercy and grace to Mikey, Melissa, and Anthony.
  • Feb 2010
    Mikey's blood work is off, and he has been suffering a lot of nose bleeds. He went to Yale today, and they are worried about him because he is losing more weight. Mikey was admitted into the PICU on Friday(11/13) with a bacterial infection(Graham Negative Rod) in his Broviak Line (line used to give transfusions and to draw blood). His temperature was 105 degrees, and his heart rate was near 200. He has since been stabilized and is out or the ICU. He may have to have surgery do replace the line so he can receive transfusions, or even a port. He will probably need to be in the hospital for 2-3 weeks, and may require the surgery. Mikey has been home since May with NO inpatient hospitalizations. Please pray that his appetite returns, and he starts to gain the weight back. Also, please pray for his father Anthony as he looks for a job to help the family with their finances.
Aniylah Cox - 3 years old - shunt in her head, inter colitus...
20-Oct 2014:  I met Portia, Aniylah's mom at Yale last week. Her 3 year old daughter has been in the hospital for a few weeks with a number of issues. Aniylah was born almost 4 months premature. She had to have a new shunt put in her head, to get rid of the fluid in her brain and to control the bleeding. They have also been treating her Intercolitus, which means she was only born with 10% of her intestines. Please pray that the doctors can treat her, and that her overall condition improves. Pray that the new shunt will get rid of the fluid, and that they can go home soon. Also pray for wisdom for the doctors how to best treat her.
  • 16-Jan 2017
    Please let's pray for Aniylah, she had a seizure over the weekend.
  • 12-Apr 2016
    Aniylah had a bunch of seizures yesterday, and had to be rushed to the hospital. Please pray that the doctors can get the seizures under control, and that she has no brain damage or side effects. Pray for a speedy recovery, and for peace for the family.
  • 24-Dec 2015
    Aniyah had her surgery to replace a shunt near her brain. The shunt is used to get rid of the fluid around her brain. The surgery went well, but her mom noticed her neck was swollen. They were planning to release her from the hospital, but her mom wanted a MRI. Please pray that the swelling goes down, and that the shunt is functioning properly. Pray Aniylah will recover quickly, and she will have a great Christmas with her brother Derek.
  • 21-Dec 2015
    Aniylah is going into surgery today to replace the shunt in her brain. She had to be rushed to the hospital last week, because the shunt malfunctioned, causing her heart rate to drop below 30. The doctors need to replace the shunt, so they can get all the excess fluid forming around her brain to drain out. Please pray that the surgery goes better than expected, and that the doctors will find a good place to put the shunt. Pray it will take all the fluid out of her brain, and there is no long term brain damage. Also pray Aniylah does not suffer anymore seizures, and that she can go home ASAP. The family will have to be in the hospital through Christmas, because she has to be there to drain all the fluids out and monitor her.
  • 16-Dec 2015
    Aniylah just had to be rushed to the hospital. She had a shunt malfunction, and her heart rate is in the 30's. She also has a lot of fluid in her brain. Please pray that the doctors can stabilizer her, and they can fix the problem with her shunt. Pray the fluid around her brain clears up, and there is no long term damage.
  • 15-Dec 2015
    Aniylah was not doing well a couple of weeks ago. She was getting really sick, and suffered a couple of seizures. Please pray that Aniylah's seizures go away completely, and that she will remain healthy.
  • 30-Oct 2015
    Aniylah had surgery 1 week ago to clear out an infection and some fluid near a shunt in her stomach. She was doing ok, but recently has not been doing well. She suffered from a couple seizures, and has not been eating much. She has been really irritated, and her mom may bring her into the hospital today. Please pray that whatever is going on with Aniylah, can be easily treated, and that her condition will improve today. Pray there is no new fluid or infections, and the doctors can easily diagnose and treat the problem.
  • 26-Oct 2015
    Aniylah had to be rushed to the hospital last night, and may require surgery. She has a shunt in her stomach, that had fluid all around it. Doctors think she may have an infection in her stomach. Aniylah's condition sometimes can get bad quickly, because of some of her health issues. Please pray that the doctors can diagnose and treat the problem without having to do surgery. Pray that the fluid goes away, and that her infection clears up.
  • 22-Oct 2015
    Aniylah had to be rushed to the hospital last night, and may require surgery. She has a shunt in her stomach, that had fluid all around it. Doctors think she may have an infection in her stomach. Aniylah's condition sometimes can get bad quickly, because of some of her health issues. Please pray that the doctors can diagnose and treat the problem without having to do surgery. Pray that the fluid goes away, and that her infection clears up.
  • 27-Aug 2015
    Aniylah had to be admitted into the hospital last night. She has been vomiting continuously and suffering from multiple seizures. Please pray that Aniylah's nausea goes away, and the seizures stop. Pray the doctors can figure out what is causing her problems, and that it is easily treatable. Pray for healing for Aniylah, and that she can go home soon.
  • 24-Aug 2015
    Aniylah's mom told me last week that Aniylah has suffered around 10 seizures lately. They are not sure what is causing them. Please pray that the seizures go away, and that Aniylah's body gets stronger.
  • 4-Apr 2015
    I do not know much, but heard Aniylah has to be rushed to the hospital, because she suffered multiple seizures. Pray the seizures will stop, and she can go home soon.
  • 7-Feb 2015
    Aniylah was finally able to get out of the hospital. Her lungs were not doing good, and she has been in the hospital for over a week. Pray that her oxygen levels continue to improve, and that her body will get stronger. Also pray for the family, as they have to find a new home by March 1st.
  • 18-Jan 2015
    Aniylah has been in the Yale ICU for a few days due to trouble breathing. Her oxygen levels are only at 80%, and the doctors are trying to ween her off the machines assisting her. The doctors said her lungs are worse than they thought. She still requires 24 hour care, but they hope to be able to leave the hospital soon. Please pray that her condition improves, and that her oxygen levels go up. Pray she can breath on her own, and go home soon.
  • 26-Nov 2014
    Aniylah was discharged from special care at the hospital, and is home now. Her leg is healing well, but she has had a cold. Aniylah's mom asked that we continue to pray for Aniylah, that her sickness clears up, and that she remains healthy this winter. If she gets sick, her condition can go south quickly, so keep her in prayer. Also, pray for continued healing.
Danielle - 10 years old
22-Oct 2012:  Danielle does not have a brain tumor!! Love to hear the good news. Not sure if the doctor has been able to diagnose what is causing problem with the vision...

15-Oct 2012:  Danielle, ten, has been having an ongoing vision problem for a while. Eyeglasses do not help. She has seen several eye specialists and her retina, macula and optic nerve look healthy to all of them. Danielle is having an MRI on Tuesday morning at 7AM. Thank you for praying. Pray that the MRI tomorrow helps to clarify the situation. Pray there is no tumors or other serious medical issues causing the problem. Pray that the doctors will find out the problem, and that is is treatable.
Lexi Degroat
Lexi is going back into Yale NH Hospital for her 2nd Treatment for Leukemia. 2nd treatment lasts 57 days and is the Heaviest of all the treatments. Pray that God will strengthen Lexi’s body for this next treatment and protect her organs and blood from becoming too weak. Pray that the chemo will get rid of the bad cells and protect the good ones. Also pray for emotional strength for Lexi’s Father (Kyle) and Mother, so they can be there for her through this difficult time.

Jan 2010:  Lexi is past 50 days of chemo and doing good. She is taking chemo orally every day, and has to go for the "Heavy Treatment" in the hospital once a week. They will continue with the oral chemo for the next 2 years. Her father said there is no more Leukemia Cells in her bone marrow, and only a small amount in her blood. Mom and dad had to shave her hair off because it was falling out, but they are encouraged by how she is doing, and her energy level.
Owen Dennis
Owen Dennis

Owen Dennis was born over the weekend at around 24 weeks of Amanda's pregnancy. They performed an emergency c-section. Owen was born just under 1 pound and 10 inches long. Please lift Owen up in prayer over the next critical 24-48 hours. Also pray for Amanda (mom) as she recovers from her surgery. Also pray for Kevin, it has been and will continue to be a trying time for him as he stays with his wife and son.

Thanks in advance to all you prayer warriors out there who read this and received the email. I will keep you updated as I find out more.

The prayer is that his kidneys begin to function normally. Kevin and Amanda are doing ok though this is a roller coaster ride for them. Kevin said as long as the good days out number the bad days they are ok. Let's continue to pray that the good days out number the bad days!


  • 20-Sep 2010
    I spoke with Owen's mother today. Owen went Home on Friday!! He is 8 1/2 months old and almost 14 lbs. When he was born all of 14 oz. and 11 inches long, the doctors said he had a 5% chance of surviving. Owen is living with his mother and her parents in Pennsylvania, because he still requires a lot of attention. They just finished the 24 hours nursing care period, and now Amanda and her parents take over the majority of the care. It's a funny thing, because you just want to take your kid home. But when you leave the hospital, you leave the security of having doctors 10 feet away, and monitors to telling you your kids vitals. It creates a whole new type of stress. So please lift up Owen, Amanda and her parents as they make this big transition, and take over the primary care of Owen. This weekend, after packing a lot of stuff(ventilator, g-tube(feeding)...and with an escort from their nurse, Owen was able to visit the River by their house. Amanda said Owen was smiling, looking everywhere, and listening to all the sounds. She said Owen is a very happy baby, smiling all the time. He is doing amazing with his feedings, even eating a lot of rice, and requiring the feeding tube less and less.
  • 22-Jul 2010
    Owen is now 10 lbs!! He was less than 1 lb. at birth. He is still at the 7th floor at Yale and getting big. Pray for mom and dad as they now know Owen has to be in the hospital for maybe another year. It is really a hard reality when they had hoped he could have come home after 4-6 months.
  • 4-Jun 2010
    Owen continues to heal well from his surgery. He has moved to his room on the 7th floor where he will stay for the next few months. Kevin and Amanda will begin training to care for the trach site as early as next week.
  • 24-May 2010
    Just received a text from Owen's dad. He is getting ready to go into surgery. They just stuck an IV in his head to perform the surgery. Kevin (dad) said he may have to be under anesthesia for a few days because the pain is so bad. He has the tracheotomy, and maybe the hernia surgery all today.

    Owen's tracheotomy and hernia surgery went well today!! The doctors will keep him sedated for a few days to ensure he doesn't damage the trach site. Within a week or two, depending on how well he heals, they will move him to his room on the 7th floor. Once on the 7th floor Kevin and Amanda will begin to learn how to care for the trach. Let's continue to pray that they will be able to take him home in a few months. Please pray the surgeries go better than expected, and that Owen does not experience much pain at all. Also, please lift Kevin and Amanda up in prayer for this important day. Also be praying for them, because after the surgery, they will be responsible for the primary care of Owen (clean and replace the trace, feeding...). They expect Owen is the hospital for another 12-18 months if all goes well.

    I know it is tough on them facing this reality, Kevin said to me," My son is not going to see the world until he is almost 2 yrs. old", so please keep them in your prayers.
  • 15-May 2010
    Amanda and Kevin have big meeting Monday to try and schedule Owen's Tracheotomy at the same time as his hernia surgery. Hoping to do at same time so he does not have to be sedated twice.
  • 9-May 2010
    Owen had a major setback today. His right lung collapsed which caused respiratory complications. The doctors had no other option but to put him back on the ventilator. Kevin and Amanda are meeting with the doctors on Monday to discuss options. They may have no choice but to perform a tracheotomy. As you can imagine Kevin and Amanda are very discouraged. All we can do right now is pray!
  • 7-May 2010
    Owen was taken off the ventilator and is doing good. It is extremely important that he can breath on his own, and that his lungs remain clear. If he has problems, they will not put him back on the ventilator, they would have to give him a tracheotomy. This would mean a minimum of 6 more months in the hospital. Keep praying for our miracle baby. FYI, he is over 5 lbs now. Not bad for a kid who weighed less than 1 lb. at birth.
  • 4-May 2010
    Owen is 5 lbs.! They are going to try and get him off the ventilator. If his lungs do not respond well, they may have to give him a retaliatory. This would mean Owen would have to stay in the hospital for a lot longer. Also please lift up Amanda (mom) and Kevin (dad). Pray that God strengthens their relationship through these trials, as this has been a very stressful time. Pray everything goes well, and that the levels in his lungs are good, and he is able to breath on his own.
  • 30-Mar 2010
    On Saturday Owen's parents called our pastor for prayer because they were concerned. He was turning pale, and his white blood cell count was off. They were concerned he might have to have another spinal tap. Spoke briefly with his dad today, and they had moved Owen into isolation. He said his color had improved, but he was not sure why they had him in isolation. Please be praying that his blood levels, and color return to normal, and that his condition improves. Also pray that the doctors have the wisdom to best diagnose and treat the problem correctly. Also please pray that a spinal tap or any other procedure is NOT necessary because his condition improves.
  • 22-Mar 2010
    Owen was taken off the ventilator on Friday morning and continues to do well. He is just a few ounces away from 3lbs!! A few months ago when he was born at 14oz the doctors gave him a 5% chance of living. He continues to beat the odds!
  • 19-Mar 2010
    Owen has a big week. Owen continues to do well. He is a 2lbs 13oz. They have started medication that will allow them to lower the oxygen on his ventilator in hopes to remove him from it by Friday. It is imperative that he stays off the ventilator this time once they take him off. They worry about cerebral palsy. Pray that his lungs are strong enough to breath on their own, and he does not need to go back on the ventilator.
  • 11-Mar 2010
    Owen is breathing much better; the doctors have corrected his breathing by moving the ventilator tube a 1/2 cm. His weight is 2lbs 6oz. But the doctors will wait to remove him from the ventilator until he is just over 3 lbs to give him every opportunity to not go back on it. It is imperative that the next time they remove it that he stay off. But he is alert and active; he even pulled out his feeding tube to suck his fingers.
  • 16-Feb 2010
    Owen experienced a set back today. They had removed him from the ventilator but he stopped breathing so had to be put back on. The doctors have diagnosed him with a pulmonary disorder and fear he has suffered some brain damage. The extent will not be fully known until he gets older and begins to develop cognitive skills. Pray that they will be able to treat these pulmonary issues and the severity of the damage to his brain is minimal. Also pray for Kevin and Amanda as they continue in the ups and downs of this experience.
  • Feb 2010
    He is doing well and responding to steroids and the antibiotics. Just the other day he was able to breath on his own for about an hour and a half and then got tired and had to be put back on the respirator. This is a very positive step! They will start feeding him again next week and see how he does. Lets keep praying, this is a up and down experience for the family.
  • Jan 2010
    Owen went into Kidney failure. The doctors, through medication, jumped started his kidneys but now they are working too much and he can’t retain water.
Charlotte DePaolo
Charlotte DePaolo

Charlotte suffered a stroke the week before her 3rd birthday. Fell to the ground and was inconsolable. After fall stopped walking on her left leg. Sue and I initially thought she broke her leg b/c she was so upset. After finding nothing on X-ray, MRI, specialist(7-10 days) Char became lethargic and sick. She was waking up kicking her good legs clearly in pain. Sue took Charlotte to the emergency room at Yale NH Hospital. She can in highly anemic with Blood Level of 3.6 (14 is normal for a 3 yr old). The initial diagnosis was Leukemia, then Hemoblastoma(another form of cancer). Around day 4 in the hospital finally after discovering blood clots in her lungs and brain. We found out the clots in her brain caused her to have a severe stroke, and that's why she was so shaken when she fell. The brain damage caused her leg not to perform properly.

  • 19-Feb 2017
    We are in the ambulance headed to Yale. Char had a small seizure, but we gave her anti-seizure that seems to be working. Pray they can stop the seizures and that no new ones start.
    UPDATE:
    Char was released from the hospital. Doing good but sleepy. She had a small seizure, but she was able to be released.
  • 28-Mar 2016
    Char is doing really good all things considered. We believe she had several Grand Mal seizures almost 2 weeks ago. She lost consciousness and was foaming at the mouth for over an hour. She remembers nothing from the night. She went back to school for a couple days last week. Her eyes are still very light sensitive and at times look a little out of focus, but overall she feels good. Please pray that Charlotte's new higher dose of anti-seizure meds, prevent any future seizures. Pray that she makes a full recovery and her eyes stop bothering her, and can go back to normal activities in her life.
  • 20-Mar 2016
    She is doing really good, and is acting normal. Her eyes are still really sensitive to light, but overall she has recovered great. Continue to pray that the new higher dose will prevent any future seizures, and that she will be able to do all her normal activities, with no seizures.
  • 17-Mar 2016
    PM:  Charlotte is doing much better and was able to come home this afternoon. It has been 5 years since Char's last seizure, so it came as a surprise to us all. She suffered a complex seizure, somewhere around 5 seizures at around 10-11 pm last night. Her seizures lasted over an hour, including the ambulance ride to the hospital. It took several doses of anti seizure meds to stop them. Amazingly she is doing great right now. She is like her old self. She still is a little woozy, but she is talking and wants to go outside and play. The seizure came from the same brain damaged area from her stroke, as the last one. Her neurologist thinks she may need a higher dose of anti seizure meds, because she has grown so much. There was no sign of a stroke. Please pray that Charlotte will no longer have anymore seizures, and that the new sized dose will prevent them. Pray she will recover fully, and that there are no long term side effects. Thanks again for all the prayers. Keep them coming.

    AM:  Char woke up last night and started to have seizures. She had to be taken by ambulance to Yale HN Hospital. She suffered 5+ seizures, for more than an hour straight, and was non responsive. After several doses of anti seizure meds, she stopped seizing. They did several tests last night, and so far no signs of any strokes. Please pray that the tests will find out what caused the seizures, and pray that there is no brain damage. Pray she has no long term side effects, and she makes a full, quick recovery. She is up this morning and is talking with mom and dad. She does not remember anything from last night, but is doing well this morning.
  • 16-Mar 2016
    Please pray for Charlotte DePaolo- Chris and Sue are headed to Yale New Haven Hospital with Charlotte she is having seizures. Please Father god watch over Charlotte and give her family much needed strength may you guide the doctors to help keep her safe and give them answers.
  • 03-Aug 2015
    Char had her 6 month check up, and her blood levels are fine. She goes into 3rd grade this year, and is doing great!
  • 20-Oct 2014
    Charlotte has been doing really well. She went to the neurologist last week to to test her Kepra levels (Seizure meds). They did an EEG and some light tests. We were hoping to get her off the meds all together, but the tests showed a Spike during part of the test. Not a big deal, because it is common, but they cannot take her off the meds, until she shows no more spikes. The doctor said if we took her off the Kepra, there is a 95% chance she could have another seizures. The good news is she does not mind the meds, and Kepra has few side effects long term. The one side effect is the kids become more aggressive. Sue and I had a good laugh at that, for all of you that know Charlotte, she is about as aggressive as a house plant. Please pray that her does not have anymore seizures, and that the meds do not have any long term effects on her.
  • 22-Aug 2014
    Happy Birthday Charlotte. She turned 8 this week, and is 5 years removed from her stroke. She goes into 2nd grade this year, with NO limitations at school.
  • 16-Apr 2014
    My Charlotte, who has been doing great, was just removed from the Category at school, that informed the teachers/gym class about certain limitations with her leg. She continues to fall a lot, but gets right back up, and does not want any help. What an amazing thing to see first hand this kid's improvement over the last 4 years. We have God and all your prayers to thank for her development.
  • 1-Feb 2013
    Charlotte's iron levels are fine. She went from a 1 to a 44, so it was probably a misread on the test. She recently caught a bad krupe type cough and is now spiking a fever. Please pray the fever goes down and the cough it is not too severe.
  • 30-Jan 2013
    Charlotte had tests done over a week ago. Her Hemoglobin level was fine, but she had a really low Iron reading. The doctor has her back in today to retest the iron level. Pray that her iron levels are fine in this test, and that the blood work goes smoothly. Pray there is no serious iron deficiency, and that if there is anything, it is something easily treatable. They are also testing her Kepra levels for her anti-seizure meds.
  • 1-Nov 2010
    We went to Yale for Charlotte's blood work last week (levels are good PTL).
  • 22-July 2010
    Char is doing great. Had blood work done and her hemoglobin levels were over 13(average for her age) for the first time since her stroke. Still taking her meds like a Champ. She still has some brain damage that is still causing her leg to not function at 100%, but her progress has been nothing short of a miracle. The 1 year anniversary of her stroke is next week. What a difference a year makes!!!
  • 30-Mar 2010
    Charlotte has been off the blood thinner for 2 weeks and so far so good. She is like a new kid. She is speaking more and seems to have a lot more energy. Just continue to pray that her blood remains stable and no new clots form.
  • 19-March 2010
    Charlotte had a CT Scan done on her chest Monday to see if her lungs were clear of blood clots. As of Monday night Char is off the blood thinner!!!! No more shots to her stomach 2 times a day, at least for now. Keep praying her blood will remain stable, and no new clots will form. The CT scan found she has a pneumonia, but were going to focus on the good news (on antibiotics till friday).
  • 11-March 2010
    Charlotte is doing well. She has a fever and cough, but she really bounced back from the seizure. She is on anti-seizure medicine for the near future.

    We have a BIG DAY this Monday. She has a CT scan on her chest to see if her lungs are still clear from the clots. If they look good, and her blood work is ok, she may be able to come off the blood thinner. She has been receiving shots to her stomach 2 times a day for the last 6 1/2 months, and she still is not used to it (either are we). Just pray that if/when she does come off the thinner, that her blood does not begin to clot again, and we can get back to some form of "normal" day to day life.
  • Feb 2010
    Charlotte went to hospital for her monthly blood work. In 1 month she will have a cat scan done on her head and blood work to see if she is ready to come off the blood thinner (6 months). We will not know until after the tests are done, but we are hopeful she will be able to stop the shots. Please be praying that if/when she comes off the blood thinner, that her blood levels remain stable. Also pray she gets the nutrients she needs to keep her healthy and safe.
  • Dec 2009
    In November we brought Charlotte to Boston's Children's Hospital because they have a Stroke Clinic, and we wanted to learn more about Charlotte's condition. The doctors at Boston were anxious to see Charlotte because of how rare her stroke really was. We found that what happened to her was over a 1 and 100,000 event. She actually had strokes on both sides of her brain, along with the pulmonary embolisms(lung clots). Both doctors at Yale and Boston agreed there was probably something additional to the diagnosis of Hyperhomocystenemia that caused such a severe attack.

    The doctors at Boston believed it pointed to a condition called Protein S and/or Protein C deficiency. They did a lot of Blood Tests, and in early December we received the results. The results for all the disorders came back negative. We are relieved in one sense because Protein S deficiency would cause Charlotte to be on Blood thinner for the rest of her life, and can cause complications to ones health. On the other hand we still are not sure what we are dealing with, if it can occur again, and how best to treat her.

    As for today, she is doing amazing. She is walking better, the blood thinner has stabilized her blood. She is still not used to the shot she has to take twice day, and it does cause some serious bruising to her stomach, but over all she is great. Please pray that we will someday come up with a diagnosis that is not life threatening but is treatable. Pray that God continues to use this little girl as a vessel to help families with sick and or terminally ill children spiritually, emotionally, and financially. Pray that Charlotte's story will help lead people to the Lord and pray God will always protect and keep her safe.

    Charlotte is doing amazing. Even though she drags her foot, she is walking 4 months ahead of what the therapist and doctors had expected (6 months). She was accepted in Darcey School, in which her classroom is designed for special needs children, and she loves it. We see the results of all the prayers everyday in the progress and spirit Charlotte has.

    Please pray that Charlotte's leg continues to improve, and that she can on day walk and run like normal. Also please pray that the 2 shots a day to her stomach of blood thinner continue stabilize her blood, and the bruising does not cause excessive bleeding. Also continue to pray that the bloods in her lungs and brain continue to dissolve and that no new ones form. We can also be praying for Nov. 19th, as she has a consult visit to Boston's Children's Hospital. They have an entire pediatric ward for children who have suffered strokes.
Jacob DeRienzo - 8 years old
5-June 2013:  He is a 3rd grade student at Frisbee School in Wolcott. In 2005 he fought and won a courageous battle with Leukemia, and for seven years has remained in remission. In March, doctors at CCMC confirmed that the Leukemia has returned. Since March he has received aggressive treatment and is once again in remission, however will need to proceed with treatment for the next 2.5 years. I called Frisbee School today and left a message with the school Psychologist. Her name is Rosa Romalette. I have not yet heard back from her.
Evan - 2 years old - 3 Open Heart Surgeries
12-March 2014:  While at Boston's Children's hospital we met the mother of a 2 year old boy named Evan. He has had 3 open heart surgeries since his birth. The mother said they were flown in from Texas, and that he was not doing well when he arrived. He had surgery last Monday, and since then, he has been doing great. His mom called the surgery day Miracle Monday.
Alexis Elizabeth Fisher - 5 months old
Alexis Elizabeth Fisher13-Jan 2014:  She is the granddaughter of my friend in the industry. Alexis was born with a couple of large holes in her heart, that will require open heart surgery. She is going to have the surgery done soon at CHOP (Children's Hospital of Pennsylvania). They need to have surgery so that not too much blood goes into her lungs, which could cause cardiac arrest. Please pray for Alexis, that her health wil be fine leading up to the surgery. Pray that the surgery goes better than expected, and that she recovers quickly. Also pray for her mom, Anne and dad as they are concerned for their new baby girl.
  • 02-May 2014
    It has been 2 months since Alexis had open heart surgery to repair holes in her heart. I spoke with her grandmother, and she is doing amazing. "She has made a 100% turnaround, she is gaining weight, breathing right...You would not know she had surgery, if you did not see the scar on her chest." The family is so grateful for all the prayers.
  • 12-Mar 2014
    Alexis continues to heal quickly, and she is scheduled to be released from Phily Children's Hospital tomorrow. Please pray that Alexis' condition continues to improve, and her body gets stronger. Pray that this surgery completely and permanently fixes the problem, and that she has no complications once she is home. Pray for peace for her family as they care for Alexis.
  • 07-Mar 2014
    I have not heard back about Alexis, who had open heart surgery today to repair 2 holes in her heart. Please continue to pray that the surgery went well, and for a speedy recovery.
  • 05-Mar 2014
    Alexis is scheduled this Friday (March 7th) for her open heart surgery. Doctors want to do it ASAP, so Friday is the day. Pray they can repair the holes in her heart, and that the surgery goes better than expected. Pray Alexis makes a full recovery. Also, pray for her mom, dad, and grandmother, who obviously are very concerned.
  • 28-Feb 2014
    Here is a letter from Alexis' grandmother. Looks like they have to go ahead with the open heart surgery soon. I wanted to give you an update on my granddaughter. We went to CHOP today for a check up. Alexis has plateaued in her growth and is struggling to eat and breathe at the same time. They did another echo on her heart and found that the two holes have not closed any on their own as she grows. So therefor they have submitted paperwork to schedule open heart surgery. We should know in a couple weeks when the surgery is scheduled and I will let you know the day as we will need lots of prayers for a successful surgery. Please pray that Alexis will have successful Heart Surgery, and that she makes a full recovery. Give the doctors wisdom throughout to best treat Alexis's condition, and pray she remains safe before she has the surgery.
  • 30-Jan 2014
    I spoke with Alexis' grandmother, and she said Alexis is doing good. The doctors postponed the surgery for another month, which is a good thing. They want her to develop as much a possible before having to perform open heart surgery to repair the 2 large holes in her heart. Pray that her body continues to grow and develop. Pray that at the right time the doctors will do the surgery, and that it will be a great success. Pray God protects Alexis before she can have the surgery, and for the rest of her life after.
Caylee Fleming - 6 years old - Periventicular Leukomalacia
Caylee Fleming

My name is Justine and my daughter Caylee is 16 months old an was diagnosed with periventricular leukomalacia at 2 days old after suffering from a stroke in utero. She has been recently diagnosed with cerebral palsy, cortical visual impairment, tracheomalacia and has had 2 failed surgeries to stop a pneumonia that will not go away. She can not walk, talk or see. She has also had pneumonia 6 times, bronchitis 9 times, the swine flu and suffers from a seizure disorder. She has spent 10 months of her life at Yale. She is getting ready to have her 3rd and most serious surgery on May 10th.

  • 22-Nov 2016
    Great news from her mom:
    Today was a day of victory for Caylee. The school district agreed to pay for a personal nurse to go to and from school everyday with her. She will go to school all day receive all her occupational services. She will also now be getting services for the blind. Never stop fighting no matter what the odds are. Our children deserve to be treated equally and their voices need to be heard.
  • 24-Oct 2016
    Let's pray for Caylee -- that all the tests she had done last week will result in good news and they are able to help her.
  • 29-Sep 2016
    Doing as well as can be expected.
  • 16-Sep 2016
    ...hanging in and smiling away, lets pray she continues to do well!
  • 29-Aug 2016
    ...enjoying the sun. Please continue to pray for her and that she stays as healthy as she can.
  • 24-July 2016
    Caylee Is finally home after surgery. It was a very tough recovery and trying to manage pain. Please pray for a speedy recovery and that they are able to keep her pain in control.
  • 20-July 2016
    Caylee is at Yale having surgery. Let's pray for the surgery to go well and a speedy recovery. Pray for her and her family for strength and guidance through this difficult time.
  • 16-July 2016
    She will be having a procedure at Yale next week. Pray that the surgery goes well and for a speedy recovery.
  • 28-June 2016
    Caylee has not been doing great lately. She has been really sick, and has been suffering from a lot of seizures. Please pray that her seizures stop, and that she returns to good health. Pray for her parents, who just lost a close relative as well.
  • 23-May 2016
    Some good news on Caylee. She did not suffer a stroke, but actually a Grand Mal Seizure. That is the same kind Charlotte had 2 months ago. They are extremely scary, as the child is non responsive, foaming at the month, body flailing around...They thought it might have been a stroke, because her face is sagging a little, and she has a lot of affected area. She is home now, but her mom says she is really upset, and there is something wrong with her. Pray that Caylee will make a speedy recovery, and that the new higher dose of anti-seizure meds will get rid of the seizures. Pray for wisdom for the doctors on how to best treat her, and that she will get back to feeling normal.
  • 21-May 2016
    I just got word that Caylee is being rushed to the hospital. They believe she is having a stroke. Please pray that the doctors can stabilizer her, and that if it is a stroke, there is minimal damage. Pray for wisdom for the doctors, how to best treat her, and that whatever is causing the blockage, clears up but does not cause any further damage. I will update you once I hear something.
  • 1-Mar 2016
    Caylee's mom said she has lots of hip pain as well as a bad infection/ bed sore on her hip that they are unable to heal. Please pray that her hip will heal soon and she will no longer have pain/bed sore.
  • 19-Feb 2016
    Caylee went back into the ICU last week because of an incident at school. She threw up during a feeding and almost choked to death. She suffered a collapsed lung and now has aspiration pneumonia. Pray that her health will bounce back again, and that the pneumenia goes away. Pray she does not have any more problems with her feeding or with her breathing.
  • 10-Feb 2016
    Caylee was able to go home a couple of weeks ago. She was in really bad shape for a while, needing a ventilator to help her breathe. Please pray that she will remain healthy, and she will not have any more problems.
  • 14-Jan 2016
    Caylee has been in a non-medically induced coma for a couple days. On Tuesday night Caylee was not breathing well, and there was fluid forming in her chest. The doctors put a tube into her chest to remove some of the fluid. Yesterday she was more comfortable and breathing better. She had been opening her eyes on and off, and has been more responsive. Please continue to pray for healing for Caylee. Pray that the tube will get rif of all her fluid in her chest. Pray she can soon come off the ventilator, and that she will make a full recovery.
  • 26-Jan 2016
    Caylee was able to go home on Friday!! The family has been through a crazy few weeks. Caylee had to be rushed to the hospital a couple weeks back, because she stopped breathing. Her breathing was so bad they put her on a ventilator, and she went into a coma for a few days. She has a tube put into her chest to get rid of fluid. Doctors and her parents were really concerned if she was going to make it . Caylee is a tough kids, who has been through a lot. She began to recover more and more, and the doctors were able to take her off the ventilator.She finally was released from the hospital on Friday. Please pray that Caylee's lungs continue to gain strength, and her breathing will continue to improve. Pray she does not have any more health issues, and that she can get through winter with no more hospital visits.
  • 14-Jan 2016
    Caylee has been in a non-medically induced coma for a couple days. On Tuesday night Caylee was not breathing well, and there was fluid forming in her chest. The doctors put a tube into her chest to remove some of the fluid. Yesterday she was more comfortable and breathing better. She had been opening her eyes on and off, and has been more responsive. Please continue to pray for healing for Caylee. Pray that the tube will get rif of all her fluid in her chest. Pray she can soon come off the ventilator, and that she will make a full recovery.
  • 11-Jan 2016
    This is a letter from Caylee's mom. They had a really tough day, and were questioned by doctors as to why Caylee had some bruises on her. As you can read below, the Lord intervened to help diagnose her problem. Her mom and dad are great parents, and have spent their entire life taking great care for her.
    Today was very rough day. We found out that Caylee has Streptococcal Toxic Shock Syndrome. The survival rate is not good at all. Tomorrow she will have a blood transfusion, and will remain on the ventilator. Her body is shutting down.
    We met with a host of medical professionals today. They had accused us of poisoning her and blamed us for her bruising. They told us that we were not allowed to be alone with her. They claimed that caring for her was too much and we were looking for a way out. They said I was a liar and an abuser. I never felt so terrible. I was interrogated and harassed. I sat in that room and asked God to save me from the fire because I was innocent. I didn't know what I was doing wrong. Suddenly I had a moment of clarity. I thought of Stephen from the Bible and I looked up to heaven asking God for answers. Suddenly the word purpura came into my mind. I have never heard of this word in my life!! I went straight to google and researched the term. BAM!! When someone's body has a low platelet count they suffer a pooling of blood under the skin on points of pressure which cause severe bruising. We called a meeting and told them about what we had found. low and behold...she was diagnosed with purpura. They claimed a doctor must have alerted me to the condition. Nope, it was caring an amazing God not a doctor!! When we were getting off the bus a random man came to to us and said "God is with you , always". and he just walked away!!! Needless to say, we are praying that she will wake up and recover. Right now she is on no sedation medication because she is so sick and her body is so tired that she is in a coma. Her kidneys are shutting down and she has almost no pulse. We will not give up. Caylee is a fighter and has defied the odds on so many occasions. Its just a game of patience now.
    Please pray that Caylee's body will respond tonite, and her organs will start working better. Pray she will come out of her sedated state, and will come back to good health. Pray she can soon come off the ventilator. Pray for wisdom for the doctors on how to best treat her, and that the things they are giving her, will work. Pray for peace for her mom, dad, brother, and other family members. Caylee is a really tough kid, and has been in really bad shape before. Please pray she will recover completely, with no long term side effects.
  • 10-Jan 2016
    Caylee stopped breathing and had to be rushed to the hospital. Thing have gotten a lot worse, and she just had to be intubated. Please pray that the doctors can stabilize her, and she will be ok.
  • 03-Aug 2015
    Caylee went through a rough patch a few weeks back. She was suffering from seizures again, and she was having these scary Chocking bouts. The choking was happening during the night, mostly, but she turned blue at her daycare, and had to go home. Please pray that her choking stops, and the doctors can figure out the problem. Pray that the seizures do not come back, and that she can go back to school, which she loves.
  • 10-Jan 2016
    Caylee stopped breathing and had to be rushed to the hospital. Thing have gotten a lot worse, and she just had to be intubated. Please pray that the doctors can stabilize her, and she will be ok.
  • 03-Aug 2015
    Caylee went through a rough patch a few weeks back. She was suffering from seizures again, and she was having these scary Chocking bouts. The choking was happening during the night, mostly, but she turned blue at her daycare, and had to go home. Please pray that her choking stops, and the doctors can figure out the problem. Pray that the seizures do not come back, and that she can go back to school, which she loves.
  • 16-Dec 2015
    Caylee has been sick this week with a cold and bad cough. She is very medically fragile and small illnesses can become a big problem. Please pray that Caylees illness goes away soon, and she does not get any sicker.
  • 03-Aug 2015
    Caylee went through a rough patch a few weeks back. She was suffering from seizures again, and she was having these scary Chocking bouts. The choking was happening during the night, mostly, but she turned blue at her daycare, and had to go home. Please pray that her choking stops, and the doctors can figure out the problem. Pray that the seizures do not come back, and that she can go back to school, which she loves.
  • 20-Mar 2015
    Caylee has been doing really well. She has remained mostly healthy though out winter, and is going back to school and loving it.
  • 29-Jan 2015
    Please pray for Caylee. She had double hip surgery a month ago, and was doing well. Last night I found out she caught a bad infection in her leg. Her incisions broke open and became badly infected. Please pray that the surgeons can find the best way to treat her, and clean up the infection. Pray she heals up quickly, and she can get out of the cast.
  • 25-Jan 2015
    Last week Caylee was meeting with the Orthopedic surgeon. She has been healing well, and they were seeing if they could remove the body cast a little early. Pray Caylee continues to heal, and that her cast can be removed.
  • 8-Dec 2014
    Caylee has a full pelvis and hip replacement surgery this Wed. so please keep her in your prayers. They are doing both hips, and Caylee will be in surgery for 10+ hours. Pray the surgery goes better than expected, and that Caylee has no problems during the surgery or with the Anastesea.Pray for quick healing, as she will be in almost a full body cast for 4-6 months.
  • 26-Nov 2014
    Caylee is scheduled for major surgery on Dec. 10th, to reform her pelvis and hips. This is a 10 hour surgery, and Caylee did not do well with the anesthesia on her last surgery. They have to do surgery because her hips keep popping out of the socket, causing extreme pain. She is also suffering from a cold and cough, which would delay the surgery. Please pray that Caylee's sickness clears up, and that she can have the surgery on Dec. 10th. Also, pray that the surgery goes better than they could have imagined, and that she has no complications from the surgery or anesthesia. Also, pray for peace for Caylee and her family during recovery, as she will be in a full body cast for 4-6 months.
  • 30-Oct 2014
    Caylee has a date of Dec. 10th set for surgery to fix her hip. It is out of joint, and causes Caylee severe pain. Please pray that Cayleee remains healthy, and the surgery is a success, relieving the pain in her legs.
  • 20-Oct 2014
    I met with Caylee's parents, and her condition has improved over the last week. Her seizures have gone down, and she was able to go back to school. Administrators at the school are worried about her, because of the frequency of the seizures, but she is hanging in there. She now is only taking 2 anti-seizures meds, as apposed to the 15 she was taking a year ago. Please continue to pray that Caylee stays healthy, and that the seizures completely go away.
  • 10-Oct 2014
    Caylee is still not doing well, and has been suffering from crazy seizures. She has been in a postictal state for several days. Her parents have decided to care for her at home, and try to keep healthy as possible. There is not a whole lot the doctors can do to help her. Her parents ask for prayers for her. Caylee's health has been declining a lot over the last few months, and the parents are concerned for her. Please pray for healing for Caylee. Pray that her seizures will stop, and she will become more active and aware.
  • 28-Sep 2014
    Caylee has been going through a really hard week, plus, she was not feeling well, and the doctors told her she has a pneumonia. She has a lot of fluid in her brain. They have to discuss the possibility of having risky surgery, to put a shunt. Lastly, they found out her hip is out of socket, and will require serious surgery. Please pray for healing for Caylee. Pray her pneumonia goes away, along with the fluid in her head. Pray that her hip goes back into its socket, and does not require surgery. Pray that she is more comfortable right away.
  • 19-Sep 2014
    Caylee has been really sick, and has had a hard time breathing. They found out yesterday that she has a pneumonia. Please pray that Caylee starts to feel better, and that her pneumonia clears up quickly.
  • 11-Aug 2014
    Caylee had a rough night the other day. She had a really bad night of seizures and just not feeling comfortable. They did not have to bring her to the hospital which is good, but pray her condition improves. They are also hoping Caylee can go back to school, if she is healthy enough. Please pray that Caylee's seizures go away, and do not pop up again. Also pray that her body gains strength, and she can go back to school, which she like. Also pray for her mom who had some medical problems, that she will heal quickly, and not have to go to the hospital again.
  • 17-July 2014
    Caylee could use some prayers. Her seizures have been bad. She is awake all day and night. She is having so many seizures during her sleep that it is impossible for her to rest. Also our ceiling in the bathroom fell down. We were without water and power for 3 days. As you can imagine having a special needs child and not having water or power proved to be difficult. Please pray that Caylee's seizures go away and that she can get some rest for her body. As Justine will tell you Caylee hardly ever sleeps, but her body needs to rest. When I can I bring Justine (mom) a Starbucks gift card. She looks like a kid on Christmas, as she is often without sleep. Also pray that the bathroom get fixed.
  • 24-June 2014
    Caylee had been doing really well. she was going back to a new school in which they have 5+ kids( more than one is a non-verbal CP student like Cay), all with special needs, that is better equipped to handle a child like Caylee. She was doing good, but I received an email from her mom early this week: Out of nowhere Caylee started to have violent seizures. I don't know what triggered them. She is covered in scratches, bruises, fat lip. Last night, she had a seizure so bad that she fell off the bed face first. It resulted in a lot of injury and was very scary. I am praying they will go away. Please pray that Caylee's seizures go away, and that her injuries heal up quickly. Continue to pray that school goes well, and that she can return there soon.
  • 12-May 2014
    She is not doing well, and the frequency of her seizures is getting worse. Caylee has been having a really rough time with seizure control. She is back to having seizures all night long. She spends most of the day crying and miserable. Also she keeps overheating because she can not regulate her body temperature. We put the fan on but she is sweaty and beat red. We don't have AC for her. I am really worried about her current condition. I am hoping she can hang on a little longer and we can get through this rough period. She can use some extra prayers. Please pray that Caylee's seizures will go away, and that her body will stop overheating. Pray that her discomfort and pain go away as well, and her condition improves dramatically.
  • 16-May 2014
    Here is a letter from her mom:
    Caylee is really sick. She is very junky in the chest. Coughing, wheezing, fever plus seizures and cold sweats from her withdrawal. She is having a really rough time. We are trying to keep her home. We saw the doctor on Wednesday and she said to hit the ER if she gets any worse. We are trying to hold off on that. Pray that Caylee's seizures go away, and that her withdrawls stop. Pray her body gains strength so she can fight off her illnesses.
  • 12-May 2014
    She is not doing well, and the frequency of her seizures is getting worse. Caylee has been having a really rough time with seizure control. She is back to having seizures all night long. She spends most of the day crying and miserable. Also she keeps overheating because she can not regulate her body temperature. We put the fan on but she is sweaty and beat red. We don't have AC for her. I am really worried about her current condition. I am hoping she can hang on a little longer and we can get through this rough period. She can use some extra prayers. Please pray that Caylee's seizures will go away, and that her body will stop overheating. Pray that her discomfort and pain go away as well, and her condition improves dramatically.
  • 13-Jan 2014
    From Caylee's mom: Please pray that Caylee's body starts to get healthier, and that her condition improves dramatically. Also pray for Justine (mom) and Martin (dad) as they look for answers in this tough situation. Today we saw our medical care team and we talked about the spells Caylee is having where she stops breathing. They said that they believe her body is trying to pass on but we keep reviving her. So now we are at the same point of what are we going to do the next time it happens. Do we let go or do we try to keep her alive. It feels like so much pressure. We have to make the right choice without being selfish. I don't know how I am supposed to do that. My friend who lost her son said that I will know when it's time to let go. I don't know about that right at this very moment. We are going to have a meeting with GI and surgery tomorrow about putting in a tracheostomy. Maybe that will buy us more time.
  • 03-Jan 2014
    From Caylee's mom: Caylee had been having a lot of really crazy seizures. She started a new thing where she will hold her breath and turn blue at any given time and we have had to give her mouth to mouth on 7 occasions in 3 days! It's terrifying and I feel like I can not take my eyes off of her for even a second. Forget about trying to sleep. I am so scared that if I close my eyes even for a second she will have a seizure or stop breathing. Martin and I have been taking turns staying up all night and day. We do split shifts. You feel so guilty because we keep bringing her back to life but to what?? What kind of life is this for her to live. But then I can't live without her so what am I supposed to do. I just don't know anymore. Please pray her seizure go away, and that she no longer stops breathing. Pray for her parent s as they have to deal with this tough situation.
  • 25-Dec 2013
    Also please keep praying for Caylee who suffered a few bad seizures again.
  • 19-Dec 2013
    From her mother: Last night Caylee had horrible seizures. Some of the worse I have seen. I ended up waking up around 4am for some strange reason, rolled over to look at her and she was grey with blue lips. It took me 5 minutes to shake her into waking up! I am never going to be able to sleep again. That's the 3rd time she died on my watch! I feel terrified. I am afraid to put her to bed. I don't know what is causing this.

    Caylee has not been doing good lately and has not been able to sleep much at night. The family had no beds to sleep on, barely any furniture, and a child with special needs. We are going to try and bring them some furniture this weekend. If anyone has beds, dressers, chairs.... Let me know, and maybe we can arrange to pick them up.

    Pray that Caylee's condition improves and that the seizures stop all together. Also, pray that she remains healthy and that she will start sleeping better. Her parents think the cold weather has something to do with it. Also, pray for peace for her parents, and brother as seizures are extremely scary things to see happening to your child. The child becomes unresponsive and you feel helpless. Also, pray we can find good furniture and can get the logistics to deliver it to them soon.
  • 3-Oct 2013
    Caylee and her family moved to North Carolina last month. They had no place to go, so they moved down to live with Martin's(dad) sister. They are looking for a place of their own, but they LOVE the area. The people are really nice, and it is easier to get appointments for Caylee in Raleigh. The warmer climate is also a good thing for Caylee, as it is very dangerous for her to get sick.
  • 6-Sept 2013
    Caylee and her family moved last week to North Carolina. They lost their housing and medical card in Connecticut, so they moved to NC to live with Martin's sister and her family. So far they love the area and the people. Please pray that they can find their own place to live and find work, good hospital...
  • 24-May 2013
    Caylee has been in the hospital with another bad pneumonia. She is due to be released under hospice tomorrow. She has been sick for a while. She has been having a hard time staying healthy its one thing after another. She has been having increased seizures. Sometimes up to 60 a day. We are trying to adjust and add meds but nothing is helping. Its like your just sitting and waiting and watching. There's nothing else we can do. Pray that Caylee's Pneumonia goes away and that her condition dramatically improves. Pray for her family for peace through this extremely stressful time. Also pray the doctors find out the right meds to stop the seizures.
  • 28-March 2013
    Went to visit Caylee yesterday. She looks cute as ever, and seems to be doing well. The hospice nurse was there in is really helpful and nice. Cutting back on her meds (16 meds/day at one time) down to 4 for a 4 year girl, has seemed to help her. Caylee when she was in the hospital had to be brought back to life 2 times. She suffered from a series of seizures that really caused a lot of fluid to go into her brain. The fluid can kill the blood cells in the brain, which is a serious problem. She was well enough to go home with the help on hospice, but the doctors are really concerned about another "Catastrophic event". Please pray for Caylee that she continues to feel good, and pray that here will be NO MORE catastrophic events. Pray for wisdom for the nurses and doctors( I put nurses first because they rule) to best treat Caylee and prevent any future seizures.... Also pray for her parents who are obviously concerned, and upset because the doctors put 6 months to live on release form. Mikey's mom reminded me yesterday that they told her Mikey had 6 months to life, and he is now 5 years old.
  • 7-Mar 2013
    Caylee's mom informed me that Caylee's brain has died, and that she will most likely pass away today. Please pray for peace for Justine, Martin, and Nathan (brother), as they have to endure such hardship. Pray that their last moments together are good ones. Pray God welcomes Caylee home with open arms, and she will suffer no more pain.
  • 6-March 2013
    Caylee is still at Yale. Her symptoms keep coming and going. Her medical team is having a hard time controlling them. One minute her sugar is 52 and an hour later its 187. Her sodium keeps dropping which is causing seizures and her heart rate has been holding steady in the 50's. Its going so slow. She was placed under a special warmer called a bear hugger. We can't get her temp over 95. The doctors have determined that this was caused by neurological devastation. Her atrophy is progressing. We are taking it one day at a time. Pray for healing for Caylee. Pray that her sugar will begin to level off and the seizures will stop. Pray that her heart rate and temperature goes up.
  • 5-March 2013
    Last I spoke with Caylee's mom, she was still in rough shape. She was still in the ICU at Yale, and they had to put her on oxygen to help her breathing. That usually means a longer visit to the hospital. Pray that her breathing gets stronger, and that her blood sugar and heart rate go up. Pray for Justine and Martin who are stressed from all the time in hospital.
  • 28-Feb 2013
    On Tuesday night Caylee had to be admitted into the ICU at Yale. She has been suffering from repeated seizures, and her blood sugar and heart rate are low, as well as having a very slow heartbeat. Spoke with Justine(mom), and Caylee had to go on oxygen last night. Her condition is not improving, and the doctors have no answers. Pray that Caylee's blood sugar and heart rate go up, and that the seizures stop. Pray that her heartbeat speeds up. Also pray for wisdom for the doctor how to diagnose and best treat Caylee.
  • 30-Jan 2013
    Last night when I was going to bed I heard Caylee snoring on the baby monitor. It was really loud so I figured I would go in and reposition her. When I walked in her room she was laying on her back and she was literally drowning in her own vomit. It was pooled in her mouth and pouring out of her nose. She was blue and stiff. I flipped her over and we had to do CPR. After 10 minutes she started to spit some of it out and breath. It took a lot of suctioning. The ER thinks it was caused by a seizure that was so bad it ripped the skin off her spine from the thrashing. It has been a rough couple of nights and she hasn't been feeling well. The neurologist said her brain is tired. She is home now and we are keeping a close eye on her. Pray Caylee is doing better, and that her brain was not effected from the Seizure, and loss of air. Pray for a quick recovery, and for peace for her parents.
  • 25-June 2012
    Has been in the hospital with uncontrollable seizures. Her mom just asked me to send out prayer request because Caylee is in repository distress. Her seizures are constant. Please lift her up. Pray the seizures stop and the doctors can stabilize her. Also pray for Justine and Martin, her parents.
  • 15-May 2012
    We met with pediatric surgery on Friday. We have decided to have the Baclofen pump placed. On May 17th Caylee will have surgery to have a pump put in her side that will filter pure Baclofen to her spine though a catheter. It is a risky surgery and will take almost 3 months to see results which are not guaranteed. There is a high risk for infection and possible seizures. Once the pump is fully adjusted if it works it will be like she has a new body. She will be more comfortable and have more function in her limbs. We are very nervous because of her weight and small size we are taking a gamble. We were told if this doesn't work we are out of options. We have tried all other options including 15 different meds and different therapies. I just want her quality of life to be improved I am not expecting her to get up in run. I just want her to enjoy life and everything it has to offer her. Also at 11:30 Monday morning we are being interviewed by need channel 8 about the medicaid situation and them denying her wheelchair. Pray that the surgery goes well, and there are no infections or seizures. Pray that her quality of life improves dramatically after the surgery.
  • 8-Nov 2011
    Visited Caylee this week. She has been doing well. They adjusted her meds, and her seizures have gone down dramatically. She received a grant, and is going to start going to school in a couple weeks. Pray that she likes school, and that she can adjust to this change. Also, pray that God prepares the school for her arrival, and that she is health and safe there.
  • 8-Aug 2011
    Last night Caylee was admitted to the 7-2. They are going to keep her for a couple days because she is unable to take meds or foods without throwing them up. She tested positive for pari influenza and is on precaution because it is contagious.
  • 6-Aug 2011
    Doctors discovered Caylee has a subluxed hip that will require a brace and maybe surgery, to put the hip back into place. She has also been in and out of the hospital because she has been suffering a lot of seizures lately, and also has a bad GI bug and a fever that will not go below 102 degrees. Please pray for Caylee that the seizures will go away, and that her temperature will go down. Also pray that the Botox injections will help to loosen her muscles up, as they have really tightened up on her.
  • 18-April 2011
    Caylee has been doing very well since coming home a few months ago. She has gotten glasses, we have increased her therapy sessions and on April 26th she is going to be having her first round of botox. She will be getting 32 injection from the shoulders down in hopes of relaxing her tight muscles and stop the spasms that have been keeping her up at night. We have also added some new meds to the mix. Also on her most recent trip to the eye doctor he informed us that her lazy eye has improved itself by more than half and she actually can see at least 24 inches in front of her so no surgery will be needed. Caylee also had her ears pierced at the mall and we have been trying to do normal activities as a family now that she is feeling better.
  • 7-Feb 2011
    Caylee has been at Yale for over 6 weeks because they have been unable to control her vomiting. Doctors are concerned this problem may not go away. They are looking at the possibility of having a nurse full time at the home, but are not sure what is best. Please lift up Caylee, that her vomiting will cease, and her condition will improve dramatically. Pray that if she does have a nurse at home with her, that she is a blessing to Caylee and her family. Also, lift up Caylee's mom and dad, and as having a child in the hospital, as i know, can be very stressful.
  • 20-Jan 2011
    Caylee has been at Yale NH for 4 weeks now, unable to hold food down and her breathing is uneasy. Please pray that the doctors will know how to treat her current condition so she can go home.
  • 24-Dec 2010
    Caylee had to be brought to the hospital yesterday, because they were concerned she had a type of mini-stroke. None of the results confirmed that, but Caylee is not really moving or making any noise. Her mom says she is "like in a coma state". She was stabilized and able to come home for the day, but they are concerned if she will have to go back. They will be doing a bunch of tests on her after Christmas. Please pray for her, and all the kids on Charlotte's Web, that they can stay out of the hospital, or get released from the hospital, to be home for Christmas.
  • 17-Dec 2010
    This morning Caylee had to be rushed to the ER, Dr's think her appendix is about to rupture or her bowlers burst. Caylee's health is somewhat fragile already, so please pray that the Dr's can diagnose the problem and that it's something treatable. Please keep praying for her parents as well as they are very concerned about their little girl.
  • 22-July 2010
    Caylee has been doing well and has been home for 3 weeks. She has started to double up on her physical and occupational therapy and will start getting speech therapy in the fall to help her with oral stimulation. She has started to eat stage 1 baby food for therapeutic purposes but they don't think she will ever be able to eat functionally. She will need the g tube for the rest of her life. We saw neurology on Monday and there was concern her skull is not growing. We are trying to stay positive because this was one of our biggest fears. Otherwise she has been well and is happy. Please pray that Caylee's skull is growing, and that she has no complications. Also pray that she will someday be able to eat functionally. The family may be moving soon, so pray they find a place that is safe and a blessing to the family. Also please lift up Martin, Caylee's father who suffered a seizure and fell, and had to be in the hospital for more than a week.
  • 7-July 2010
    Caylee came home today and she is doing better. They told us that there is really nothing they can do for her. They increased her muscle relaxer to help ease the tremors, but she still shakes out of control. She is still throwing up and choking on her meds. But i can't really complain, we are just glad to have her home. My husband has been having some really bad days with his shaking and forgetfulness.

    Just wanted to let you know that Caylee was taken by ambulance back to Yale because she popped her nissen. She is back on 7-3. Also lift up Caylee's dad, that his condition improves, along with her mom, who is caring for the family.
  • 4-June 2010
    I have some bad news, Caylee is back in the hospital and not doing well. She had a seizure and ripped her g tube out and possibly has new pneumonia and a blockage in her intestine. Please pray she doesn't have pneumonia and the problem is treatable. Also pray her seizures get under control, and that they can replace the g-tube. Caylee has not eaten solid food in over 3 months, and the tube is her source of food/nutrients. Her parents were hoping earlier this week that her condition would improve enough so she could start eating solid food again.
  • 24-May 2010
    Right now they are working on compressing her feeds so she is fed through her g tube a half an hour at a time instead of all day. They said the think it will take another week. Please continue to pray for Caylee and her parents. Caylee has not been home from the hospital for more than a week, pretty much her entire life. Her mom is really feeling down, and is in need of some good news. Please lift up Caylee and her mother Justine now.
  • 15-May 2010
    We visited Caylee in the hospital on Thursday. Thursday morning, Caylee suffered a seizure due to they think from the surgery she had. She is still in a lot of pain. Please pray the pain goes away and her condition continues to improve.
  • 10-May 2010
    I just wanted to let you know that Caylee's surgery was 4 hours long and went better than expected. They were able to do the full Nissan wrap and replaced her g tube. They are giving her morphine and Tylenol to make her comfortable. We won't know for a couple of weeks if this will end all the aspiration pneumonia but it's a start. Now we are waiting for her to recover so she can have the sleep study and then we can move forward with a pulmonary specialist after that. Thank you for all the prayers!
  • 9-May 2010
    Just wanted to remind people that Caylee has her really important surgery on Monday May 10. They fear another pneumonia could be fatal, so this is a big day for Caylee. Pray that the surgery to have the nissan goes better than expected, and that the Lord is with the doctors and nurses throughout the procedure Also, please lift up her mother Justine who has been through a lot with her little girl.
  • 5-May 2010
    This surgery is our last option and i was wondering if she could be put on the prayer list? She has already has a g tube and a g j tube. She has not been able to eat by mouth in 3 months. If this surgery to have a nissan does not work the doctors think her next pneumonia will be fatal. Thank you for your time.
Dylan Fortunato - 12 years old - Leukemia

1-Nov 2010:  Dylan was diagnosed with Leukemia, and has been going through chemotherapy treatments for a long time. He has suffered through many infections, 106 degree fevers... In April, just 2 treatments before his chemotherapy was to be completed, they found out he had relapsed. Needless to say, the family was really disappointed. Since the relapse, he has been receiving a much higher dose of chemo, and he will soon have to go through the heaviest treatments of chemo. By all accounts, Dylan is a great kid with an amazing attitude. The chemo sometimes can take its toll on the body.

Dylan has to be rushed to the hospital with a high fever and low blood counts. He needed several transfusions and he is going to have to stay in the hospital for a while, until he is healthy enough to continue chemo treatments. His mother was disappointed that he could not go trick or treating.

  • 11 Aug 2014
    Please continue to pray for Dylan's mom, dad, and brothers. It has been 2 months since Dylan passed. Please pray for peace for all the family, as they are still grieving the loss of thier son, Dylan.
  • 27 June 2014
    Please continue to pray for Dylan's family as they mourn the loss of thier son. Things have quieted down, and Grace (mom), Anthony (dad), and his brothers are still heartbroken by the loss of this amazing kid. Pray for peace and comfort to somehow come over them, and allow them to continue to honor Dylan, by helping other families with sick children.
  • 21-May 2014
    Dylan's family is asking for prayers tonight. The doctors do not think there is anything they can do to get Dylan better. He has been on a ventilator to help him breath, but his lungs are not in good shape. Please pray for Dylan that he does not suffer. Pray for Grace (mom) who is having a really hard time accepting the news. Also pray for Anthony (dad) who is with Dylan and Grace, and his brothers Ryan and Jordan. Pray that they can somehow have some peace, and give them the strength to get through this horrible time.
    The family has asked for privacy, and thanks everyone for all the prayers. God Bless Dylan and his family.
  • 16-May 2014
    Dylan is still in critic condition with some problems with his lungs... there is some air coming into his body, causing him to be puffed up. There is also problems with his lungs that they are concerned with. Please pray that Dylan's overall condition improves this weekend. Pray that the problems with his lungs will get better, and they can figure out how to deal with the air in his body. Pray his pain subsides and his organs start working better.
  • 12-May 2014
    Dylan is not doing well right now. His lungs are leaking air, which is sometimes caused my damage or scar tissue. His entire chest is filling with air, and the doctors are not sure where it is coming from. They want to do a CT Scan, but cannot because he is Intubated to help his breathing. Please pray that the doctors can figure out where the air is coming from, and fix the problem. Pray that Dylan's body can fight off all the side effects, and little menacing problems that pop up. Please pray for complete healing for Dylan, and that he can soon get off the intubator for good. Also, pray for peace for Grace (mom) and Anthony (dad).
  • 08-May 2014
    I visited with Dylan yesterday at the ICU at Boston's Children's Hospital. He had been doing well, and was extubated a few days ago. He was also able to get off the dialysis, because his kidneys were working better. The dialysis actually took out 16 kgs. of fluid out of his body. I just received an email this morning, that Dylan had to be intubated again. The doctors were concerned his oxygen levels were to low, and he was having a hard time breathing while we were there. The doctors were happy with his lungs up until recently. Please pray that Dylan's lungs will get stronger again, and he can soon get off the intubator and breath on his own. Pray that once he is off, he will no longer need to be intubated. Also continue to pray that his kidneys work fine and no longer will need dialysis. Pray his skin heals up, and that the discomfort in his throat go away as well.
  • 02-May 2014
    I spoke with Dylan's mom, Grace, yesterday. It has been 2 weeks since Dylan had to be intubated and put into a medically induced coma, due to a collapsed lung, and other complications. The doctors did a CT scan early this week, and they are really pleased at the improvement in his lungs. The doctors and nurses are amazed at how tough and resilient Dylan is. Dylan is still receiving dialysis on his kidneys, because they are still not functioning correctly. The doctors want his kidneys working better before they can stop sedating him so much. He has been responding to Grace by nodding his head when she says, "Do you know how much mom loves you," and has even been able to open his eyes. He had to have a minor surgery yesterday, to replace one of his tubes that may have been infected. Please pray for Dylan that his lungs will continue to improve, and that his kidneys will start functioning much better, right away. Pray that he soon can get off the dialasis and be able to come off the meds and machines, and breath on his own. Pray his lungs and kidneys will never again require the dialasis and the breathing machines. Continue to pray for the doctors, for wisdom on how to treat Dylan. Pray for Grace (mom), who has been with Dylan in the ICU since March 17th. Pray for peace for her, and that she can get some rest. It is not easy to do, because of the constant Code Reds and Code Blues with the critical patients in the transplant ICU. Grace also asked that we pray for a family that just lost their 3 month old boy to cancer in the hospital. This is why so many people love Dylan and the Fortunato family. In the midst of their struggles, they always think of others first, and ask how eveyone else is doing.
  • 18-Apr 2014
    Dylan was having a hard time breathing, because of a collapsed lung, and fluid in his lungs. Yesterday sometime Dylan became unresponsive and could not breath well at all. The doctors were forced to intubate Dylan, and put him into a medically induced coma. The doctors are really concerned about his high blood sugar, as well as a few other problems that are side effects from the medicine. Please pray for Dylan that his condition improves dramatically, right now. Pray that his lungs will get cleared out of all the fluid, and that his body will fight off the side effects. Pray that his sugar levels come down, and that the incubation works to get rid of his lung problem. Also, pray for Grace (mom), who has been in the hospital for more than a month and Anthony (dad) who rushed up to Boston yesterday, for peace.
  • 16-Apr 2014
    Dylan has been hanging in there. His new bone marrow is doing well to graft to him own bone marrow. With the procedure comes a lot of side effects. Right now his parents are asking to pray for Dylan's lungs. He suffered a collapsed lung, and there is fluid in them, which can turn into a big problem. Pray his lungs heal and the fluid goes away. Also pray there is no fungus. Dylan has also has a bad rash on his body, and his whole digestive tract is in pain. Pray for healing for all his body, and that his body gains strength to fight off these complications. Dylan's brothers Jordan and Ryan (whose 9th birthday was this weekend), were able to visit Dylan for the first time since the transplant.
  • 04-Apr 2014
    I went to visit Dylan's dad and brothers yesterday. Dylans' counts were over 900 for the 3rd day in a row. That is a good sign that his new bone marrow may be grafting to his body. He had a rough night last night, no sleep, irritable, and he has been really confused for a few months now. Please keep praying for Dylan. The counts are really good news, but he has a long road ahead. Pray the bone marrow grafts to his body and that the transplant is a complete success. Pray that his discomfort goes away, and that he and Grace can sleep better. Pray his body gains strength, and that his mind improves dramatically. Pray for clarity for Dylan, and his spirit be lifted. Doctors are also really amazed at how well his pain levels have been.
  • 01-Apr 2014
    I spoke with his mom and dad. The last couple days Dylan's blood counts have been going up. For the first time today his counts were over 500. They were actually 940, which is a GREAT number. Dylan has to go 3+ days in a row for the doctors to feel like the bone marrow is beginning to adapt (for a lack of a better word) to his body. Please continue to pray for Dylan. Pray that his counts continue to stay or go up from this point on, and that the bone marrow is working in his body. Pray for Dylan's body to heal and continue to get stronger. Pray that this procedure will work, better than anyone could have expected, and that Dylan is completely cancer free for the rest of his life.
  • 26-Mar 2014
    Dylan now has a fever that is a real concern for everyone. They have not had to intubate him, so that is some good news. Please pray that Dylan's fever goes away, his breathing improves, and his over all condition get better. Pray his body gains strength to fight off these complications. Please also pray for peace for Grace and Anthony, who are having a hard time watching thier son suffer so much.
  • 24-Mar 2014
    Dylan's mom said he had a really bad night last night, and has had a hard time breathing. Doctors just told her they may have to intubate him. Grace asked us to pray that he does NOT have to be intubated. It is not a good senario.
  • 23-Mar 2014
    Spoke with Grace and Anthony (Dylan's parents). It's been a week since his bone marrow transplant. They say Dylan is hanging in there. He has been suffering the last few days from the side effects of all the radiation and chemo he was treated with. He has mucinitis, which is really uncomfortable for Dylan, and it affects all of his insides from the esophagus down. Please pray for Dylan, that his overall condition and his strength improves dramatically. Pray that this mucinitis goes away, and that he suffers no more side effects from the transplant. Pray that this transplant works for Dylan, and that they start to see improvements in Dylan's condition. Lastly, pray for Dylan's spirit to be lifted, and that he is encouraged to fight to get healthy.
  • 17-Mar 2014
    Just wanted to ask everyone to take sometime today to pray for Dylan and his family. Dylan is having bone marrow transplant surgery today, at Boston's Children's Hospital. He is going into the surgery in not the ideal condition, but the doctors feel they have to do the surgery ASAP. Please pray that Dylan's surgery goes 10 times better than expected. Pray for the doctors and nurses who are performing the surgery, to guide their hands and give them wisdom. Pray Dylan recovers ahead of schedule, and that the new bone marrow works, and his body accepts it. Pray for quick healing for Dylan, and that after this surgery, he will finally be cancer free for good. Also pray for Grace (mom), Anthony (dad), and his brothers. Pray for peace for them all today. Lastly, after the surgery, there can be complications like infection...within the first 2 weeks of the surgery. Pray Dylan's body gains strength, and that he suffers no setbacks, and has no infections or complications. Thanks again for all your prayers. Dylan's family really needs and appreciates them all. Pray today for this amazing kid, who has taught all who know him, what it means to be selfless, and put other people first.
  • 12-Mar 2014
    On Monday we drove Dylan up to Boston to be admitted into the Transplant Ward of the hospital. He is receiving radiation and chemotherapy all week, and is scheduled to have Transplant Surgery on Monday, March 17th. Dylan was not in great shape going into the surgery, as he cannot walk due to pain in his feet and legs. During the pre-op tests they found out his liver is functioning below normal. He began radiation yesterday, and had a really tough night. His oxygen levels were too low, and he had a hard time breathing. Please continue to pray for Dylan, that he can receive all his treatments, and have successful transplant surgery next week. Pray that his oxygen levels go up, and that his liver function improves. Also, pray that the pain in his legs and feet go away, and that his spirits are lifted. This treatment is really intense because they want to wipe out his immune system, to prepare him for bone marrow transplant. Please pray that they have no complications, like infections or illness, and that his body accepts the bone marrow. Also, pray for the donor, for a quick recovery, and for blessings...
  • 08-Mar 2014
    Please keep Dylan Fortunato in your prayers. On Monday, we are driving up to Boston's Children's Hospital so he can have a Bone Marrow Transplant. He has to receive heavy chemo and radiation this week, and the surgery is scheduled for St. Patrick's Day (March 17th). Please pray for this great kid and his family.
  • 07-Mar 2014
    Dylan will be driven up on Monday by ambulance to Boston's Children's Hospital. The doctors do not want to wait any longer, because they are worried the cancer may come back. Dylan is not in very good condition right now. He is in severe pain most of the time, and still cannot walk. With that, starting Tuesday, Dylan will get more chemo and radiation to get him ready for Bone Marrow Transplant surgery on March 17th. Please pray for Dylan, that the pain in his body will go away, and his condition improves dramatically over the next couple days. Pray he can take the treatments, and his body will be strong enough to get through a successful transplant surgery. Pray for wisdom for the doctors and nurses, how to best treat Dylan. Also, pray for Dylan and his family, as they are really nervous as they get close to surgery. The treatment and the surgery are very difficult, and come with a lot of potential problems, so pray everything goes better than expected.
  • 05-Mar 2014
    He is still not doing well. Please keep praying for Dylan and his family.
  • 28-Feb 2014
    The family received results yesterday with a marker on it. Thier was a 1/2 cell that was abnormal. They are really concerned it may be something serious. Please pray that what is showing up is a recovering cell, NOT any new cancer. Pray for peace for the family as they are really concerned for Dylan's life. Dylan's transplant surgery was delayed until March 11th now. Pray he is health enough to have successful surgery. Also, pray now that his pain will go away, and that his spirit is lifted!!!
  • 24-Feb 2014
    Dylan's mom asked me to send out a prayer request for Dylan. He has been in the hospital for 2+ weeks, and his body is getting worse. He is unable to walk, and the doctors at Boston's Children's Hospital had to postpone his bone marrow transplant surgery, until he gets stronger. Grace asked me to pray that his results for his bone marrow biopsy come back clean. Also, pray that the MRI on his brain and spine look fine as well. Please pray Dylan's body gets stronger, and can start walking again. Also pray they do not loose the donor, and that Dylan stays in remission, and can have successful bone marrow surgery soon.
  • 10-Feb 2014
    Dylan was still in the hospital as of Friday. His counts were to low to go home. As of right now, Dylan's Bone Marrow Transplant Surgery is Scheduled for 2 weeks from today(February 24th). He will have the transplant surgery at Boston's Children's hospital. Everyone is really concerned about Dylan's health, and the strength of his body. Please pray that his blood counts remain high, and that his body grows stronger before the surgery. Also, pray that his cancer stays in remission, and that Dylan will have a successful surgery, and make a full recovery. Pray for his parents and brothers, as this will require Dylan to be in the hospital in Boston for at least 5 months.
  • 03-Feb 2014
    Dylan had to get admitted back into the hospital becuase of low blodd counts. He still has a lot of nausea, and not has discomfort as well. They are testing to see if he has another blood infection. Pray that the doctors can quickly treat his problem, and that it is nothing serious. Pray that his body will heal up and his counts will go up.
  • 30-Jan 2014
    I visited Dylan at his house on Monday. He is out of the hospital, but has been going through a really hard time. He has been very nauseous, and has not been able to eat much. He has also has been light headed several times, and has fallen more than once. Dylan soon will be going to Boston Children's Hospital, for a pre-opp meeting with the doctors. They will do tests on his organs/body to see if he is strong enough to do the Transplant Surgery. If he is healthy enough, he could have Transplant Surgery in as little as 3 weeks. Please pray that Dylan's nausea goes away FINALLY, and that his appetite comes back. Pray that his body begins to heal rapidly, and that his bone marrow and counts are good to go.Pray that God prepares everything for this big surgery, and that he can have the transplant, and one day be cancer free for good. Also pray for the entire family, as they are very concerned with the surgery, and they will have to be in Boston for at least 5 months. Dylan will be in isolation for much of the time.
  • 26-Jan 2014
    Please pray for Dylan. His mom says he is not doing good, and she is worried about him. Please lift him and his mom, Grace, up in prayer. He is at Yale, and has been receiving the worst chemo. He has been suffering from nausea, and I am sure fevers and low blood counts.
  • 20-Jan 2014
    Went to visit Dylan yesterday. He still is suffering from nausea. He has to be admitted to Yale on Wednesday for the HEAVIEST of chemo. This is the chemo that gives him 106 degree fevers, heavy nausea... Please pray that his blood counts stay high, and he can receive all his chemo. Pray that the fever stays down, and that his nausea and appetite improves. Pray for mom and dad as they are stressed out from seeing their son suffer.
  • 13-Jan 2014
    Dylan is being released from the Hospital tonight. He has had a really rough week of heavy chemo, but he is healthy enough to go home. He was really nauseous and his chemo levels were high. Pray that his fever and cholestrol stay down, and that he can be home with his family.
  • 03-Jan 2014
    Dylan had surgery to replace his broviak tube so he can receive his chemo treatments. He is in the hospital for 5 days of in hospital treatment. He is receiving a HEAVY dose of chemo, and has been suffering from a lot of nausea. Please pray that Dylan's nausea goes away, and that his fever, cholestrol, and sugar stays down. Also pray his counts stay up so he can continue his treatment. Also be praying for God to prepare the family for Dylan's possible transplant at Boston's Children's Hospital for next month.
  • 25-Dec 2013
    Please continue to pray for Dylan, who had to stay in the hospital on Christmas because of a blood infection and low count. Pray that his counts go up and that his infection clears up, so he can go home tomorrow.
  • 19-Dec 2013
    My brother Pat and I visited Dylan at Yale NH Hospital yesterday. He has been in the hospital for almost a week receiving a HEAVY dose of chemo. As you can imagine he has not been feeling well. His blood counts are almost zero, and they had to stop the treatments for a couple of days because his sugar and cholesterol are through the roof. I think his Cholesterol or sugar was at 4,600. It is now down to 1000, but that is still extremely high. He is still in the Pediatric ICU at Yale, so he can constantly be monitored. Grace (mom) and Anthony can really use your prayers as well. I could see in Grace's face that she is really tired and frustrated, and just wants to get her son home for Christmas.

    Please pray for Dylan. Despite all that is going on, we laughed and joked (Maddie's brother Zach provided the entertainment), and his concern is always for other kids in the hospital, his family... Pray that Dylan's cholesterol and sugar stay under control, and that he can finish his chemo. Pray that his bloods counts go up, and that his fever stays low. Also pray for peace for Grace, Anthony and his brothers. There is no way to explain the stress of being in the hospital with a sick kid. There is no sleep, and lately Dylan's mom says everything that could go wrong has. Pray that things start going their way, and that they can go home soon!!
  • 14-Dec 2013
    Dylan had to be moved to the ICU at Yale today. His cholesterol is dangerously high from all the chemo he has been receiving. His blood is really thick and his sugar levels are also elevated.

    Please pray that the doctors can treat and lower his cholesterol and his sugar levels goes down. Dylan has been receiving heavy treatment since Wednesday. Pray that his body gets stronger and that he feels better.
  • 25-Nov 2013
    Please continue to pray for Dylan, who is going through a series of treatments, including 7 chemos. They are being very aggressive, because he has to get in remission ASAP. Please pray that his nausea goes away, and that his blood counts remain high enough to continue the treatment. Also pray the cancer goes into remission. Dylan now has 6 bone marrow matches, which is 6 more than when they checked 3 years ago. PTL!! He has a long road to get there, so continue to lift this great kid up in prayer. He is celbrating his 13th Birthday Dec. 9th!!
  • 14-Nov 2013
    Please pray for Dylan today. He has a spinal tap today to make sure the cancer has not spread. His treatment and recovery are a little more complicated because the cancer is not in just one isolated spot. Please pray that the chemo treatments will kill off the cancer cells, and protect his good ones. Pray that the treatment can quickly put his cancer into remission, so that they can look at doing a transplant. Pray that the many things that need to happen, do happen, and that he will be able to have the transplant, and fully recover from this. Pray for wisdom for the doctors as to the best way to treat his situation. Also pray for Grace, Anthony, and his brothers (Ryan and Jordan), as they are really concerned for Dylan's life, and how to make these difficult decisions on the next step for treatment.
  • 8-Nov 2013
    Dylan found out on Tuesday that his cancer had come back. They found out some more news. They know he had relapsed in this bone marrow, but they found out yesterday he relapsed in his central nervous system as well. He was in ICU on Wednesday because his temprature and oxygen levels were low. Thursday morning, he started feeling well enough to have surgery to put a port in, so he can receive chemo... He also had a spinal tap and bone marrow test, so he has had a rough couple of days. He has a long road ahead, and they are wasting no time, as he starts chemo treatment today. Please lift up Dylan and his family as they are really concerned for Dylan's health. Pray that the treatments work better than expected, and that Dylan goes into remission quickly. Also pray that Dylan's body remains strong, that his blood levels remain high, so he can continue with his treatment. Also pray that Grace and Anthony's faith remains strong, and that everyone stays determined to beat this cancer. Nothing is too Great for God. If we have faith the size of a mustard seed, you can move mountains. Please pray with conviction that Dylan will one day be cancer free!!
  • 5-Nov 2013
    Dylan was sent to the hospital last night for tests. Grace (mom) texted me last night her concerns. They found out this morning that his Leukemia is back, and has spread to his bone marrow. Dylan had relapsed once before, and has endured over 5 years of treatment. There are little options left, most likely he will need to find a match for his bone marrow and have a transplant. Please pray for Dylan and the family as they are all completely devastated. Mom, Dad, and brothers Jordan and Ryan. Pray that they can somehow cope with this terrible news, and that they will remain strong. Also pray that if he does need a transplant , that we will find a donor, that it will work, and that Dylan fully recovers from this, and is one day soon cancer free.

    Dylan has been really sick lately. Yesterday they brought Dylan to advanced radiology. He has blood work and an ultrasound on his stomach. They found out he had an enlarged spleen and liver, and sent him to Yale for more tests. Last night Grace told me they will be doing a bone marrow test this morning to rule out leukemia. Dylan was diagnosed with leukemia 7 years ago, then relapsed 2 months before he had finished his treatments. His body is broken down from all the chemo, and over 5 years of treatment. Please pray for Dylan this morning. Pray that the bone marrow test goes really well, and that the pain is minimal. Pray that the results come back negative, and that Dylan is still cancer free. Also, pray that the doctors can figure out what is causing Dylan to feel so sick, and that it is something treatable.

    Thanks for all the prayers. Dylan is a Great kid, with the best heart. Please pray for him and his family, as they are extremely concerned about their boy.
  • 1-Nov 2013
    Just ask for some more prayers for Dylan. He has really been going though a hard time with his health. He has been really sick, and has had pain in much of his body. He has fallen a few times as well. Please pray that Dylan's starts to feel better, and that his overall health improves. Also pray that his spirit is lifted, as he is really sad about his health and always feeling bad.
  • 2-Oct 2013
    Dylan was diagnosed with Leukemia 6 years ago. 2 months before his last treatment, he suffered a relapse. After 5+ years of treatment(chemo, radiation....), Dylan's body has really been effected. He now is in a lot of pain, and the doctors found out his bones are rotting out. He also has been gaining a lot of weight, and the doctors are not sure why. Please pray the today's blood work goes smoothly, and that the doctors can come up with some definitive answers on what is going on with Dylan. Pray that there is nothing serious, and that there is a way to treat the problem(s). Also pray the pain starts to go away, and that Dylan's spirit is lifted, as he has been really depressed about always being in pain and feeling sick.
  • 6-Sept 2013
    Dylan has been going through a hard time lately. He has been in a lot of pain for over 6 months. They found out his bones are rotting out in his ankles, knees, and legs. He may have to have knee replacement in the future. Dylan has been really down lately. He has gained a lot of weight, because he cannot be that active, and the pain is really getting to him. Please pray that Dylan's spirits are lifted. PRay that the pain starts to go away, and that his weight will go down. Also pray for the family as they go through a tough transition time right now. Pray for blessings on them in the near future.
  • 29-July 2013
    Dylan has been in a lot of pain lately. They discovered he had a fracture in his leg. He has to get more tests, because they are concerned his bones are deteriorating from all the chemo he had taken. Pray that Dylan's pain goes away and that he can become more active. Pray that he can loose some of the weight he has gained, and that the doctors can figure out what is wrong with him and that it is easily treated. Also pray the family finds a new home, as they need to find a new lower rent place to live.
  • 5-June 2013
    Grace (mom) just found out Dylan has a fracture in his tibia. He has been in a lot of pain lately, and this might explain it. They are not sure how it happened, maybe rotted out from all the steroids. Pray he heals quickly, and can get back on his feet soon.
  • 24-May 2013
    Dylan is still in some pain from his surgery, but is recovering ok. Pray the doctors find out what is causing the weight gain and some of his complications. Also pray they are easily treatable.
  • 8-May 2013
    Dylan's mom asked me to send out a prayer request for Dylan. It has been a year since Dylan's last treatment for cancer. He has continued to have some health issues including weight gain, lots of pain, and breathing issues. They are going to see the endocronolist on Friday to discuss the surgery he is having on May 14th. They are having surgery to try and figure out why he has gained so much weight. His metabolism is slowing down, and he has damage to his Pituitary Gland. The surgery is more dangerous for Dylan because he has received so much treatment(5 years) for his cancer. Please pray that the doctors can diagnose Dylan's problem, and that it is something treatable. Also pray for this Tuesday, that his operation goes well, and that he recovers quickly. Recovery is supposed to be about 2 weeks.
  • 3-January 2013
    Dylan has been done with treatment for several months, but has still been suffering from sickness, and just overall not feeling well. They just had some tests done at Yale, and are waiting for results. Pray that the results show nothing serious, and that Dylan will start to feel stronger and stop feeling sick. Pray that his immune system, which has been fighting off chemo and other treatments for over 5 years, gets stronger, and can fight off anything that might make him feel bad.
  • 15-Oct 2012
    Dylan's last test came back clean. Thank God. Pray the cancer never comes back, and the family can worry less each day that goes on.
  • 30-Aug 2012
    They recently got back from Camp Sunshine and had a great week, with their entire family and many good friends. He is still doing great and starts school this week, so keep praying he remains cancer free and feeling great.
  • 23-May 2012
    He received chemotherapy today, and they found a blast in his blood. Please say a prayer for Dylan. He received chemotherapy today, and they found a blast in his blood. Grace asked that we pray the results are good, and that it us just an abnormal cell. Pray that God gives Dylan and the family as sense of calm. Pray they his blood counts come up as well.
  • 23-May 2012
    He received chemotherapy today, and they found a blast in his blood. Please say a prayer for Dylan. He received chemotherapy today, and they found a blast in his blood. Grace asked that we pray the results are good, and that it us just an abnormal cell. Pray that God gives Dylan and the family as sense of calm. Pray they his blood counts come up as well.
  • 15-May 2012
    I was planning on visiting Dylan at his house, but he had to go to the hospital with a high fever. I met him at Yale today, and he had to be admitted, because of low blood counts and the fever. Pray that his fever goes down, and the blood counts go up right away, so he can go home tomorrow. Also pray for him and his parents, as they hope his treatments will be completed next month. Dylan relapsed just before he finished his treatment 2-3 years ago, and they are worried it may happen again. Pray Dylan will be cancer free after his final treatment, and that the cancer never comes back.
  • 7-April 2012
    Dylan's Spinal Tap came back clean. Grace (Dylan's mom) says thanks for all the prayers, and keep them coming.
  • 27-March 2012
    Dylan has an important spinal tap tomorrow morning, and his mom asked for us to pray that the results are good. Pray that he continues to remain cancer free.

    Dylan is beginning his 5th phase of 5 for his treatments, and the family just wants him to finish his treatment and be cancer free.
  • 14-March 2012
    Dylan was in the hospital over the weekend with a high fever, and because he was having a hard time breathing. Pray that his counts are high enough today to receive chemo, and that he will not get sick or spike a fever. Also pray that his breathing improves and that his counts are high enough to go home.
  • 31-Jan 2012
    I spoke with Dylan's mom yesterday. They had a big scare a couple weeks ago. After some tests, the doctors were worried that Dylan's cancer had come back Again. Dylan has been fighting Leukemia for almost 5 years. He relapsed almost 2 years ago, with only 2 treatments left. He had to start all over again, this time with a more aggressive chemo/radiation treatment.

    After the test, Dylan had to go through the battery of tests (bone marrow,spinal taps....). The received great news that the tests were negative. Speaking to his mom though, they are still shaken from the ordeal. If he were to relapse again, they do not have many more options.

    Dylan has been feeling really bad, and cannot go to school, because of nausea and pain in his back and knees. Please pray for Dylan that his nausea and pain goes away, and that his spirit is lifted. Pray that the cancer never comes back, and that after his treatments, he can go back to living a normal life. Also, pray for emotional strength for all the family as they have been going through this for almost 5 years.
  • 11-Nov 2011
    Dylan's mom said to thank everyone for the prayers, because his spinal tap came back clean. She said to keep the prayers coming as they are still waiting the results of a 3 hour MRI.
  • 8-Nov 2011
    Dylan's mom asked me to post a prayer request for Dylan. He has a spinal tap tomorrow, along with a 2 1/2 hour MRI to see if there is any bone damage in his back and knee. Dylan has been in a lot of pain lately, as well as suffering from a high fever. Please pray that there is no bone damage in his back and knee, and that the spinal tap comes back clean. Also please pray that his pain and fever go away, and that he starts feeling better. also pray that the procedures go well, and that he recovers quickly.
  • 6-Aug 2011
    Dylan will have a spinal tap at the end of the month. His mom asked that we pray that the tests come back clean, and that the the cancer has not moved to anywhere else. Also pray that his blood levels remain high, and he feels good enough to continue to receive treatment. Pray for Dylan and all these children, that their spirits be lifted, and that health improves dramatically.
  • 24-May 2011
    At 10:30 AM he starts radiation for the first time, and is a little nervous about what to expect. He has to wear the head gear, and cannot move while he receives radiation. This phase is 3 -weeks long and includes chemo and steroids. Please pray that he will have a calm about him through the procedure, and that it will go very well. Also be praying that if at all, the side effects are minimal. Radiation and chemo can cause a lot of side effects, that can affect him how (nausea,fever) and some time down the road(memory loss, organ problems...). Just pray that God protects him and keeps him safe, and that these treatments wipe out the cancer in his body.
  • 20-Apr 2011
    Today, Dylan is getting a spinal tap to check on his levels on cancer in his body. Mom is really worried, and asked that we pray for good results from the tap.Pray that they do not find anything new in his spine or anywhere in his body. Also pray that the chemo is reducing the cancer cells in his body.

    If the tests look good, Dylan will hopefully be done with the heavy chemo that makes him really sick. Him mom said they were in the hospital for 4 days last week, because they could not control his nausea. If all the test results are good, Dylan can start to receive radiation, which is the next phase of his treatment. Pray that his blood levels remain high, and that his nausea and fever are minimal. Also, continue to pray for Dylan and his family today, as these results are really important.
  • 22-July 2010
    Caylee has been doing well and has been home for 3 weeks. She has started to double up on her physical and occupational therapy and will start getting speech therapy in the fall to help her with oral stimulation. She has started to eat stage 1 baby food for therapeutic purposes but they don't think she will ever be able to eat functionally. She will need the g tube for the rest of her life. We saw neurology on Monday and there was concern her skull is not growing. We are trying to stay positive because this was one of our biggest fears. Otherwise she has been well and is happy. Please pray that Caylee's skull is growing, and that she has no complications. Also pray that she will someday be able to eat functionally. The family may be moving soon, so pray they find a place that is safe and a blessing to the family. Also please lift up Martin, Caylee's father who suffered a seizure and fell, and had to be in the hospital for more than a week.
  • 28-March 2011
    Please pray for Dylan, who has not been able to get chemo for the last 2 weeks because his blood counts have been too low. Pray the counts go up by Wednesday, so he can continue his treatments.
  • 11-March 2011
    Dylan had a tough weeks last, as he was in the hospital for 4+ days with a fever and low blood counts. He also lost his best friend, AJ, who lost his battle with an adult for of Leukemia. Please pray for AJ's family as they mourn the loss of their young son. Also, pray for AJ's friends like Dylan who are struggling with the loss of a friend. Dylan's mother asked for me to pray for him, as this week he has the heaviest chemo, that has caused him severe side effects like nausea and high fevers. Pray that the nausea can be kept under control, and his fever stays low. They also are meeting with a specialist to discuss his radiation treatments, that will start in a couple months, which is cause for more worry and concern. Pray the family can give their burdens to God, and not to worry about what lies ahead (easier said than done- I know this from experience). Thanks again for your continued prayers!
  • 7-Feb 2011
    Please keep praying for Dylan, who is going through right now the heaviest chemo. Keep praying that his fever stay low, and his nausea is kept under control.
  • 15-May 2010
    We visited Caylee in the hospital on Thursday. Thursday morning, Caylee suffered a seizure due to they think from the surgery she had. She is still in a lot of pain. Please pray the pain goes away and her condition continues to improve.
  • 3-Feb 2011
    Update on Dylan, for the last 3 weeks Dylan has been unable to receive chemo treatments because his blood counts were at zero. I received a call from his mother last night to pray for him to be able to start up his chemo treatments. His blood counts were just elevated to 2,800 and he's begun the heaviest chemo treatments. Please pray for Dylan that his fever stays down and his nausea is kept under control. (Last time he received this chemo his fever was 106 degrees). Also, prayer for Dylan that his spirits are lifted and he can remain strong through this difficult process.
  • 24-Dec 2010
    Dylan has been in the hospital for the last few days with a fever and croup from his chemo treatments. He was really sad to hear he could not go home today, because his white blood counts are almost zero. He needs "a dramatic" jump if he is going to be able to go home tomorrow for Christmas(200+). Please pray for God to put his hand on Dylan, and bring up him blood counts. Also pray for his mother who will be with him, if he is unable to go home. Both are really bummed about being in the hospital again for Christmas, so pray their spirits be lifted and their time to be blessed, no matter where they are.
  • 17-Dec 2010
    After a really hard week of chemo Dylan was able to go home on Wednesday. He is currently going through some of the heaviest chemo, and it's really taking a toll on his body. for three straight days In the hospital he was very sick and unable to eat because he was nauseous thought those three days. Just please pray that he is able to hold down some solid foods. Also please pray that the chemo gets rid of the bad cancer cells, and his good cells and organs are protected. Lastly pray that his fever goes down and his blood count stays up.
  • 1-Dec 2010
    Dylan is starting to feel a little better. He was scheduled to start the ARAC type of chemo today, but was unable because his platelets and blood counts are to low. The ARAC is a really heavy dose of chemo, and the last time Dylan did it, his fever spiked to 106 Degrees, and he was sick for several days. They have to monitor his heart and eyes to make sure they do not swell up. Prayer Request: Please pray that Dylan's body strengthens and his blood levels come up so he can start the ARAC. Also, pray that his body reacts better this time around, and that his fever stays low and his blood counts remain high.

    Dylan is celebrating his 10th birthday next week, so please pray for blessing for him and his family.
  • 23-Nov 2010
    He had to be brought back to the hospital tonight because of a High fever and he has been throwing up most of the day. Dylan has been battling leukemia for almost 5 years. He was the boy that was 2 treatments away from finishing 4 years of treatment, when they found out he relapsed. He is now taking chemo that sometimes is 30-40 times the amount he was taking before. There were traces of it in his central nervous system which is why they have to be really aggressive with the treatment. I was able to visit Dylan today at the hospital while he was finishing up his chemo. Nurses had mentioned he was really pale and even green, and his mother was a little worried. Now he is back in the hospital, probably getting transfusions. He was really sick when I was there, but Dylan is a tough kid. Please pray that his fever goes down and the his nausea goes away right away. Pray that his blood counts stay up and that his body is protected. The chemo seems to be taking it's toll on him and his spirit is really down. Pray that his spirit be lifted, and also that his appetite returns. Pray that Dylan gets better soon, and can go home for Thanksgiving. That was something mom was hoping for, because he spent Halloween in the hospital.
  • 19-Nov 2010
    Dylan's blood counts were good enough to go home last week. He is getting ready to start the next phase of his chemo, and is a much heavier dose. Pray that his cancer cells go away, and that his good cells are protect. Also pray that his blood levels remain strong, and that his organs and body are protected from the chemo treatments. Also, pray that the amazing spirit of this 10 year old boy be lifted as he digests what lies ahead of him. I visited Dylan in the hospital, we hung out, he killed me in some video games. Last week, he bought the hottest new PS3 game Black Ops. He defeated the game in less than 24 hours.
  • 1-Nov 2010
    Please lift up Dylan in prayer. Pray that his fever goes down, and that his blood counts return to normal. also pray the chemo takes away the cancer and that nothing else grows. Also pray that his organs will be protected, and his spirit stays strong.

    Recently, Grace has lost her mother, and the family has suffered other hardships, including their youngest having to get 40 stitches after being hit in the head with a golf club. Please lift up the entire family as they go through this difficult times, and to God be the Glory.
Jasmine Gardner - 4 years old - neuroblastoma
28-Dec 2015:  In the beginning of September 2014 Jasmine began to have a high fever that would go away when Tylenol was given but would then come back as soon as the Tylenol wore off. Even though she had a high fever Jasmine was eating, drinking and using the bathroom normally so her pediatrician told me to keep an eye on her if anything changed and that she might have a summer bug. A week went by and Jasmine still had the high fever but was normal otherwise so I called the pediatrician again and they said Jasmine might be getting her 3 year molars in and to check her mouth to see if it is tender. We felt her gums and they were tender so we kept an eye on her again. The turning point was September 14, 2014 during Jasmine's Sunday school class. I peeked in on her and seen that she was sitting in a chair watching all of her friends run around the room playing. She said she was tired and her teachers said that she was not acting right. We took her home to rest. Monday morning September 15, 2014 Jasmine woke up and was tired, not hungry and just wanted to lay on the couch. This was unusual for Jasmine. I called her pediatrician again and told them that Jasmine still had a high fever and was now lethargic and not eating. They got her in early that afternoon. During the Dr. visit her Dr. asked if her belly hurt and when he pressed on her belly she said that it hurt. The Dr. ordered an ultrasound to be done that afternoon at L&M in New London. The ultrasound was at 5pm and by 7:20 we had gotten home. Not 10 minutes after we got home the Dr. called to tell us that they found something on Jasmine's kidney but they weren't sure what it was, and that we needed to go to the Yale New Haven Children's Hospital Emergency room because they would be waiting for us. We spent all night in the emergency room getting blood tests, urine samples, and ultrasounds. Around 4 am the next morning we were transferred to 7-3 pediatric hematology/oncology floor to await more tests. Throughout the week Jasmine had MRI and MIBG scans for diagnosing and was taken into surgery on September 18, 2014 for tumor biopsy, port placement, and bone marrow aspirate and biopsy. On September 23, 2014 Jasmine's Drs diagnosed her with having Stage IV High Risk Neuroblastoma cancer. She started treatment right away. Her treatment was to include 6 rounds of chemotherapy (she ended up getting 7 rounds), surgery to remove her tumor (surgery took 10 hours), a bone marrow transplant (autologous), radiation, and immunotherapy. During her 6 rounds of chemotherapy Jasmine was lively, and very active to the point of running through the halls yelling catch me! Right after her 2nd round of chemotherapy and before her 3rd round they did apheresis on her to extract her stem cells for the bone marrow transplant. The bone marrow transplant uses 8-10 million cells and Jasmine was able to donate over 50 million cells for transplant. When Jasmine was finished with her chemotherapy she was scheduled for surgery. She was taken into surgery the morning of February 6, 2015. The surgery took 10 hours and Jasmine was taken to the PICU (Pediatric ICU) for recovery. She spent 2.5 weeks in the PICU because she was unable to be extubated right away and had to slowly be weaned off the breathing machines. She was then able to be transferred to the 7-3 oncology floor to finish recovery from surgery where she got a candida (fungal) infection in the upper section of her surgical wound. The Dr tried to put a drain loop in so that the pus could drain but the loop re-opened her surgical wound. They placed a wound vacuum on her surgical site to aid in the healing of her open wound. She was able to go home March 26, 2015. Now because it had been so long since Jasmine's last chemotherapy in early January to the time that Jasmine was getting ready for bone marrow transplant she had to have an extra round of chemotherapy (round 7) in the outpatient clinic, in order to keep her cancer "at bay". Jasmine went in for her bone marrow transplant on April 17, 2015. The first week the Drs gave her high doses of chemotherapy in order to wipe out her bone marrow and essentially re-set her immune system. Jasmine received her new stem cells on April 24, 2015 and was considered neutrophil engraphed on May 1, 2015. Somewhere along the line Jasmine was given the Paraflu virus and was transferred to the PICU on May 4, 2015 where she was put under a tent to receive treatment for her paraflu. Unfortunately the treatment didn't work and Jasmine was put on a ventilator then switched to an oscillator. Because Jasmine did not have any lymphocytes to fight the paraflu it was able to attack and multiply making her very sick. She was placed on CRRT (continuous renal replacement therapy) which is a continuous dialysis and blood pressure medications. During her fight with the paraflu her body was under so much stress it re-activated the CMV virus. There were two distinct times during her stay in the PICU that her Drs said that there was nothing more they could do and that we should call our Pastor so that he could bless her body. Luckily the God me and my family serve is a gracious God and spared Jasmine's life so that she can be a witness to his glory. Jasmine's lymphocytes finally came in and she began her long and slow recovery. On June 24, 2015 while Jasmine was in the PICU she began her radiation therapy. She had radiation therapy everyday Monday – Friday for a total of 20 sessions. After the 1st day of radiation Jasmine was transferred back to the Bone Marrow Transplant Unit to finish her radiation therapy. After 98 days in the hospital, Jasmine was able to go home on July 23, 2015. We were able to enjoy a couple weeks home which was really nice. On August 10, 2015 Jasmine was checked back into the PICU to undergo the first cycle of her immunotherapy treatment. Her immunotherapy treatment consists of 7- 4 day treatment cycles. During the infusion of the antibody (unitoxin) Jasmine is on a pain PCA and closely monitored for adverse reactions such as low blood pressure, capillary leak syndrome, kidney damage, severe nerve pain and several other symptoms. During her 1st and 2nd cycles Jasmine tolerated the medicine well and was sent home shortly after the medicine was finished. The 3rd cycle however Jasmine had a bad reaction to the medicine which caused kidney and respiratory failure. The treatment had to be stopped, Jasmine was intubated and almost put back on continuous dialysis. After 3 weeks in the hospital Jasmine went home on September 23, 2015. Jasmine just had her 4th cycle of treatment. Her body did not tolerate the medicine so it was stopped and Jasmine went into respiratory distress again and was placed on a bi-pap machine to recover for 2 days. Jasmine was able to receive the last day of her treatment cycle at a lower rate and with an altered protocol. Which brings us to the today October 19, 2015. Jasmine has 2 more treatment cycles coming up. 1 cycle is scheduled for the 1st week of November and the last cycle is scheduled for the 1st week of December. She will continue to receive shots and oral medicine at home until the end of February. When all medication and immunotherapy treatments are done Jasmine will have scans (MRI and MIBG) and a bone marrow biopsy to see if she is in remission.

This treatment has been very long and stressful. We live in Norwich so the commute on a good day is a little over an hour. There have been times it has taken us over 2 hours to get to the hospital. After all is said and done, I wouldn't have it any other way. Yale New Haven is the best place my daughter could have been sent. We have come to know the hospital as a home away from home. The doctors and nurses are a part of our extended family now. There have been a few serious mistakes made but they were reconciled quickly. One of the mistakes ended Jasmine in the surgery room on Father's day for a port replacement. Another mistake was missing the candida infection and almost sending her home. A few other mistakes had to do with nurses not doing their job correctly and missing critical protocol steps. Overall, the doctors, nurses and staff have been very accommodating, friendly and have treated us with courtesy and respect. Through the grace of God we have made it through this past year and it's through God's grace that we are able to take on this step of treatment with the hopes and faith of a full recovery.
  • 16-Jan 2017:  Doing very well, always smiling.
  • 29-Dec 2016:  Had scans and all are clear.
  • 18-May 2016:  Jasmine just had her full body scans and tests. She is 3 months cancer free. Continue to pray she remains cancer free for the rest of her life.
  • 26-Apr 2016:  Jasmine is so far doing well! Let's continue to pray for good health.
  • 12-Apr 2016:  Jasmine has been doing well overall. She had to go to the hospital for a scan, but sounds like everything looked ok. Please continue to pray for Jasmine, that she will remain cancer free for the rest of her life, and that she will effect so many people with her story and amazing personality.
  • 19-Feb 2016:  Jasmine is getting a bunch of important tests today, to see how she is doing. This was the email from her father: "At Yale. Doing MRI, MIBG last one starts at 1300, then bone marrow test Follows. From August report: tumor bed is clear, bone marrow is clear, bone spots diminished emensly. So far tests look good." Please pray that the MRI, bone marrow and MIBG tests all come back clean. Pray that all tests are good news, and that Jasmine can recover quickly.
  • 10-Feb 2016:  Jasmine's dad has asked for some prayers for this week. Jasmine will be getting results from her scan from Yale soon. She has Stage 4 neuroblastoma, and has gone through immune therapy and a transplant. She has begun feeling good, even eating food and playing in the snow. Please pray that when the results come back, that she is still cancers free. Pray that the cancer will never come back, and that Jasmine and her family can return to a somewhat normal life.
Autumn Gilbert - 8 years old - Juvenile Diabetes
14-Nov 2013:  Mallory, Charlotte, and I went to visit Dylan at the hospital this week. We went to the art room, where the sick kids go to play and do crafts, to pass the time. When we arrived we met Autumn. She was running around the room and asked Mallory if she wanted to play football. After a while we found out Autumn, like Mallory, is 8 years old and in 3rd grade. Her legal guardian, Sunny, told us she has a pretty serious case of Juvenile Diabetes. She has had a hard time regulating her sugar and keytone levels. The pump they installed was not working right, causing her to have large spikes and drops in her sugar. Sunny told me she has endured seizures, and one time was lifeless, as they waited for an ambulance to come.

We would have never known she was sick, besides the hospital outfit. She was happy and energenic, but during the 2-3 hours we played together, she had her sugar tested at least 5 times. Her diet is critical in regulating the blood sugar, and is really hard with an 8 year old. Sunny said the foodbank is good and has food, but not the right food for Autumn. We plan to get them Stop and Shop gift cards to help them buy her the foods she needs.

Sunny also asked that we pray for her older brother TJ. Both kids have had a hard upbringing to this point, and TJ suffers from Deficit problems, is bi-polar, and has other sensory issues.

Pray that Autumn can receive a new pump, and that is will stop the spikes and dips in Autumn's sugar and keytones. Pray that none of her organs are affected, as the sugar levels can shut down organs. Also pray for TJ, that his condition can be treated, and pray for a blessing on these 2 kids.
Gracie - 3 years old - rare form of kidney cancer

Gracie is a smart, adorable 3 year old girl with a rare form of kidney cancer. She has already had one kidney removed. The doctors just found another tumor in her "good" kidney that has been growing during her chemotherapy. I don't have any more information about her or the disease, or a picture of her. As a distant friend of the family, I wish there was more I could do to help them. PLEASE pray for her, I know from first hand experience that prayer works!

Harold - 13 years old - relapse osteosarcoma
29-Aug 2016:  HaroldPlease continue to pray for Harold and family for continued strength!







  • 16-Jan 2017:  Please continue to pray for Harold - he is on palliative care. Yale was giving him a pill but it it is causing him lots of leg pain and difficulty walking. He also has developed a rash on his face. Yale has stopped the pill to address the side effects. Please continue to pray for him and his family, especially for his leg pain and rash. May they be blessed with a miracle.
  • 29-Dec 2016:  When you are sent home with one of these booklets.. #staystrong Family is in need of prayers, they have been told no other options are available. Please light a candle and let's pray for a Harold miracle!
  • 29-Nov 2016:  He is having severe pain and losing lots of weight. This trial chemo is making him so sick. He has been very scared and in lots of pain. Les pray they can help him with pain and him with weight loss.
    Message from mom-
    We are being admitted...... for nutrition reasons. H has lost a significant amount of weight, he has lost a lot within the last week it is becoming a concern with the symptoms he had yesterday, the fatigue, and extreme dizziness. My brother and I have been having to do everything for him. The doctors seen him and evaluated his weight and thought that IV drop at home would be the best option but first that have to make sure his levels are safe inpatient before we can do it at home. So he would be accessed and have a 12 hour drip at night to make sure he gets hydrated and his nutrients.
  • 22-Nov 2016:  Hello everyone. I want to THANK everyone for their prayers, kind words and well wishes. H started today at 10:30am at a slow rate and was pre-medicated with pain meds. Doctors increase the intake rate to max after the first hour and everything being stable. H had a reaction to the Leukine injections and started experiencing extreme bone pain, in his back and hips. Pain management came and increased pain medication to try and ease his bone pain. H started feeling fatigue and short of breath so he was placed on oxygen. He cried and then fell asleep and woke up in excruciating pain, screaming he couldn't breathe, when I realized that his oxygen level was at 100 I had to scream at him and to focus and breathe. He immediately started to cry, and said he was scared something wrong was going to happen. I explained to him that everything he's feeling is new and even though it is scary nothing was going to happen to him. Watching him have anxiety and fear that he wasn't going to make it was the worst. it is at that time you wish you can take away his pain. For the most part this therapy is EXTREMELY PAINFUL but I can honestly say he's doing good.
    This is an amazing young lady as well! Her name is Daniella and she makes cakes for children with cancer!
    Let's pray for Daniela who is 9 years old. she suffers from hemophilia which is a blood disorder and has to have treatment to help keep that in control. She's an amazing you lady. Makes phenomenal cakes, she started learning at the age of 4.
  • 18-Nov 2016:  Happy 14th Birthday Harold god bless you always and send you the miracle of healing. Harold got great news but still a long road ahead of him. Harold got accepted for the trial & we hope and pray it that once and for all he will be cancer free.
    From his mom:
    We should celebrate life everyday, waking up to a brand new day is always a blessing but today I celebrate this day with appreciation, love, strength and inspiration. I celebrate today reflecting on the last 14 years, on where I was then and whereI am now. As today I celebrate my first love, my teacher, my first born as he was given to me on this day so that I can protect, love and raise him the best way I knew how. I didn't know that it would be him to protect, love and raise me, as I strive to be better everyday. I always question myself knowing that I will never be what I thought being a great parent was-"Perfect", but I do know that I will never give up on you nor stop loving you. You my son continue to teach me all new things and I am forever grateful to be on this journey called parenting with you as my coach. HAPPY 14th BIRTHDAY TO MY KING!!! Victor Alvarez I love you.
  • 24-Oct 2016:  From Mom:
    And....... we're home!!!! (Playing Video games, that's how you know he's feeling better). FINALLY!!! We were given some home time before surgery on Thursday. Thank you everyone for your support and love.. many blessings and love one another.
  • 19-Oct 2016:  As of now it is decided that H will have no more chemo and surgery the 27th of October. Now we have no plan until after surgery. Last time H didn't qualify for a clinical trial because he still had disease left but if this time everything is able to be remove that clinical trial may be available. If all the disease is not removable we will... we have no idea. We will cross our bridges when we get there. Please let's pray for mom as they have been in the hospital for quite some time. I spoke with mom last night just to let her know we are here and want to help any way we can. Mom is very tired and worried about her handsome son H. She's a single mom with little help. Also has small children at home.
    *If anyone ones to send H some support for his up coming surgery
    Hi everyone H has a PO Box.. many ask how can you send something to H so for those of you who would like to send a birthday card which is November 17th or anything that you wish.
    H loves his video games, and H & M.
    Harold Alvarez
    PO Box 4404
    Stamford CT 06907
  • 29-Sep 2016:  Prayer Warriors!!! Please pray for our friend Harold. Harold has Osteosarcoma and is undergoing another surgery today at Yale. Please Pray for the the medical team, pray for healing, Pray for comfort for the family. We were so grateful to be able to spend some time with Harold at Curefest. Harold and family...WE LOVE YOU!! We will be praying.
    UPDATE: As many as you know this journey is the journey of the unknown. Seating on the edge of your seat everyday , not knowing what's going to happen next. As I packed my bags this morning and was prepared to leave for the hospital my phone rings. I answered and on the other line was the surgeon. My heart raced as getting a call is never good. We said our good mornings and he then he explained how they had a meeting this morning and reviewed H's CT scan from yesterday. As the doctors expected the worst it was to great surprise that the nodules on H's left lung that have been stable for the last 3 months are gone. Yes thats right the scans showed they're gone. The other tumors the are in the middle of his chest and right lungs have decreased in sized. Doctors decided that they would like to do 2 more cycles of chemo to kill off more tumor and then do surgery. His words are that they wanted to have a less morbid surgery for H. I want to thank everyone for their support, prayers and well wishes. This is great news as I always am prepared for the worst. I am grateful for the small miracles and the days that I have been blessed with. I am overwhelmed with such great emotions. So no surgery today!
  • 16-Sep 2016:  Let's pray that he stays strong and continues to do as well as he can. It's been a rough few weeks for him and his mom's car broke down and lots of emotions due to all news regarding Harold's health.
  • 5-Sep 2016:  He just recently went to Yale for a scan and his mom got updated with results. Over the weekend he was admitted for fever and pain. Please let's pray for a speedy recovery. Also for mom and family for peace, strength.
    So I sit here with so many emotions but over joyed. It's crazy to feel so happy but so sad and broken as this is a true journey of the unknown. So H's scans showed that he is responding to the chemo that had only 10-12% chance of working. As I asked how am I suppose to feel I was told "happy but as a doctor I don't trust this disease". That pauses me in my tracks but I think of how much time I've had with my precious H. So the doctors suggested to continue this chemo and surgery as they empathize that once chemo is done they don't know how aggressive the cancer will be. So I think wait H had surgery and relapsed in 3 weeks what if he under goes this surgery and relapsed so quickly is it worth putting him through pain.. It never stops the on going battle but my focus should and will be the fact that he's responding. (This was an update an hour ago) Harold had a fever this morning, so we will not be going home today... They are re -running labs and adding some additional test
Hector - 18 years old - Leukemia Relapsed

09-Sep 2014:  I do not know exactly the details, but Hector recently relapsed with his leukemia, and is going through hard times. His mother Rosa is also having a hard time with everything. Please pray that Hctor's condition improves right now, and that his blood counts go up, and any fever goes down. Also pray for Rosa, who is also going through a lot. Pray a blessing on Hector and his family.

  • 30-Oct 2014  Hector, 18 years old, passed away on Tuesday night after battling cancer for several years. He was doing good, but replased last year, and the doctors ran out of options. He is survived by his mother Rosa, who is deeply saddened by the loss of her son. Please pray for Rosa and all the family as they mourn the loss of this courageous kid.
  • 30-Sep 2014  I spoke with someone at Yale, and they asked for prayers for Hector. His cancer relapsed, and is progressing quickly. They do not think he is going to make it. Please pray that Hector's body will get strong right away, and his blood counts go up. Also pray for Rosa, his mother, who is having a really hard time dealing with the news.
Dillon Hinds - 15 years old - Hodgkin's Lymphoma

18-Apr 2011:  We met first Dillon's mother in the treatment room today. She heard us talking to Isabelle's mom. Dillon was there receiving treatment. Dillon was just diagnosed last month with Hodgkin's Lymphoma. Dillon was having a hard time breathing. He was not feeling well, and they thought maybe he had mono. They did tests last month, and discovered he had masses in his chest, actually pushing back him lungs. Dillon is doing his 2nd cycle of chemo, and has 4 total to do. He will most likely have to do radiation as well.

  • 11-Apr 2011
    Please pray for Dillon, that the chemo and the steroids shrink the masses in his chest. Pray that the chemo takes away the cancer cells, but that his other organs are protected. Also, pray for him and his mom and twin sister, as this is still really new to them.
Aiden James - 3 years old - Hypoplatics Left Heart Syndrome
Aiden James

Aiden was born without half of his heart. He, like Charlotte, had a stroke. The stroke affected some of his organs, along with his eye sight. We met him at Yale last year. Aiden and his mom moved to Alabama to be near Aiden's grandparents, who help with his care.





  • 24-Dec 2015  Aiden has been really sick lately. Pray that he will get better quickly, and that he and his family will have a great Christmas.
  • 01-June 2015  Aiden was at the Golf Outing as well. Aiden was born with half a heart, and received a full heart transplant about 3-4 years ago. He has been doing well overall, but his family is asking for prayers for a minor procedure he is having this week. Please pray that Aiden's procedure goes better than expected. Pray that everything is fine with him health wise, and that he recovers quickly. Also, pray for Aiden's grandfather, Rick, who requires a heart transplant as well, but is not eligable because of some other health issues. He is the primary provider for the family, so pray for healing for Rick.
  • 11-July 2014  On June 28th Aiden had his New heart birthday. It has been 3 years since he had his heart transplant, and his semi annual check up went fine. Please pray that he continues to stay healthy, and pray for the family, as they just moved to Massachusetts, closer to Boston.
  • 14-June 2013  We met Aiden at Yale a few years ago. He was born with only the left side of his hear t(Left heart-syndrome). He, like Charlotte suffered a serious stroke at a young age. At 3 Aiden had to be airlifted from Alabama to Boston's Children's Hospital. Samantha(mom) was told he would not be leaving the hospital unless he received a heart transplant. They were in the Cardiac PICU(scariest place on earth) for 1 year before he received his heart. He is doing amazing. Mom says he is "Thriving" and he is pink colored. Aiden always had blue lips, fingers, toes... because of the lack of blood. Please continue to pray that Aiden continues to thrive, and pray a blessing on the family, as they have sacrificed a lot to care for Aiden.
  • 28-March 2013  They moved back to Connecticut, and Aiden is doing great. His body has been very accepting of the new heart, and his overall health is good. I asked the grandmother how they were all holding up, and she replied "as long as Aiden is healthy, we are doing great". Continue to pray that Aiden remains healthy, and that his body continues to get stronger. Pray for a blessing on the family, and maybe a better living condition in the near future.
  • 14-Nov 2011  Aidan got his heart back on June 28. He did great. We have been out t of the hospital for about 11 weeks now. He's just doing wonderful and so pink. His mom says he's so pink, because his fingers, toes, and lips were blue due to the lack of circulation from only having a half of a heart. Please pray that his heart continues to adapt to his body and function properly. Pray that he is able to take all the medication required of him to help his body adjust to his heart. Pray that he continues to get stronger, and that they can go home to Alabama soon.
  • 24-Dec 2010  Aiden has been in the Cardiac ICU at Boston's Children's Hospital for 4 months now. His mom told be that he has been feeling so good, there is a possibility they can move him to the Cardiac Ward. This is a big deal, because his mother has been the only one who can stay with him overnight. She has slept in a small cot in the room with him everyday for the last 4 months. If he is healthy enough to move, they will have a lot more freedom to come and go. Please pray that he is healthy enough to move, and pray a blessing on the family, that has lived in the hospital for the last 7 months (Alabama and Connecticut). Also please pray that Aiden's mom get her Christmas wish, a new heart for Aiden.
  • 23-Nov 2010  Over the weekend I visited with Aiden at the Boston Children's Hospital Cardiac ICU. Aiden's health has improved over the last week, but his situation is very serious. He will not be able to leave the hospital unless he receives a heart. His mom has been sleeping on a cot in the hospital room next to him for 2 months, and his grandmother in a tiny area downstairs at the hospital. We were able to take Sam(Aiden's mom) out of the hospital to dinner and a Celtics game to get her off the hospital floor for a few hours. She has been outside of the hospital 4 times(once to get warm clothes), since they were a airlifted from Alabama to BCH. I thought the Pediatric ICU at Yale was tough. The things Aiden and this family go through in a day, would traumatize most people. Please keep praying for Aiden, but also lift up him mother, grandmother and their family, as they care for him while he is at the hospital. Pray for emotional strength for the mom, and that she gets her wish that has said to me several times, "I just want Aiden to come home with me."
  • 19-Nov 2010  Aiden is still at Boston's Children's Hospital waiting for a heart. Good news is he is healthy enough to be back on the Transplant List. His mom says he has been more awake, and tries to walk even though he is a little wobbly. I am excited because I will be visiting Aiden and his family tomorrow at the Cardiac Pediatric ICU. He is a great little boy, and I am bringing him his favorite thing BUBBLES. For those who do not know, Aiden was born with half a heart. At 3 years old he suffered a stroke (like Charlotte), but Aiden lost his vision. At Yale NH Hospital one day they noticed him following the bubbles as they were blowing them while drawing blood. His vision has now been restored, and according to his mom, he has better vision than her. Please keep praying that they can find a heart for Aiden, and that it will improve Aiden's health better than anyone could have ever imagined. Pray that his lungs stay clear and his health continues to improve. Also, please continue to lift up his mother and grandparents who have basically lived in different hospitals for the last 2-3+ months.
  • 6-Oct 2010
    His mom said he was still a little sick, but that his condition is ok. The main reason for the update is because I can tell his mother is very concerned about her son. They have been in and out of hospitals for 2 months or more, and his condition is just ok. Please continue to pray that the Casts stop forming in his lungs, and that the lungs get well enough for Aiden to make it through whatever heart surgery or transplant he may have to go through. Also, please keep praying that the find a heart transplant for him. She said to pray that "he can come (home) with me." Please take some time to lift up this beautiful little boy and his family as they go through this difficult time. Pray that they can have a peace about them, knowing God has his hand upon Aiden and that he hears our prayers. Pray for physical healing for Aiden, and emotional and spiritual healing for the family.
  • 29-Sept 2010  Aiden, who has been living in Alabama, has been emergency transferred to Boston Children's Hospital 2 1/2 weeks ago because of serious health complications. He has had a really hard time breathing because of "casts" forming in his lungs. His mother tell us that they almost lost him 4 times. Apparently the hospital had to shut down his lungs to "clean out" these casts his body is forming. He is now on the heart transplant list waiting for a match donor. (Aiden was born with 1/2 of a heart). His lung problem, however will prohibit the surgery if a donor can be found. Please pray for his lungs to improve, and that a donor heart can be found in time. Please pray for the mother and her family, doctors, etc. and for a miracle for Aiden, that his lungs will stop growing these casts, that his health will improve and that a heart donor can be found. God have mercy, and place His healing hands on Aiden.
  • 16-Aug 2010  Aiden has been sick for about 6 weeks. The sickness has something to do with his lungs. He has had a cold/flu, pneumonia and has been really weak. He was in the hospital in Birmingham for 2 weeks, and then came home for a few days. His condition had not improved, and they now have to airlift him back to Birmingham. I seldom speak with Aiden's mom, and knew nothing about him being ill till today. For Aiden's mother to text me, makes me believe they are very concerned. Please lift up Aiden in Prayer. Pray that right now his strength improves, and he has safe traveling mercies to the hospital. Also pray wisdom to the doctors and nurses who will see him on how to best treat him. Pray that the illness clears up, his condition improves, and that his organs are protected. Also pray for his mother Amanda and the rest of the family, that they might feel at peace and trust in the Lord.
  • 7-May 2010  Aiden is doing really well all things considered. He is not able to go to school this year, but his health has improved greatly. He has an oxygen tank, he only uses when he needs to. He does suffer from a lot of headaches that can make loose sleep and can make him a little irritable (so would you and I). Mom and grandma are not working in order to help care for Aiden, because they are back and forth to the hospital a lot. Aiden has a big procedure in late June to help repair a hole in his heart. They have to do a cathaderization to repair the hole, but it does not come without risk. Please pray that his health continues to improve, and the procedure goes well. Also pray that his mother can locate a car, so she is not so reliant on her parents vehicle.

    Please pray that Aiden's eye site continues to improve as he can now see objects like bubbles , and things from farther distances. Please pray that his body continues to strengthen as he and him mom (Samantha) will be traveling to Alabama to move there. Pray for safe traveling mercies, and for the trip to go better than expected. Also pray for the doctors and nurses that will be caring for Aiden when he is in Alabama.
James

10-Aug 2009:  James is 12 yrs old. He has been receiving chemo for his Leukemia. He was not responding well to transfusions and his white blood cell could was to low.

  • 16-Aug 2009:  James, after being posted on Charlotte’s web, made speedy recovery, and was released from hospital.
Jenna - 12 years old - seizures

6-Sept 2013:  She is twelve and is in the hospital. She suddenly had two seizures yesterday! The parents already lost a very young child previously. I do not know how. But they are wanting to hold on to trusting the Lord for Jenna to be healed. Please pray that the Seizures go away, and that the doctors can figure out what caused the seizures. Also pray the seizures did not damage her brain or any part of her body. Also pray for peace for the family and they are concerned for their daughter.

Patrick Kenney - 13 years old - Epilepsy
3-Feb 2011:  Patrick has epilepsy and has been dealing with seizure for a long time. He has had three separate brain surgeries to help prevent the seizure. Patrick has his challenges but has been seizure free since the last surgery. Please pray that he remains seizure free and his health continues to improve.
Joseph Knight - 19 months old
8-August 2011:  Caylee's mom asked me to send out a prayer request for her friend Colleen who just lost her 19 month old son to epilepsy.
LeAndre (Dre') - 15 Years Old - Transplant Surgery, Cancer
27-June 2014:  Grace asked me to send out a prayer for Dre, who she met with at Boston's Children's Hospital. Dre's mom Trista told Grace this week that LeAndre is in his final days. He has a rare form of cancer, that mutates several times, making it super hard to treat. Please pray for Dre and his family as they go through this tough time. Pray he does not suffer much, and that the family can have some sort of peace through the next few days/weeks.
  • 18-May 2015:  Dre passed away over the weekend. He was 14 years old, and he lost his fight with one of the rarest forms of cancer. He was an amazing kid, who always thought of others before himself. He raised money to help feed the homeless, loved the police and fireman. Please pray for his mother Trista, who is an amazing mother, who always was there for her son. She was his biggest fan, and advocate, and her heart is broken right now. Charlotte's Web is going to help out with the funeral services, but I will email out a link to their "Go Fund Me" account, to help cover the costs. Dre was a believer in Christ, so he has gone to be with our Lord, and with Dylan, and all the saints who have passed before him.
  • 15-May 2015:  Dre has been fighting through a whole bunch of complications, including not being able to stop his bleeding. He is at a critical time now, so we are asking for prayers. Through God all things are possible, so pray for healing for Dre. Also, please pray that he is not in a lot of pain. Please pray for his mother Trista, who has been at her son's side through this horrible fight with cancer. Pray for peace for her, Dre and their family.
  • 11-May 2015:  Dre has been in really bad shape for the last week. They have been unable to get the bleeding to stop, and he has all sorts of complications. He has not been able to move, he is in a lot of pain in his legs...and needs him blood counts to go up. Please pray for healing for Dre, that his pain will go away, and for peace for his family.
  • 7-May 2015:  Dre he has been bleeding for more than three days now. He has received platelets along with other treatment, but they still have not been able to control his bleeding. He is having problems with his stomach, and is unable to move right now. He was able to go home last night, but his mother is really concerned for her son. Please pray that the bleeding stops, and Dre's stomach and blood counts will get better. Also please pray that his breathing improves and that his pain goes away. And also please pray for his mother Trista, who is exhausted and heartbroken right now. Dre is auctioning off some of his pictures if anyone is interested, please contact me.
  • 27-Apr 2015:  Dre's mom is asking for prayers for Dre. He had to be admitted into the ICU yesterday, and she sounded really concerned about him. I will updae you when I know more, but please pray for Dre.
  • 20-Apr 2015:  Here is a facebook update from Dre's mom. I love her faith even as she has to watch her son suffer so much:
    UPDATE: so i have waited to post this..because I needed to let some people know before I posted.... they did Dre's MRA last night and got the results back this morning before we rounded. .. when they checked his Carotid artery. .it shows that we have an issue... all the specialist want a CT Angio.. the only problem is.. the contrast that is used is hard on the kidneys and Dre's took such a hit that they are worried about it putting him back into Kidney Failure.. ( for those who don't know Dre went into Acute Kidney failure before )..they needed to have the whole A Team meet today and go ober what's the safest plan for Dre. .. nobody wants to put him at risk... on top of all this..ID kept coming in because of his bruising. .they are concerned that when he went septis. .that it burrowed in his skin...so now the dermatologist is going to do more skin Biopsy's to determine hopefully whats going on... and last but not the very least. ..Dre's counts have been way off and all over the board. ..so with all that's going on... Monday is not happening...and hopefully we will have more answers about what they can do safely. .. he's to young to have to worry about heart attacks and strokes... ..Good night and sweet dreams to all of our followers, prayer warriors, fellow hero's, fighter's, and those that lost their battles but live on in all of our hearts...you may be gone..but you will never be forgotten. ...we are about to get platelets. ..and always remember: I can do everything through him who gives me strength. ( Phillipianes 4 : 13 ) "Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." ( Joshua 1:9 ) Good Night!!! God Bless
  • 7-Apr 2015:  Dre had a great Easter with his family, and was able to rest a bit. He is being transported today to Boston's Children's Hospital. They are planning to have a few surgeries there. The main one is to replace his port, where he gets most of his treatment and meds. The port need to be replaced, because Dre has has a bunch of infections. The good news is, a few weeks ago he was not strong enough to have the surgery. Please pray that all his surgeries go well, and that he recovers quickly. Pray that this will stop all future infections from happening.
  • 4-Apr 2015:  Dre is being rushed to the hospital. He has to travel from Vermont to, mostly likely, Boston. He is coughing up blood, and his blood pressure has dropped a lot. He cannot see out of one eye, and he is in a lot of pain. Please pray that his blood pressure will stablize, and his pain will go away. Pray he will get vision back in his eye, and pray for safe traveling to the hospital.
  • 2-Apr 2015:  Dre was finally able to go home recently from the hospital. He has been going through a really hard time. Pray that being home, his body can rest and get stronger. Pray his fever and discomfort go down, and that his spirit is lifted.
  • 20-Mar 2015:  Dre has been having a really hard time lately. He has 3 sets of cultures done, and all 3 came back positive for infections. This is bad, because Dre really needs to receive E.C.P blood treatments, to help with his overall health. He has been in and out of Boston's Childrens Hospital for weeks. He also needs to have surgery to replace his port(where he receives his meds), but the doctors have that on hold, because they are afraid he might not survive the surgery. His body is really weak. Please pray that Dre's infections will clear up right away. Pray that his body gains strength, so that he can have his E.C. P. treatment done ASAP. Also, pray that he can have successful surgery to replace his port, and that his pain and fever go away. Please pray for peace for Dre and his mother and siblings. This kid has such an amazing attitude throughout his fight, and really is an inspiration and an example of true courage.
  • 24-Feb 2015:  He has not been feeling good at all for a while, because he has been unable to receive platlets. It is because his skin is peeling so much from his treatments. Here is FB post from yesterday from his mom: Dre has officially slept for 32 hours.. he woke up long enough to go to the bathroom and went back to sleep..He's very weak...in pain... running fevers and just can't stay awake...have to go back to the hospital tomorrow at 1:00.. pretty sure we will be getting blood and platelets.
  • 7-Feb 2015:  Dre has been going through a really tough time. He has been in Boston's Children's hospital all week. He has been unable to receive the much needed platelets, and he has been feeling really week. Because of the condition of his skin, which is severely peeling all over his body, they cannot give him the platelets with a needle. To make things worse, his port (where he receives treatment) is not working properly, so they cannot use that either. He has been running high fevers for the last 2 weeks as well. Dre is in need of some urgent prayers. He desperately needs to receive platelets, which would help his over all condition. Please pray that his skin condition will improve dramatically, and the doctors will somehow find a way to give him his platelets. Please pray that his fever breaks, and that his organ function improves. Also, pray for his mom and his brother for peace, because they have to watch Dre when he is in such bad shape.
  • 29-Jan 2015:  Dre is at Boston's Childrens hospital since Monday. Please pray that his body gains strength, and that he can go home soon.
  • 25-Jan 2015:  Dre's mother is asking for prayers for her son. Dre has been in and out of the hospital for the last couple weeks. He has pneumonia and impacted sinuses, that will require surgery. He has been battling cancer for several years, and has endured so many set backs and side effects. Please pray that Dre's pneumonia and impacted sinuses clear up, and if he has surgery, it will be a great success. Pray his overall condition improves, his skin cracking gets better, and that his spirit is lifted. Also, pray a blessing on the family, and peace for his mother and brother.
  • 8-Dec 2014:  Dre is a great 15 year old kid from New Hampshire. He has been going through a really tough time lately. He met Grace at Boston's Children's Hospital in the transplant ward. Lately his liver and kidney function has not been working good, causing all sorts of side-effect. His skin is also cracking and pealing really bad from the radiation, and is really uncomforable. Please pray that Dre organs gain strength, and start to function much better. Please pray that his skin will stop cracking, and that his pain and discomfort will go away. Also, pray for his mom and brother, as it is really hard on them seeing Dre go through so much. They still have great hope that Dre will get through this, so please continue to pray for healing for Dre, and a blessing on this Christmas.
  • 26-Nov 2014:  Andre and his mother drove down from northern New England last week to see Grace and the boys. Grace met Dre and his mom Trista while at Boston's Children's hospital. Andre is still fighting his cancer hard. He made the trip down to CT to give Grace a gift he made, even though it is tough on him. Pray for healing for Dre, that his cancer will go away, and that his body is healed. Also, pray for peace for his mother Trisha.
  • 09-Sep 2014:  Dre met Grace (Dylan's mom) at Boston's Childrens Hospital while they were there. Dre has a form of cancer that they do not think they can heal. He has been rushed back and forth to the hospital from Vermont, with a number of issues. He has his arm cut wide open, and it is having a hard time healing. His health is also failing. Please pray for complete healing for Dre and his mom Trista. They have been through so much, fighting the cancer, and could really use the prayers. Pray that Dre's condition improves dramatically, and that the doctors will have wisdom on how to best treat him. Pray for peace and that Dre is not in any discomfort.
Logan - 7 years old
5-June 2013:  He is from Simsbury and is a cool kid I met today at CCMC. Taina and I were there for equipment evaluation. While we were waiting for the valet to bring us our vehicle, Logan came up to me and said, "Do you mind if I ask you a question?" I said, "No, not at all...what is it?" He asked me why Taina was in a wheelchair. I gave a simple explanation. His mother then said, "Logan, tell her why you were here today." He told me he had a treatment today. He said, "Chemo. I have cancer." You see I kind of knew this given the fact that he had little hair growth and the right side of the back of his head was completely bald. He then got up and skipped away to do some discovering while waiting for his car. Mom then told me that this was his second round of chemo and that he was doing well. Just before we left he came back to tell me that he and Mom were going fishing next at a pond near their home. He is about 7yrs old. Please pray for Logan's continued recovery.
Samantha MacDaniel - 18 years old - Non-Hodgkins Lymphoma
28-Nov 2012:  They discovered a spot in her chest, right near the same location where her original large tumor was found (10 cm). It is located in a spot near her trachea, and doctors discovered activity in the lymph nodes. They found a 1 in growth. Sam is scheduled to have surgery tomorrow to remove the growth to be tested. Needless to say Sam, her mother, and all the family are really concerned. Pray for peace for Sam and her family who are really worried about her health. She has been in remission and out of treatment for over 6 months. Pray that the surgery goes better than expected, and the growth is NOT cancer. Also pray Sam recovers quickly, and can go back to normal life(if that is possible). To make matters worse, her mom Kathy was in a really bad car accident and was in the hospital for a week. She suffer 4 broken bones in her leg, and is in extreme pain. Please pray that Kathy can heal quickly, and that the pain less every day. She is upset she cannot go to the surgery with Sam, so pray for peace for Kathy. I spoke with Kathy for 15-20 minutes, and barely mentioned she was in a serious car accident. All she was concerned about was her daughter Samantha and this growth. Please take the time to pray for them all.
  • 18-Oct 2012:  Pray that the spot in her chest is getting smaller, and that it is nothing serious. Give the doctors the wisdom to do the best things to treat her. Also pray for her family and Sam that they can have a calm about the situation.
  • 15-Oct 2012:  Sam is at Yale HN Hospital today to get results from a PET scan she had last week. They saw a spot in her chest, but they do not know measurements.
    Over 3 years ago they found a 10cm tumor in her chest, which turned out to be non-hodgkins lymphona. So obviously the family is worried. She finished treatment this spring.
  • 8-Nov 2011:  Sam has been dealing with a tremendous amount of pain in her legs. She found out recently, that there is a little hole in one of the bones in her legs. Please lift Sam up in prayer, that her pain goes away, and that her body continues to stay strong throughout the treatments. Pray that she will continue to feel better, and that she can go to school full time.
    Also, this Saturday, November 12, the family is having a Ziti Dinner at the VFW in Westport, CT from 5-9pm. It is $25 and everyone is welcome. Call my cell at (203)-232-7172 or email me back if you want to come, or would like to make a donation. The proceeds are going to help pay bills, and to try and finish the addition we have been working to get them into, so Sam has a clean area of her own to sleep.
  • 18-Apr 2011:  Sam is doing ok, but she is having a hard time even getting out of bed some mornings with no energy. She in the past has had severe pain in her legs and body from the steroids they believe. Sam's mom said Sam's blood counts have been to low for her to do chemo, and that they are concerned about that. Pray that her blood counts go up so that she can receive the chemo she needs. Also pray that she starts to feel better in the morning, and throughout the day.
  • 1-Dec 2010:  Samantha has been dealing with some severe pain in her chest, enough so to be brought to the hospital at 2:30am thanksgiving night. Doctors really don't have a definitive answer to where the pain in from. She had a 10cm mass in her chest, that has since been reduced from the steroids. Recently Sam has had pain throughout her body, which some can be attributed to the steroids, but it is really painful. Her mom said they were driving the other day, and Sam had to arch her back in the car, because that was the only position that did not really cause her pain. She said that even breathing hurts. Please pray that the pain will miraculously go away, and that Sam will not have to deal with the debilitating pain. Also pray that her blood counts stay high, and for wisdom for the doctors on how to best treat the pain. Also, please lift up the family as they go through this difficult time.
  • 23-Nov 2010:  It's been a great week for Charlotte's Web. On the way to the hospital I stopped by and me Samantha(Sam), her mom, and a couple of her brother.

    Sam is a great 16 year old kid, who was diagnosed with Lymphoma in february. She was having a hard time breathing, and after her mother insisting her daughter was not well, they realized the tests they were doing were canceling each other out. This did a scan of her chest and discovered a 10cm mass in her chest. She has been going through chemo and her blood counts were not going up. Her mom told me today, that the next day after we posted the prayer request, her blood levels shot up. We both were emotional, and she even showed me the test results.

    I told her we would keep praying for Sam and her. Kathy(mom) is raising 6 kids(5 at home) on her own, works 2 and 3 jobs, and now has a sick child going through chemo. She, like every mother on Charlotte's Web, is a strong women, but her burden is great. Please pray that Sam's levels continue to go up and that chemo takes away the bad cells and protects the good one. I also lift up mom and all the siblings, as they to carry the burden of having a sick sister, and probably are having a hard time dealing with everything that comes with that.
  • 19-Nov 2010:  Samantha's mom called me today about her 16-year old daughter and posting her on Charlotte's Web. Samantha has T-Cell Lymphoma and her blood counts are really low. They are concerned because her blood counts have not come up, and she cannot begin a 16-month maintenance program until they do. Samantha had a 10cm mass in her chest, but steroid have helped to reduce it, and the last CT scan was good. Please lift up Samantha in prayer. Pray that her blood counts will come up to a good level, so she can begin the next phase of her maintenance program. Pray that her spirit be lifted through this time, and that the chemo gets rid of the bad cells and protects the good ones. Pray for healing and for a feeling of peace about her and her entire family (5 siblings) as they go through this difficult time. And pray that the cancer goes away and does not come back, and for a full recovery for Sam.
Candace Marcy
7-Feb 2011:  A letter from friend of Candace's:
As for Candace-the brain surgery HAS STOPPED HER seizures!! She needs to gain weight though-she lost a lot since her surgery-to be able to go home. Continue to pray for no seizures and weight gain.
  • 20-Jan 2011:  Candace went into 8 hour brain surgery this morning. She is at Yale NH Hospital. The surgery is an attempt to stop her severe seizures. Please pray for a successful surgery and recovery and for the family's strength.
Marik - 13 years old - osteosarcoma/hearing impaired
2-Aug 2016:  MarikBelow is a post from Marik's mom after they found out he had relapsed. Marik lost his leg to cancer a while back but was in remission until they found out on June 23rd. Here is the post:
"3 Years. 3 Years of waiting, worries, prayer, hopes.. Today we heard the word you never want to hear, Replase. Marik has a large tumor in his lower right lung. Surgery is scheduled(late June), and the fight begins again. We are shattered, scared and broken today. Marik is most scared about me(mom). Pray, send all the love you can, we certainly need it." - June 23rd. Please pray that the surgery went well, and that they could remove all the cancer. Pray that they caught it early before it spread, and that it can be treated. Pray for peace for Marik and for all his family, as they are devastated by the news. Also, pray for wisdom for the doctors how to best treat this cancer, and pray he is someday cancer free to good.
  • 16-Jan 2017:  Update from mom:
    Hello #TeamMarik. There is a season of change upon our family. Yesterday was my husbands last day in the Navy. He begins his new job on Monday, with extensive travel for training over the next few months. We will still be covered under our previous insurance for the next 6 months (Thank GOD)! TriCare has not approved Marik's treatment at Sloan Kettering, and it looks pretty bleak. We have about 1 week to hear, then we must either proceed as cash pay ($2600 initially and over $100,000 by completion) or opt out due to inability to pay. Stressed doesn't even describe my feelings. As a parent I want to give my son the best of everything. The best chance at survival. I don't want money to be an inhibitor in his chances at living a long life. Unfortunately, this is America. In America, without money, your child can and will die without treatment. I feel incredibly blessed that we have made it this far. There is much uncertainty in our future, however I will continue to push forward and expect the best outcome. I have prayed for Gods perfect will all along. I don't know where that leaves us, but hope with all my heart, that it means a miracle for my Marik. Please continue to pray for all the changes our family is facing. So many of them are good, and we certainly don't want to undermine the many blessings that we have been given. So much change and uncertainty. Pray for my sanity, as I am by nature an anxiety driven soul.
  • 29-Dec 2016:  Update from mom:
    Marik is a thinker/worrier. He most certainly gets that from me. One way that I try to help him through this process, is to tell him several days beforehand about appointments, scans, events. He gets very frustrated when I just announce things last minute. So for several days beforehand, he knew that we were heading to NYC yesterday. However, he woke up in an awful mood yesterday. He was mad, and didn't understand why "everyone" was in our home ready to leave. He finally yelled "Why is everyone going to the hospital with us?!" Oh man. He thought we were going to NYC to begin the trial. I hugged him and apologized. I explained that we weren't going to the city for treatment, but to have fun. I told him that we would talk about that (the trial) again before we go. His response? "I don't want to talk about it again. I said I want to do it, that's it." So, that is that. The moral of this story is that these kids are tortured. Not just physically, but mentally as well. They are constantly faced with decisions, desperately grasping for hope, happiness, joy. They spend their days mentally preparing for the next poke, surgery, scan, vomit. It's exhausting. Please pray for our family, our son, our daughters. Scans in one week, then a new hospital, new doctors, new protocol, all hopefully tinged with a little bit of #hope. #TeamMarik
  • 29-Nov 2016:  Update from mom last week-
    It's been a pretty low key couple of days, and in the cancer world, that means awesome! Marik isn't eating all that well, but hopefully our big feast tomorrow will change that. We also surprised him with his Nana, and Great-Grandparents that flew in from Louisiana! Lots of hugs and kisses, and Mawmaw's cooking, can't be beat. Can you tell they are cold? Lol #TeamMarik #TheGrands #FoodTime
  • 18-Nov 2016:  Update from Mom-
    This little man. He has been trying so hard to eat. He is taking 3 different medications to increase his appetite, and he lost another 3 pounds. He is down to 94lbs. Please pray his appetite improves, pray he is able to convert his hunger into actually eating meals. Unfortunately his body is working so hard to kill cancer cells right now that his metabolism is actually high. He is quickly burning all the calories he is able to take in. His color looks great today so I don't think he will need blood, but I am worried about his platelets. We will know about those in a few minutes. Keep praying, keep hoping, keep believing. If only I could share my extra pounds with him! #TeamMarik #EatEatEat
  • 26-Oct 2016:  Please pray for Marik, he had a fever on Monday.
    Message from mom-
    Sigh... tachycardic, low blood pressure, fever, congestion. Bleepity bleep bleep bleep!!!! #TeamMarik #Nooooooo
  • 19-Oct 2016:  We had lots of concern with Man yesterday. He was extremely tachycardic, with his heart rates in the 120-160's all day, after receiving 2 units of blood. Around 7 last night they did an EKG and that was unremarkable. So, they released us to come home on "mommy sense." It's like spidey sense, but for cancer moms. We got home about 9:30, and he proceeded to vomit, a lot. I won't lie, he looks atrocious. I will be watching him like a hawk for the next few days. We have clinic on Friday morning, unless something changes. Home is always better than the hospital, so I'm praying for improvement and smiles. He was happily greeted by his pack. #TeamMarik #PuppyKisses #PaleDude
    Please pray that Yale can figure out a way to stop the nausea, improve the heart rates.
  • 16-Sep 2016:  Update from Mom:
    Little Man isn't feeling too hot today. He is exhausted, full of bruises, and just generally feels rough. He has lost so much weight, and it's really starting to show. Praying he starts eating before chemotherapy next week and we lose the opportunity. (He never eats inpatient.) Sometimes I just stare at him sleeping and wonder how I got so lucky. I'd choose him every time. #TeamMarik #GoGold
  • 5-Sep 2016:  Update from Mom: Little Man is feeling relatively well considering he just completed 5 days of chemotherapy and developed a blood clot. He is definitely on the weak side, and is sleeping more and more, but has managed to eat at least one meal a day, which is awesome. He is currently on post hydration and we will draw his Anti-Tenase level (clotting factor) at 11:00. It should be back some time this afternoon and will either let us go home, or trap us here for a bit longer. We already have 2 clinic visits scheduled for this week to check as well. If you are spending today with your family and friends, please appreciate every minute. Tomorrows' aren't guaranteed. Happy Labor Day #TeamMarik. #PediatricCancer
    Please let's pray that they are able to control the blood clot in his arm and that he is able to go home soon from the hospital.
  • 29-Aug 2016:  Please pray for Marik that his Chemo he receives goes well with minimal side effects and that he is able to go home soon. Marik should be starting his first day of 8th grade today. Instead he is fighting for his life. Aside from being tired and some bruises, he is feeling pretty good. Just in time for his chemotherapy admission on Wednesday morning. He is none too thrilled about his 7 day hospital stay, but we will do what we can to make the best of it. So, for now I'll take small blessings, like sleeping late on the first day of school! Have a great year American School for the Deaf! #TeamMarik #LastYearofMiddleSchool #BraveWithBruises #ASDTigers. This is a picture of him at camp.
  • 22-Aug 2016:  Marik is going to camp this week, which he loves. Mom is really concerned for his health and safety. Please pray that Marik's stays healthy and is full of energy for this week at camp. Pray that he has a great time at camp, and pray for peace for mom and the family, as they are worried about him.
  • 15-Aug 2016:  Update from Marik's mom: Some days there is so much pain and chaos that I can hardly catch my breath. Other days I make muffins and French fries, and listen sneakily to him laughing from outside his door. Today was bad, tomorrow will be better. I said it a thousand times yesterday, I repeated it a thousand times last night. Sure, the bad is still present, but so is the good. It's Skittles and Powerade, and giggles when I dance after he eats. It's finally sleeping late and waking up with a smile. Thank you from the bottom of my heart for all the love. Thank you for sharing my posts and strengthening our support system. Thank you for the prayers and kindness. Thank you to a very special Momma whose "Quiet your Mind" message came just when I needed it most. We are making a difference, you are making a difference. #TeamMarik #Brave #ShareForAwareness
Marisol - 2 years old
20-Jan 2014:  Please pray for Marisol. She is a Yale NH Hospital, and has been suffering from seizures. The doctors do not know why they are occuring. She also has down syndrome. Please pray that the doctors can figure out how to stop the seizures. Pray that Marisol will recover quickly and not have any brain damage.
  • 28-Feb 2014  The family is still having a hard time treating Marisol. She keeps running out of the house, and has other issues she is dealing with as well. Please pray for peace for Marisol and her family. Pray they can figure out how to treat her, and pray for a safer, better living condition.
  • 10-Feb 2014  Marisol is 2 years old, and has been suffering from seizures. Pray that the seizures stop, and that the family can get the help they need to better care for Marisol.
  • 03-Feb 2014  I do not know a lot about Marisol. I just know she has been having seizures as well. Pray that the doctors can treat the seizures, and that they will stop. Pray for peace for the family.
Oliver Massey - 1 year old - Sedated/Not Breathing on his own
20-Feb 2015:  Oliver went into the hospital a couple days ago for some routine tests. They had to sedate him for a long time to do a series of tests. When they tried to take him out of sedation, he was not breathing well on his own. That was more than 24 hours ago, and his condition has quickly gone down hill. Oliver is unable to breathe on his own, and has to stay on a respirator. They are concerned they may have to keep him further sedated until at least Monday, if his breathing does not improve. They also believe he has contacted an infection, that may be causing more problems. Please pray for Oliver right now that his lungs will gain strength, and that he can start to breathe on his own. Pray for wisdom for the doctors, to know how to best treat Oliver, and that the steps they take will improve Oliver's condition. Also pray he can soon come off the respirator, and that his infection goes away. Please pray for peace for his mom and dad, and the family, who are really concerned for Oliver's health.
  • 24-Feb 2015:  Oliver is doing good, and was able to come off the respirator on Sunday. His breathing has improved dramatically, and they hope to be able to go home soon.
  • 22-Feb 2015:  PG (dad) and Jane (mom) are asking for prayers this morning. They are taking the tube out of Oliver's stomach, and will be taking him off the respirator. Please pray that when they take him off, he can breath on his own, and that there are no side effects from being sedated so long.
Nicholas Matos - 8 years old - ALL Leukemia
27-June 2014:  I was introduced to a family that has an 8 year old son who was diagnosed with ALL leukemia on June 16, 2012. I spoke with his mom Tonya yesterday. He went through the treatment for many months, and currently is in remission. Just the other day the family had a scare. Nicholas's fever spiked, and his counts were down, causing him to be in the hospital for a week +, getting tranfusions...The family is in need of financial support, as they have been in and out of treatment for 2 years. Please pray that Nicholas's condition improves, and that his fever stays down, and his counts go up. Pray for blessing on the family, that can help them out both emotionally and financially. CWoP will help out a little, but they need more help, and for thier situation to improve. I will get more info next week, when I meet the family.
  • 28-June 2016:  Good news for Nico. He had his port removed last month, and is in the maintence phase of his treatment. Pray he remains healthy, and that the cancer never comes back.
  • 23-Sep 2015:  Nico has his final spinal tap tomorrow, Please pray that the spinal tap comes back clean. Pray Nico can finish his maintenence, and that the cancer will NEVER come back.
  • 19-Sep 2014:  I heard Nico had to be admitted into the hospital recently. Please pray that his blood counts come up and that his fever goes down. Pray he can go home soon, if he is not already there.
  • 11-Aug 2014:  Nico went last week to have a spinal tap and bloodwork done. He has not been feeling great, and has some pain in his body. He has also had low blood counts. Please pray that Nico's spinal tap comes back clean, and that his blood counts go up. Also pray that the pain in his body goes away, and that he does not get anymore fevers.
  • 17-July 2014:  Nicholas' counts finally came up. Pray that his counts remain high, and that his fever stays down.
Karmen Melendez - 3 months old - Ohtahara Syndrome(Rare Epilepsy Disorder)
2-April 2015:  Hi my name is Denise Melendez and my now 3 month old son Kamren Jace Rodriguez was diagnosed with a rare epilepsy disorder, called ohtahara syndrome, when he was just 8 days old. He has been hospitalized since December 31, 2014.

Once admitted to Yale Childrens Hospital numerous tests were done..ie. Lumbar taps, blood tests, MRI, EEG's, and genetics testing. This form of seizure disorder has a very poor prognosis and no cure. Most children won't live past their first year of life, with poor feeding, and are severely mentally handicapped.

For Kamren one of his complications is respiratory. His little brain doesn't tell him to breathe, because of his neurological condition. He was intubated for 2 months, and the doctors were telling me to let him go, that he would live off a machine for the rest of his life. I was devastated. How could I let my baby boy just go. I did research and talked about a tracheostomy. Again the doctors were not in favor of it since he would live off a ventilator, and what kind of quality of life would that be. As a mother I just couldn't live with myself just letting him go without trying and giving him a chance. So he had the surgery on February 12, 2015.

We are now at Blythedale Children's Hospital in Valhalla, New York. Here we are learning to care for him, so that we can bring him home. We are still not seizure free. Kamren is on Topamax and Phenobarbital, but he still gets about 10 seizures a day. I am researching about the cannibis oil, CBD which I heard helps reduce seizures upto 90%. Colorado is one of the few states that it is legalized, and patients can receive this drug to help seizures. I've read cases where it has helped.

I pray that one day they will find a cure to this horrible disorder. I pray that the medical cannibis oil can be legalized here in CT so that patients can benefit from its use. Most of all I pray that Kamren will live a long fruitful life with his family. He has a big sister, Leia, who can't wait til we are all home as a family again.

I'm so heartbroken as a mother dealing with all of this. I did everything right during my pregnancy and my poor baby came out with this horrible disease. The worst part is not knowing what caused it...lots of genetics testing has been done, but so far what has come back (because it takes months) has come back normal. More research needs to be done for this disorder. I hate seeing my baby boy going thru this. No baby should have to go thru what he has been through. I pray all day everyday in my head, aloud, in the shower, wherever so that God can hear me and please heal my son. Thru him nothing is impossible. I ask him to please have mercy and spare my son Kamren.

Please pray for him I am in desperate need of a miracle. Please.
Miguel
14-June 2013:  I had a prayer request for a boy named Miguel. He had to have a full lung transplant awhile back, and is in need of prayer. He is doing good so far, but pray he continues to recover, and that the lung adapts well to his body.
Natalie - 6 years old
9-Oct 2010:  Natalie is 6 years old (and has a twin sister, Olivia) and underwent the same craniofacial surgery that Justin had last year. It did not go well and she is in ICU on machines and fighting for her life. Please pray for strength for little Natalie and for her family as well. To God be the glory.
  • 3-Nov 2010  Our little friend Natalie that had craniofacial surgery about a month ago is still in trouble ... please pray for her health ... Monday's update from Natalie's mom: She has to be sedated tomorrow to put in a temp line for infusion, blood work. The doctors have no clue as to the rash and cause of the infection, disease and immunology coming thru. It is one mystery after mystery. Please keep this family in your prayers, They are exhausted in every way imaginable. Pray the Lord gives the doctors wisdom how the best treat her infections and diseases, and that they start to clear up. Also pray for emotion and physical strength for Natalie and the entire family.
Nina - 4 months old
13-Jan 2014:  We have a prayer request for a 4 month old girl, Nina, who has been having constant seizures every 30 minutes. Just the other day, they stopped for 6 hours. Pray that the doctors can figure out what is causing the seizures, and that it is something treatable. Pray that the seizures stop, and that Nina's brain is not damaged in any way. Also pray for peace for the family, as they deal with seeing their child suffer.
  • 16-Apr 2014  Nina's seizures have almost completely gone away. The family's faith has remained, and even grown stronger through their tough times, when Nina was having over 50 seizures a day. Pray the seizures completely go away, and she continues to develop.
  • 26-Mar 2014  Here is a letter from Nina's family friend: I talked yesterday with baby Nina's grandma: she is almost seizures free, for almost two weeks now. She is not even on all the medications that she was, since they were giving her very high dosages for five months. Even without the most of the medicine, she is getting better. She can hold her head for a while, she shows interest about the surrounding environment. The family is very encouraged and very thankful for all the prayers. My prayer is that we'll hear some good news about the other precious little ones as well. Please continue to pray for Nina, that the seizures completely go away, and do not return.
  • 17-Mar 2014  From Inna (Nina's mom): Last Sunday night Nina went to sleep without seizures. She has had 3 seizures the entire week. She is getting stronger every day. The doctors are astonished at what they see! "Behold ye among the heathen, and regard, and wonder marvelously: for I will work a work in your days, which ye will not believe, though it be told you." Hab. 1:5 They still, however, tell us that this is going to be a lifelong struggle since she had an underlying "problem" with her brain. We ourselves continue to be amazed and can't seem to find words to express our thanks and praise to our Heavenly Father.

    We've been sharing with our doctors about our family in Christ and how we are supported and upheld by all of you, especially with your prayers. They are amazed to hear when I tell them that there are people praying for us around the clock.
  • 28-Feb 2014  Here is a letter from one of Nina's friends. Looks like the doctors cannot figure out how to best control her seizures. I talked to Nina's Mom: no changes, she still gets the seizures. They need a lot of prayers as well. Doctors have few ideas about the next steps, but they cannot agree which one would be the best for Nina. Please pray God gives the doctors the wisdom to best diagnose and treat Nina's condition. Pray they can figure out how to stop or reduce the seizures.
  • 10-Feb 2014  Nina's mom has said the seizures have come back, and that they are coming in clusters. Pray the doctors can diagnose the problem, and that is can be treated. Pray that the seizures stop, and Nina's brain is not damaged from the events.
  • 03-Feb 2014  Nina and her parents went to Boston on Friday and met with an epilepsy Dr. They have been praying, no surgery, no meds. She has no weakness on the RT side of her body, and are tableing surgery discussions for another 6 months. He offered to let them wean her off all meds as long as the seizures don't get worse in the process! They said little and asked for basically nothing. The Lord went before them and paved the way!!! Nina had a hard day yesterday (Sunday), lots of seizures including in clusters. They are now occurring when she is awake, not just when she goes to sleep. They seem to bother her and cause Nina to cry. THANK YOU for your ongoing prayers and bringing her before our Lord!!!! It is a good thing they can put off the surgery. Pray the doctors can figure out how treat the seizures and that they stop. Pray her brain has no damage, and that they can cure the problem.
  • 30-Jan 2014  From a friend of Nina's family: "I have some rejoicing news... Nina has been seizure FREE for 5 full days! She is making some choking noises with a hoarse cough that Inna isn't sure the cause of, but other than that Inna is seeing her little Nina return to her in play, smiles and eye contact! I do believe we are all being given the privilege of watching God's miraculous hand of healing!!!!!" Please pray that Nina's seizures never come back. Pray that her body continues to get stronger, and that her cough goes away!
Drew Niro - 6 Years Old - Kidney Cancer
20-Feb 2015:  This is a letter from the mother of a family about their 6 year old son Drew who has kidney cancer. She sent this e-mail out to the entire faculty and staff at Berlin High School:

“I wanted to send out a quick email to extend my thanks for thinking of my family during this difficult time. Although I am new here, everyone has offered their support and we can not thank everyone enough. I realize that quite a few of you are not aware of exactly what has been going on in my personal life, but you are still there to help and support me. I have never had to be on the receiving end of support like this before and it is humbling. My husband and I feel that "Thank you" does not begin to cover what you have done for us. As we get through this with our son we plan on paying it forward and being there to help others as you have done with us. Your support means so much and helps us put one foot in front of the other on the difficult days.

If you have not heard the specifics about what has happened, here is a very brief summary of our last few weeks. Our six year old son, Drew, started complaining of left side pain a few weeks ago. Within a day the pain was so bad at times that he wanted to be carried from room to room. If Drew was sitting still, he was his normal, giggling self. He was eating well, but developed a fever. His doctor was concerned and we started some tests. He had an x-ray and lab work done, but neither showed much to be worried about. As the doctor, my husband, and I were still very concerned, an ultrasound was scheduled. This ultrasound showed a tumor in Drew's left kidney. In less than a week from his initial pain Drew had his kidney and a 10 cm encapsulated tumor removed. In the week that followed we started to get his results back that it was a Wilm's tumor, which is highly curable, and that his was stage 3. Drew has already finished his radiation treatment and has begun chemotherapy. He is doing well, but has his good and bad days. We have a long road ahead of us, but are optimistic about the eventual results of his treatment.

I want to thank you all again for everything, it truly means so much.”
  • 10-Aug 2015  Drew was diagnosed 6 months ago with some form of Stage 4 Cancer. His mom sent me a letter, thanking us for the prayers/help, and to let us know, Drew has finished his Protocol. Please continue to pray for Drew. Pray that his cancer goes away, and never comes back. Pray his body will gain strength, and that he can go back to living a "normal 7 year old boy's life".
Christian Nyberg - 7 years old
Christian NybergChristian was admitted into Yale Hospital over the weekend. His parents (Jenn and Gary) brought him into the hospital because he had what they thought was an ear infection. The initial diagnosis was Non Hodgkin's lymphoma. After several tests he was recently diagnosed with T Cell Leukemia, and has a mass above his heart. Because they like to treat the cancer right away, he has already begun to receive chemotherapy. Please lift Christian up in prayer as he goes through this tough time. Pray that the chemo takes out the leukemia cells, and protects the good cells. Also pray that his organs are kept safe, and his blood counts stay at a good level.

Also pray for Jenn and Gary as they go through this roller coaster. Pray for their emotional and physical strength so they can be there for Christian.
  • 30-Mar 2010:  Christian's mom told me the other day about an 8th Grade Boy at Christian's school that has leukemia. He has a different type of leukemia, and his condition is really bad. They are not sure if he is going to make it. I do not have a name or much more info on him, but please be lifting him up in prayer. Pray God puts his hand upon him and shows himself strong. Pray that his condition improves, and to God be all the glory.
  • 19-Mar 2010:  Christian continues to do fantastic. He is in remission, has been for almost 3 weeks. He is in a heavy chemo regimen now, four days a week, but it’s all to make sure that they have gotten every last leukemia cell. He had surgery Monday to implant a port for chemotherapy and removed his PICC lines.
  • 16-Feb 2010:  Just wanted to let you know we received a call from Christian’s Dr tonight …HE IS IN REMISSION…..It is an absolute miracle……

    They did a repeat bone marrow biopsy today ( they did one last week) and confirmed they saw by eye and by machine…no leukemia cells in his marrow. This blood work was excellent today…For example- when he first went in, his platelet count was 24K ( Normal is 150-300K) it is now 204.

    Although this is the very best possible news, we are still on track for the same course of therapy. He received two doses of chemo today and will again Next Tuesday. Tues & Friday’s are his clinic days. We stay on this course for a few more weeks and then he will be done with the “induction” stage. The last few days, he has been really good. The steroids have his mood up and down and he has gained 1.5lbs this week. ( Which is great bc he lost 8lbs ).

    Many thanks for the positive thoughts and prayers!
Rebekah Pavelick - 21 years old - Cerebral Palsy, Seizure Disorders and Chronic Pain
16-Jul 2014:  Rebekah is now 21 she was born 12 wks premature, twins A, her brother twin B (Steven) went home to our Lord at 8wks. Rebekah has celebral palsy. Seizure disorder and cronic pain ( praise Jesus) is being healed of. Due to the pain and seizures she could could no longer attend school she was taking precollege classes. She lives home with me and dad. She has an incredible love and knowledge of God and his word. We are going to help her out so she can go to a camp called Special Touch. Please Pray that Rebekah's chronic pain and seizures get under control, and that her overall condition improves. Pray that she can go to camp, and that she has a great time there.
  • 17-July 2014:  Rebekah is going to be able to go to the Special Touch Camp in August.
Summer Pybus - 4 years old - Type 1 Juvenile Diabetes
Summer PybusSummer is Besties with my girls Mallory and Charlotte. She was recently diagnosed with Type 1 diabetes. It is hard to control her blood sugar, and there can be side effects if her sugar goes to low. Please pray for Summer, that her doctors and parents learn how to best manage her diet and the insulin. Pray that her sugar levels will level off, and will not spike in either direction. Also, pray for her parents, who have to poke her several times a day, for peace and for knowledge how to treat her each day.
Keyonna Ricards - 7 years old - Suffered a stroke 8 moths ago and has High Risk Leukemia
19-Dec 2014:  Keyonna is also pictured with Hat, Green jacket , and the big smile. She is a great girl, and has been through a lot. You can tell she has had an effect on all the staff at Yale. I told her about Charlotte having a stroke, and she told me, "I go to church all the time, I will pray for Charlotte". I told her that we would make sure to pray for her as well. Pray that her blood remains stable, and no new clots form in her body. Pray she remains health, and that her treatment will get rid of her cancer. Pray for peace for her mom and family.
  • 29-Nov 2016:  She went to Yale last Tuesday and with the grace of god she is cancer free & off chemo. Keyonna is having some issues with her eyes and they think it's an infection. The doctors are trying to figure out what to give her. Keyonna is also having a skin reaction as well. Let's pray that they are able to prescribe something to help her.
  • 22-Nov 2016:  Going to Yale today to have a spinal tap to check her blood to make sure all is clear! Let's pray that all is well with her blood counts the keyonna can enter the Maintenance phase of the treatment.
  • 18-Nov 2016:  Continues to do well and is loving school. May god continue to bless her.
  • 26-Oct 2016:  Got a message from mom saying that she is doing well. Also thanking all of us for helping them.
  • 29-Sep 2016:  Continuing to do well and doing great in school!
  • 16-Sep 2016:  She is doing well and going to school. Let's pray she continues to do well and stay healthy.
  • 29-Aug 2016:  Keyonna is doing well. This photo was taken at camp last week.
  • 2-Aug 2016:  Keyonna is at Yale receiving more treatment. She has been suffering from mouth sores. Pray that she can receive all her treatment, and that her counts remain high. Pray that the mouth sores go away, and that she has no side effects from the treatment.
  • 16-July 2016:  On Tuesday, Keyonna has an appointment at Yale. Let's pray for all her blood counts to come back perfect and that she continues to be in good health.
  • 28-June 2016:  Please continue to pray for Keyonna as she receives Stage 7 of her chemo. Pray her counts remain high, and she does not get any nausea or fevers.
  • 7-June 2016:  Keyonna is having a spinal tap done today, and she begins Cycle #5 of her chemo treatment. The last spinal tap had complication, so her mom is asking for prayers. Please pray that Keyonna's spinal tap goes really smooth, and she has no problems. Pray that the spinal tap comes back clean. Also, pray that as she begins Stage 5 of her chemo, that her counts will always stay high, and that she has no real side effects from the chemo. No fevers or nausea. Pray for peace for Keyonna, her mom, and all her family.
  • 18-May 2016:  Keyonna received treatment last week. Pray her Counts stay high and that she does not have any side effects. Pray she stays in remission and the cancer never comes back.
  • 26-Apr 2016:  Keyonna is doing well and going to school. Let's pray for continued good Health.
  • 12-Apr 2016:  Keyonna is doing well. She had also finished her cycle and she will be starting the new cycle .She is due for an LP on Tuesday, she will be getting treatment. Please pray for her.
  • 11-Mar 2016:  Keyonna is doing well. She had also finished her cycle and she will be starting the new cycle .She is due for an LP on Tuesday, she will be getting treatment. Please pray for her.
  • 1-Mar 2016:  Doing well- her blood counts are good and she is attending school. Pray that Keyonna continues to stay healthy and strong.
  • 26-Jan 2016:  Keyonna is back at school, after being out for a long time. She just had treatment last week for her cancer, and her counts are 1500. That is a really good number. Keyonna's mom always texts me updates, and asks me to keep the prayers coming. So keep the prayers coming. Pray Keyonna can make the adjustment to going back to school. Pray she will love school and make new friends. Please pray she remains healthy, and that her counts remain high, so she can continue to receive her treatment.
  • 24-Dec 2015:  Good news. Keyonna counts are over 1700. She will begin her 4th Stage of chemo soon. Continue to pray that her counts will stay up and she can receive all her treatment.
  • 21-Dec 2015:  Keyonna's last treatments went well, and her blood counts remained high. She goes in tomorrow to start the next Stage of her treatment. Please pray that Keyonna's counts will remain high, and that she can receive all her treatment. Pray she has no side effects, and that her counts will remain high. Also, pray she can begin school next month, and that she will remain healthy.
  • 15-Dec 2015:  Keyonna has been receiving treatment for 1 1/2 years. She received treatment last week, and her blood count are still high. They are hopeful if she remains healthy, that she can go back to schoool in January.Please pray that Keyonna's counts stay high, and she can receive all her treatment. Also pray she stays healthy, and can return to school in January.
  • 10-Nov 2015:  Keyonna's mom is really happy. Keyonna's counts have gone from 100 to over 2000. She has been able to resume her treatment. She asks that you continue to pray for her.
  • 30-Oct 2015:  Keyonna's mom texted me yesterday to let me know Keyonna's ANC counts are up from 100 to 600. She has been feeling much better. Keyonna's mom wants to thank everyone for the prayers, and contiues to ask for more.
  • 22-Oct 2015:  Keyonna's blood counts went up a little to 200. Her platelets have been low as well. Please pray that Keyonna's count continue to go up, as well as her platelets. Also pray she can continue her treatment, and she does not get a fever, or any other side effects.
  • 16-Oct 2015:  Keyonna went to Yale NH Hospital on Tuesday, and her counts were only 100. She is going in today to check her counts, and to see if she can receive treatment. Please pray now that Keyonna's counts went up, and that she is able to receive her treatment. Pray that the sores in her mouth go away, and that she does not get a fever....
  • 23-Sep 2015:  Keyonna went in last week for a spinal tap. Pray that the tests came back clean, and that Keyonna is able to get all her treatments.
  • 27-Aug 2015:  Keyonna's counts went up Monday to 1000 (from under 100), and she was able to continue her treatment. Pray her blood counts continue to stay high, and she can receive all her treatment.
  • 24-Aug 2015:  Keyonna's counts are still too low (only 200) for her to receive treatment. She goes to Yale tomorrow to check her counts. She is also scheduled soon for a bone marrow test. Please pray that Keyonna's count go up really high today, and she is able to receive treatment. Also, pray that her bone marrow test comes back clean, and that she can get all of her treatment. They are hoping she can go back to school in October, so pray she is healthy enough to attend school, and that she does not get sick at all during school.
  • 08-Aug 2015:  Happy Belated Birthday!! Keyonna turned 7 on August 4th. We visited Keyonna today in the hospital. She has been unable to receive treatment because her blood counts are almost zero. She has been at Yale for a few days now, and her mom and doctors are concerned about her lungs.... She has had a cough, and been having a hard time hearing in 1 of her ears. The doctors want to do another bone marrow test, just in case. Please pray that Keyonna's counts come up, right away. Pray that she does not have or get an pneumonea, and that the scan is clear. Pray she can soon receive her treatment, and go home. Also pray she does not spike a fever, and that her overall condition improves. Also pray for her mom, who is concerned with her daughters health. Shalda (mom) also asked for prayers for Jasmine. They see each other a lot in the hospital, and she does not think Jasmine is doing good.
  • 03-Aug 2015:  Keyonna's mom asked me to send out a prayer request. Her counts have been high enough for her to receive treatment. She goes back to the hospital tomorrow to check her counts, and if they are high enough, can receive more treatments. It is her 7th Birthday Tommorrow, so HAPPY BIRTHDAY KEYONNA!! Sorry you have to spend it in the hospital. Please pray that her counts remain high, and that she can continue her treatment. Her treatment is not finished until sometime in 2017, so continue to pray that she can receive treatment, and that she will be cancer free for good!!
  • 08-June 2015:  Keyonna is going to Yale NH Hospital tomorrow to measure her counts. They were a little to low for her to receive treatment last week. Her mom is asking for prayers. Pray that Keyonna's counts go way up, and that she can continue her treatment. Pray that she continues to remain health, and in good spirits. Also, pray for peace for her mom Shalda, and the rest of the family.
  • 01-June 2015:  Keyonna was at the Golf Outing, and is doing well overall. Her blood counts have been low, but she wanted to come to the golf outing. Keyonna is going to the hospital on Wednesday, and needs her counts to to be high enough the receive treatment. Please pray that Keyonna's counts go up, and remain high. Please pray she is able to receive treatment, and that she will soon be cancer free.
    The families asks for prayers for Jasmine, who is in the ICU at Yale. I am not sure on the details, but please lift her in prayer.
  • 7-May 2015:  Keyonna's hospital visit was a good improvement from the last visit, today her anc was 3000. Thank Charlotte's web for the tremendous work they are doing and the prayers we appreciate all that you have done. Please continue to pray for our families.
  • 7-Apr 2015:  Keyonna has been doing a lot better lately. She finished her Radiation Treatment this week, and her counts remained high. She was able to go home. Please continue to pray for Keyonna, that her condition continues to improve, and that the cancer is completely out of her system.
  • 2-Apr 2015:  Please continue to pray for Keyonna as she goes through the heaviest treatments right now. Pray her fever stays down, and that her counts stay up, so she can receive her treatment. Also, pray her pain and nausea goes away.
  • 20-Mar 2015:  Keyonna has been going through a really tough patch lately. She had to be admitted a couple weeks ago, because she was unresponsive and was throwing up. Her mom was really worried about her, so she brought her in. She has been in the hospital for over 2 weeks straight. When I visited, she was in a lot of discomfort. She has an infection in her body that has halted her treatment. She is currently going the heaviest chemo, causing her to have high fevers, and her blood counts are at zero. She cannot leave the hospital until the counts are up, and the fever is down for 48 hours. Please pray that Keyonna's blood counts come up and that her fever goes down. Pray she will not be is so much discomfort, and that she can receive all the treatments she needs. Pray also she can go home after she receives all her treatments. Pray for peace for Keyonna, and her mom and dad.
  • 24-Feb 2015:  Keyonna is having a spinal tap test today to check on her cancer. Please pray the tap comes back clean, and that Keyonna will stay healthy.
  • 25-Jan 2015:  Keyonna was in the hospital, but was recently released. She will no longer need to be admitted for treatment, and will only require out patient treatment. Pray she will continue to stay healthy, and that her counts remain high. Her mom also is asking for prayers for her friend Keisha and her daughter Azaraha.
  • 29-Dec 2014:  Keyonna had to stay in the hospital last week for 4 days, becuase her counts were to low, following chemo treatment. Pray her counts will remain high, and that she will feel better. Pray the treatment will make she cancer-free.
Ryan - 3 years old - Thalassemia Intermediate/Cooley's Anemia
25-Feb 2011:  Ryan is a three year old boy who has been diagnosed with Thalassemia Intermediate/Cooley's Anemia, a genetic blood disorder. He is an energetic and typical "boy"! As this disorder progresses, and the hemoglobin declines, there is a medication to try to raise it, however, this medication does not work in some patients, therefore the patient is given blood transfusions. Ryan's hemoglobin has not yet reached that level...it will eventually. Being a genetic disorder, hopefully, with all of the progress in genetic research, someday a permanent cure will be discovered. Our family is very hopeful and with research and prayers we know he will be taken care of. Please lift up this little boy and his family in prayer as they go through this. Pray that Ryan's hemoglobin(blood) levels remain high, and that he does not require any blood transfusions. Pray that if the medication is needed, that it works for Ryan, and his blood levels are good. Also, pray for wisdom for the doctors and nurses, on how to best treat Ryan.
Anthony Rykowski, Jr.
14-June 2013:  I know less about Anthony. He has been at Yale as a inpatient for 3 months. The family needs help and prayer, and pray whatever is ailing Anthony heals.
Arianna Santiago - retinoblastoma bilateral
6-Aug 2012:   received an email last night from Arianna father. Because he speak Spanish only, I hope that I have all the information correct. He has cancer in both his eyes, and it in the Yale Pediatric ICU. I am not sure if they had to remove his right eye, or if they may have to remove his right. Once I find out for certain I will update everyone. He is receiving treatment for the cancer at Yale. Please pray for Arriana and his family while he gets treated in the hospital. Pray that the treatment gets rid of the cancer in his eyes, and that his condition improves. Also pray for him, that if he did have his eye removed, that he can handle the physical and emotional toll this must be putting on him. Once I find out more, I will update you.
Sarah
10-Sept 2012:  The granddaughter from one of the families at Oasis Church was in a serious car accident. Sarah suffered a broken wrist, 2 breaks to her pelvis. The 2 surgeries have been done, and 2 more surgeries will be required, once the first has healed. She has been in tremendous pain, and is really nervous about the surgeries. Pray that Sarah's pain goes away, and that her body heals quickly from the surgeries. Also, pray for Sarah and her parents, for calm as they deal with this stressful time.
Colby Salerno - 23 years old - Hypertrophic Cardiomyopathy
11-March 2011:  Colby Salerno was diagnosed at age 12 with a rare heart disease called Hypertrophic Cardiomyopathy. It is found in .02% of the population and causes the heart wall to grow too thick. He had to quit playing all competitive sports including soccer, which he had been playing for three competitive teams at the time. Shortly after his diagnosis, a defibrillator was put in his chest and he remained stable for 10 years. During this time, Colby received a Bachelor of Science degree in biology from Saint Michael’s College and he plans to pursue medical school in hopes of becoming a cardiologist and helping others that have been plagued with his diagnosis.

This summer Colby began struggling with shortness of breath and fatigue. In August, Colby and his family were informed that of the .02% of the population that have his disease, 5% have a rare form of the disease that accelerates it’s progression. Colby’s heart is turning into scar tissue and he is now in heart failure. The only thing that can be done to save him is a heart transplant. Colby was officially put on the heart transplant list on 09/23/10. His health is stable for now, but he will continue to get sicker and sicker until he can no longer live outside of a hospital. As Colby’s disease progresses, he and his family will have to travel to Boston (where his transplant team is) more and more for tests, procedures, and treatment. He will also require more direct care from his family.

Please pray that his body remains healthy so that he can remain on the transplant list. Also pray that a heart may be found and it will be compatible with Colby's body. Also pray that Colby's spirit be lifted, as he goes through this tough time, as well as his family's.
Marlie Kendall Smith - Hypertrophic Cardio Myopathy
Marlie Kendall SmithMarlie is the daughter of Sue and is a good friend. They went in for her 1 month check-up, and found out she had a heart murmur. They later discovered that Marlie has Hypertrophic Cardio Myopathy. Basically she has a very thick heart muscle so she does Not get enough blood in & out of her heart. We have been praying for her a lot, and we hope all or you will lift this beautiful little girl and her family up in prayer. The doctors were "shocked & said he had no explanation" why the heart thickness had gone down. Thanks for all your continued prayers.
  • 02-May 2014:  We saw Marlie last week, and she is still doing amazing. When she was born, they discovered her heart wall was enlarged, and she was very likely to need heart surgery. On a pre-op visit the doctors could not believe it, but her heart wall was no longer too thick. To this day, the doctors cannot explain how that happened. She never required the surgery, and is doing amazing.
  • 25-Feb 2011:  We had an appointment at Yale last week & the doctor said Marlie's results are "remarkable" they can't believe it... It's really good!!! She basically has gone from the most severe case to a very mild case.. He said they have never seen a heart as bad as Marlie"s was get better!!! As you can imagine we are just so happy!!! She still has it but a mild case I can handle.. They have officially taken the heart transplant off the table & I feel like we can breathe again! I told the doctor I think all the praying & support is what we owe this miracle too!! So Thank you so very much for all your support & praying!!! They want to publish Marlie's story in the medical journal because they have never seen anything like this!!!
  • 7-Feb 2011:  Please keep praying for Marlie that the doctors will continue to be shocked, and that her heart thickness continues to go down. Pray that Marlie will not have to have a heart transplant, and for a peace for her parents that can only come from trusting in the One true God.
Karlee Stabile - 18 years old
5-June 2013:  Karlee is an 18 year old girl who is friends with my son and graduated with him from Wolcott High School last year. As my son and all their friends were showing pictures of their dorm rooms on the social media, Karlee posted a picture of herself in her hospital room saying that it was "my dorm room." Karlee was found to have a rare form of cancer that affects the muscles. She was loaded with tumors. After a couple rounds of chemo and radiation all the tumors but one are gone. And, the remaining tumor is about 99% reduced. Karlee is amazing. Currently undergoing radiation, she works out regularly at the gym with her best friend Sara. After this bout of radiation she has one more round of chemo left. I know the town has held numerous fund raisers for her and her family. Please pray for her continued healing.
Taina Stephen - 10 years old
5-June 2013:  She came to us malnourished with a diagnosis of "failure to thrive" in September of 2010. At the time she was 7 years old and weighed 54lbs. Taina is now 10yrs old and weighs 82lbs! We have her permanently as a foster child under a special court decision. She is our girl and a full member of the Chambrello family! Taina was born with a chromosome disorder called Ring 22. She has muscle weakness and does not walk. She is wheelchair bound but does crawl around, even crawling up the stairs. She has cortical blindness. Due to this she is motivated by light, especially the sun. She can't eat but is g-tube fed. She has a heart condition where the valves are enlarged, but the cardiologist keeps and eye on it and she does not have to take any medications for it. Recently it was learned that Taina has lesions in her brain. The neurologist did not have any record of this, so he has ordered a one hour MRI under sedation to see the nature of these lesions and if it is effecting her at all. She is having this test tomorrow at CCMC at 11am. Please pray for Taina's progress physically and mentally. I feel their is so much potential that hasn't even been tapped into yet. She functions at a toddler level, but she is a smart little girl.
Maddie Sweedler - 18 years old - ALL Leukemia
6-Aug 2011:  Maddie is a 13 year old girl who was diagnosed with ALL type leukemia. She had been receiving treatment and was in remission. In Sept. 2010, like Dylan, she relapsed, but the cancer returned in her bone marrow. Recently she has been suffering from an infection in her leg, she has a hole in her tibia that is extremely painful, and they are concerned it may be spreading to the rest of her leg. She is on all sorts of pain meds, and the pain has gotten so bad that she cannot even climb her stairs to her room. They brought her bed down the the living room on the first floor. She is scheduled to have an MRI today (8/5), to see if the infection is spreading. Based on their findings, she may require another surgery as early as tomorrow night, to clear up the infection. Please lift up Maddie and her mother in prayer as they go through this difficult time. Pray that the pain in her legs subsides, and they the infection has not spread to much. Also pray if she does require surgery that they can clean out the infection and it does not come back. Also, please pray that her blood levels improve, to help fight off the infections, and so she can still receive treatments for her cancer.
  • 16-Jan 2017:  Update from mom-
    We go to Yale tomorrow for a bone marrow aspiration and biopsy. Maddie and Zack loved their Christmas presents. Maddie hasn't been feeling great, I think she may be coming down with something, she also has lots of pain in her legs. Let's pray that her marrow is healthy and she starts to feel better soon. Let's also pray for Jen's mom who finally came home last week. She had been in the hospital since Thanksgiving. She is doing a little better everyday but it's been a tough road.
  • 29-Dec 2016:  Maddie Is still dealing with side effects from transplant. Let's pray they can manage the side effects and pain, as well as clean blood results with her bone marrow & lumber puncture. Let's also pray for Maddie's grandmother, who had surgery several weeks ago and is in need of our prayers. Thanks to all who provided gifts to the family, they were so very grateful.
  • 29-Nov 2016:  Maddie's grandmother has been in the hospital since Thanksgiving. She very sick and will have to have surgery tomorrow. Sending positive thoughts & healing prayers for her and her family.

    Maddie is doing as well as she can. She went to Yale on Monday and her blood counts were low and her stomach is giving her problems.So Maddie will have to check her counts again tomorrow and see if they can give her meds to help stomach. It's been very stressful for them all.
  • 18-Nov 2016:  Maddie is doing the best she can.last week it was a little rough because her hemoglobin was very low. Maddie went to yale for a transfusion that day felt better. Let's pray that Maddie's blood work today is perfect and her blood work is where it should be & that she gets stronger everyday. The hospital slowly is starting to lift some of the restrictions. Continue to pray for mom and her brother as it continues to be stressful and worrisome for them.
  • 26-Oct 2016:  Thank you all for your prayers great news for Maddie! Bone Marrow is clear!! Please continue to pray for her that her pain gets better.
  • 24-Oct 2016:  Maddie will be going to Yale today to have a bone marrow test. Please let us pray that the bone marrow is clear, that her blood counts have come up, and the awful pain in her legs gets better. Let's also pray for her mom and brother.
  • 19-Oct 2016:  Maddie has been dealing with bad pain in her legs for the past couple of weeks and low counts.Yale has changed her med in hope to help with pain. Mom has been very stressed and concerned—she just wants Maddie to feel better and be able to enjoy things. Let's pray that the new meds work for her pain and that on Thursday, her blood counts are going to be perfect.
  • 29-Sep 2016:  Doing a little better each day-- Mom's hoping that her appetite will increase soon. Mom also hopes that pain In her legs will get better. Let's continue to pray for Maddie and her family.
  • 16-Sep 2016:  Maddie is doing a little better each day. We pray she continues to gain strength and have more of an appetite, and continue to have good labs. It's been such a difficult road for all of them. Many blessing and much needed peace and strength.
  • 5-Sep 2016:  Maddie has been going to Yale a few times this week to check her blood counts and to make sure all the transplant meds are the correct levels. The levels came back a little high so they will change the dosage until it's where they are supposed to be. It's been so hard for Maddie being in pain and not feeling well. Maddie has to be homebound and unable to go places to keep her safe from germs until her immune system and body recovers. Let's pray that her levels get better soon, that Maddie continues to get stronger. Pray for Mom as it's so hard to see your child like that. You feel so helpless to see them hurting, not being able to do anything.
  • 29-Aug 2016:  Last week was a rough week made had to have surgery to have port removed and replaced. considering Maddie was still weak and not feeling well at all. Maddie was able to go home the same day. Mom said Maddie was going to Yale today to check her counts let's pray that those all come back good. Also Maddie continues to sleep, not eating much, not feeling well at all. Please let's pray that soon Maddie will regain strength, eat more and most importantly be able to enjoy being with her family and being the Maddie again. Let's pray for Mom who is feeling very anxious and stressed.
  • 22-Aug 2016:  Maddie had to be admitted back into the hospital because her broviac tube needs to be replaced. It was not working properly, causing a lot of discomfort for Maddie. The surgery was scheduled for today. Pray that the surgery went really well, and that the new broviac will work perfectly. Pray for a quick recovery, and that Maddie can go home tonight. She is not to excited to be back in the hospital. Also, continue to pray that her body engrafts, and that the bone marrow transplant rids her of cancer, once and for all. Pray her body gets stronger, and that she feels better each day.
  • 15-Aug 2016:  Maddie was able to go home on Saturday- Mom said Maddie is not feeling very well, extremely tired and dealing with the side effects associated with the transplant. Let's pray that mom and Maddie are able to get much needed rest and that she continues to stay stable. They are all happy that they are able to be home together— especially Zack (brother) it has been so hard on him as well. We can't thank you enough for all the prayers, support, and love for the family.
  • 2-Aug 2016:  As many of you know Maddie had her bone marrow transplant about 2 weeks ago. She has been hanging in there, and has been sleeping a lot. She still has a lot of mouth sores, but overall the doctors say everything is going according to plan. She had her last dose of chemo on Saturday, and now we need to pray that her counts will come up, and that her body will start to engraft. Please continue to pray for Maddie whenever you can. Pray that her blood counts will go up and that she will regain her energy. Pray that her body will except the new cells, and that it will engraft. Pray for peace for Maddie and her family, and that someday soon, she will be cancer free once and for all!!!
  • 24-July 2016:  Maddie had a terrible night - she did get a fever and they started her on antibiotics. Her nose was bleeding really bad overnight and they gave her 3 platelet transfusions - they packed her nose this morning - we were up all night and she has been sleeping most of the day. Please pray that her blood levels come back to normal and she no longer has a fever, that they are able to manage her pain and keep her comfortable. Most important, make her body begin to accept the donor cells.
  • 20-July 2016:  Maddie had her transplant yesterday and it went as well as can be expected. Today, mom says she is feeling very ill. Maddie is dealing with mouth sores, nausea, vomiting, extreme weakness, and neutropenia. Let's pray that she recovers quickly and gets her strength back. Most importantly, that the new cells she received are accepted. Let's pray for her donor, that he also has a speedy recovery and many blessings to him for the gift of life and giving Maddie this blessing. Pray for much needed strength for Mom, her brother and family.
  • 16-July 2016:  Maddie Sweedler has completed her radiation, which was twice a day for the whole week. Maddie started high doses of chemo which is very intense! Maddie is not feeling well after the treatment, which she needs in order to get ready for her transplant. Please pray for minimal side effects in preparation for her transplant on Tuesday. Pray for her mom, brother, and family for strength and peace while going through this difficult time. Please let me know if anyone would like to get the families some gift cards and/or care packages while they are in the hospital.
  • 11-July 2016:  This morning Maddie will be admitted to Yale New Haven Hospital to start the process before transplant. Tuesday through Friday Maddie will have full body radiation twice a day. On Saturday and Sunday she will have high doses of chemo therapy. On Monday, Maddie will have a rest day. The Donor Bone Marrow will be collected to get it ready to be given to Maddie. Tuesday Maddie will receive a Bone Marrow Transplant. Please pray for Maddie to give her strength, peace throughout this tough treatment she is about to receive. Most of all, that her body will accept the donor cells with minimal to no side effects. Pray for the doctors who are caring for Maddie, to guide them in her care, help with the complete healing of Maddie. Let's pray for Mom , Zack and family for God to give them the much needed strength while going through this very difficult transplant process that is so very scary. If anyone would like to send a care package, please email myself (Grace Fortunato). Also anyone would like to donate gift cards to the family while in the hospital let me know. Walgreens gift cards are good, which is across the street from the hospital, as well as Dunkin Donuts, Visa gift cards for purchase of food within the hospital and gas cards. Also If anyone would like to donate gift cards like Dominos, Subway, things like that Her son Zack can can get while mom is in the hospital, that also would help them so much.
  • 28-June 2016:  Maddie has been battling cancer for almost 7 years. She had Immune therapy done in October at CHOP. There are signs that some of the cancer cells are trying to come back. Doctors want her to do the bone marrow transplant ASAP, before the cell come back. Maddie is scheduled to be admitted into Yale NH Hospital on July 11th, to begin treatment. They hit her with chemo and radiation to try and wipe out her immune system. The bone marrow transplant is scheduled for July 19th. Maddie has been doing extensive testing pre-surgery, and overall her body and organs are doing good. She has a long road ahead. Please pray first for peace for Maddie and her mom and brother, as they get closer to transplant day. Pray that her cancer stays in remission, and that her body holds up during the pre-treatment. Pray that she does not have ANY side effects, and that everything goes way better than anyone could have expected. Pray her pain and sickness is manageable. Lastly pray that she will have the will to fight, and get through this really hard procedure.
  • 23-May 2016:  Maddie had her monthly scan and tests at Children's Hospital of Phily, and unfortunately they found signs in her bone marrow and blood, that the cancer cells are coming back. Maddie has been battling cancer for 7 years, and had immunotherapy done at CHOP. It worked well, and put her cancer in remission, until her last check up. The next to last alternative is to have transplant surgery. Maddie is not sure if she wants to go through transplant, as it can be really painful, difficult, and can cause several side effects. They have to wipe out her immune system, and replace her bone marrow, with a donor's clean bone marrow. The good news is she is still in remission as of now, and her organs are in good health. Please pray that Maddie has the will to fight another tough battle. Pray that they will find a perfect match for her bone marrow, and that she will stay in remission until she has the transplant surgery. Pray for strength and peace for Maddie and her mom and brother, as they are all really concerned and afraid. Give Maddie a strong will to fight this cancer, and that she will someday be cancer free for good.
  • 26-Apr 2016:  She just recently visited CHOP Hospital of Philadelphia and all looked good with her blood work. Maddie still has pain and side effects from the therapy she received to get her in remission. Let's continue to pray for Maddie.She will have a bone marrow and spinal next month to check to see how's she's doing. Let's keep up with the prayers for Maddie and her Family.
  • 01-Apr 2016:  Please continue to pray for Maddie that her cancer stays in remission for good, and that her counts remain high. Pray that the pain i her legs and body go away, and that her body is strengthened.
  • 28-Mar 2016:  Maddie has been battling Leukemia for around 7 years. She has relapsed twice and the 7 years of chemo and other treatments has taken a toll on her body. Maddie has been doing Immune Therapy at CHOP in Phily for a few months. When she went there, the luekemia was in over 50% of her body. She received the manufactured cells over a month ago. Last week she had her very important Spinal tap and Bone marrow test. The tests came back CLEAN. Maddie's cancer is in remission. This is the best news and results that we were praying for. This is great news, but Maddie is far from out of the woods. We need to keep praying for Maddie that her T Cells stay and that no B Cells come back for at least a few months. If any B Cells come back, they will have to consider transplant as an option. Please pray just that, that the T Cells stay put and the B cells never come back. Also pray for healing for Maddie, who is really tired and still having pain in her legs.
  • 20-Mar 2016:  Please take some time to pray for Maddie today and the rest of this week. She has very important tests tomorrow at Children's Hospital of Philly. She will be having her spinal tap and bone marrow test, to see how well the immune therapy is working. She really all the tests to come back clean, and needs her cancer to be in remission. She has been battling cancer for over 7 years, and this immune therapy has to work. The test results will be done on Friday, and hopefully Maddie can go home for Easter. Please pray that Maddie's tests come back clean, and that the immune therapy has eliminated most or all of the cancer cells. Pray that the therapy is working even better than the doctors expected, and that she be able to go home next weekend. Pray that she is cancer free, and that it will never come back. Lastly pray for peace for Maddie, her mom, and brother Zachary, as they are really worried about the results.
  • 15-Mar 2016:  Please be praying for Maddie this weekend. On Monday March 21st they will do a bone marrow test/LP to check that the stem cell therapy has done what it's supposed to. Pray that the manufactured cells placed in her body has taken out the cancer cells. Please continue to pray that she is healed and that Maddie is cancer free once and for all.
  • 11-Mar 2016:  She received her stem cell therapy-Last week Maddie wasin the ICU with high fevers and oxygen support, it was so very scary for her family. With the grace of god and all your prayers she is out of ICU doing so much better but still very weak and dealing with side effects. Maddie goes 2-3 times a week to get checked for her blood counts and to see if she needs any blood products. On March 21st they will do a bone marrow test/LP to check that the stem cell therapy has done what it's supposed to. Please continue to pray that she is healed and that Maddie is cancer free once and for all.
  • 1-Mar 2016:  Please continue to pray, as Maddie has been placed in ICU last night as her condition is fragile and still running high fevers.
  • 25-Feb 2016:  Maddie is running fevers of 103-104, which is expected with the cells doing what they are supposed to. It has been a really hard day for Jen to have to watch Maddie go through this -- it's so scary. They may need to bring her to ICU to help with her breathing if needed as well as keep an eye on her blood pressure. Please keep the prayers coming. God bless Maddie and her family and please keep Her safe and once and for all, for her to be rid of leukemia.
  • 22-Feb 2016:  Last Sunday Maddie and her mom flew out to Philly -- Maddie went through very intense chemo from Monday through Thursday in order to get her ready for her stem cell therapy tomorrow. Maddie is not felling well, has pain, and feeling extremely tired. Please let us all pray and even light a candle for Maddie. May the cells she will receive put her in remission once and for all, may we also pray for the doctors and nurses taking care of Maddie, that they will be able to manage her side effects and keep her safe. Also please keep her mom in your thoughts and prayers as well as her brother who is home attending school.
  • 19-Feb 2016:  Maddie is at Philadelphia Children's Hospital. She is receiving treatment and cells for immune therapy for her Leukemia that returned a third time in October. I hear she has been really tired, and I hope to get an update soon. Please pray that the treatment and immune therapy work, and that Maddie can get through all the necessary treatment. Pray that CHOP will diagnose and treat her cancer correctly, and that they can get rid of her cancer once and for all.
  • 10-Feb 2016:  Please pray for Maddie as she continues her battle with cancer. Her leukemia came back in November, and she has been receiving treatment. The doctors need her cancer to go into remissions asap, so they can start her immune therapy on Feb. 15 in Philadelphia. Her cancer levels have not gone down enough, and she has been dealing with a bad nose bleed, and other complications. Please pray that Maddie's cancer will go into remission this week, and that she can start her immune therapy. Pray that the nose bleeds stop, and her side effects go away. Please pray for her over the next several weeks, as she will be staying at Children's Hospital of Phily for the next 5-6 weeks. Pray the immune therapy works better than expected, and that she will be cancer free for good soon.
  • 26-Jan 2016:  Maddie's cancer came back the end of November for the 2nd time. She has already been through over 5 years of treatment, so the doctors are treating her with chemo, to try and get her in remission. Today she is receiving some of the harshest chemo, so keep her in prayer. She is waiting for cells that she had taken from her body, to manufacture into cancer fighting cells. The treatment is called Immune therapy. She is scheduled to go to CHOP(Children's Hospital of Philadelphia) soon to begin the treatment. She could be there for 2-3 weeks. Please pray for this great kid, that she can receive all her treatment this week, and she will be clean. Pray that this go around will put her cancer in remission, and pray her body is strong enough and ready to receive the immune therapy. Pray that her counts stay high and she has zero side effects from her treatment. Also pray that the immune therapy is a huge success, and that she will soon be cancer free for good.
  • 11-Jan 2016:  Maddie was able to go home Friday, after her infection cleared up, and her blood counts improved. Maddie is being flown tomorrow to Children's Hospital of Phily(CHOP). She needs to get more cells taken from her body. They will manufacture those cells, to be used in her immune therapy treatment. Please pray that Maddie's trip is a smooth one, and that the cells they take this time, will be the cells used for a successful immune therapy. Pray for peace for Maddie, her mom and brother, on this trip, and throughout her treatment. Pray she will be able to complete the therapy, and that she will quickly go into remission. Pray she will one day be cancer free, and it will never come back.
  • 10-Jan 2016:  Maddie has been stuck in the hospital with low blood counts and an infection. Please pray Maddie's infection clears up and her counts go up. Pray she is home or will be home soon.
  • 24-Dec 2015:  Maddie had to go back to the hospital yesterday because her counts are low. She also has a fever. As you can imagine, Maddie and her family would like to be home for Christmas. Please pray that Maddie's counts go up over 500, and her fever goes away. Pray she will fell better, and that she can be home for Christmas.
  • 21-Dec 2015:  Please continue to pray for Maddie as she goes through the treatment for leukemia again. The doctors are still trying to figure out the best course of action in treating her cancer. Maddie had a really hard time with chemo/steriods last time, suffering wide spread infections, bone degregation.... She had to have a double hip replacement at the age of 15, becuase the treatment rotted out her bones. Her infections were so bad in her legs, that the had to make large insistions, and scrap out the infected areas daily. Please pray that the current chemo treatments will quickly get Maddie's cancer in remission. Also, pray for wisdom for the doctors how to best treat her this time. Also pray that her body will hold up much better than last time, and that she does not have the side effects like bone degragation, infections, fevers... Pray that the cells that Childrens' Hospital of Phily took out for immunetherapy, are manufacturing well, and once she receives that treatment, they will get rid of all the cancer cells. Lastly, pray that Maddie will not require a transplant, and that she will soon be cancer free for good.
  • 15-Dec 2015:  Maddie's leukemia came back last month after been cancer free for more than 2 years. She had a really hard time with the chemo and steriods last time. She has begun chemo treatment this week at Yale, and then the plan is for her to go to CHOP for about 6 weeks (Children's Hospital of Phily) to receive immunetherapy. She was flown down there last week to have cells from her body taken out, to manufacture new cells to fight her cancer. Please pray that Maddie's chemo treatment goes well, with no side effects. She had some bad infections last time, so pray for no infections and that her bones will not be infected. Also pray her cancer goes into remission soon. Pray she has no other side effects like fevers, nausea....Lastly, pray that when she goes to CHOP, that the immunetherapy goes really well. Pray the new cells get rid of the cancer cells, and that she will soon be cancer free for good!
  • 01-Dec 2015:  After 3 years of being cancer free, Maddie found out over the weekend that the same leukemia has indeed come back. Maddie and her family are obviously saddened by the news. She is scheduled tomorrow for a Spinal Tap and to put a port in so she can start to receive chemo treatments. Please pray that the Spinal tap shows no cancer in her spine and nervous system. Pray the Surgery for the port goes really well, and that she can start receiving treatment tomorrow. Maddie had a lot of bad side effects from the last time, including infections in her legs, her bones becoming really brittle, and overall body pain. Pray that the doctors will come up with a good plan to treat her, and that she will quickly go into remission. Pray that she will not have any bad side effects, and that she will soon be cancer free again, Also pray for peace for Maddie and a will to fight the cancer again, and for peace for her mom and brother.
  • 25-Nov 2015:  Maddie is 17 years old and is a great kid. She was diagnosed around 5 years ago with Luekemia. She went through a lot from 2+ years of chemo and radiation treatment. Maddie finished her maintenance around a year old, and has been cancer free. Maddie has not been feeling well lately so she went to Yale for blood tests. They found blasts on the test, so she has to have a bone marrow to test if it is cancer, and what type it is. Please pray that the tests will reveal the cancer has not come back. Pray that whatever it is, can be treated and Maddie will be fine. Pray for wisdom for the doctors to diagnose correctly, and the best way to treat and heal Maddie. Also, pray for peace for Maddie and her mom and brother, who are a tight knit family.
  • 11-Aug 2014:  I have been visiting a a lot of the families to help out with Back to School stuff. We had lunch with Maddie and her mom and brother. She is doing good, and hopes to go to school fulltime this fall. Pray she remains healthy, and can go to school with no problems. Also pray for their house situation, that it improves.
  • 16-Jul 2014:  Please pray for Maddie's family, as the home they are in may be condemned. Pray that they find an even better living situation, and that everything works out.
  • 30-Jan 2014:  Maddie went to Dylan's house so I was able to see her and her mom. She had a double hip replacement surgery a couple of months ago, and her hips continue to improve. She has been suffering with a lot of pain in her shoulders, and they are meeting again with Specialists to discuss the posibility of replacing her shoulders as well. Pray that the pain in her shoulders goes away, and her body continues to heal. Give the doctors wisdom on the next steps to take to help Maddie's quality of life both in the short and long term.
  • 3-Oct 2013:  About a month ago Maddie had her second hip replaced. She, like Dylan, had cancer, and her hips were so bad, that they decided to replace them. She is still in a lot of pain, and is having a hard time moving around. Please pray that her hips heal correctly and the pain goes away. Also pray that she is able to move better, and have a better quality of life.
  • 6-Sept 2013:  Maddie is recovering from her 2nd Hip Replacement Surgery. The surgery went well, but recovering is long, and she has been in a lot of pain. Please pray that Maddie's body continues to heal quickly, and that she is able to move around more each day. Pray that the pain subsides, and that the wounds heal correctly. Also pray that she has a great time going back to school, and that she reconnects and meets with friends.
  • 29-July 2013:  Maddie had hip replacement surgery 4 weeks ago and is doing ok. She is scheduled to have the other hip replaced this Thursday. The first hip is recovering well, but she is still in a lot of pain. Pray that thursday's surgery goes great and that after the recovery, she can move around much better, and the pain goes away. Pray for peace for her and her family as they get closer to the surgery.
  • 14-June 2013:  Maddie had successful surgery yesterday to replace one of her hips. She is in New york recovering, and is in a lot of pain. The surgery went well, but they are keeping her in ICU type area to monitor her closely. Pray that pain pain starts to go away from the surgery and from the discomfort she had in her hips. Pray that she has no complications, and that her body heals quickly and correctly. Also pray for the family.
  • 13-June 2013:  Maddie is in New York today and is about to go into surgery for her first hip replacement. Please pray that the surgery goes better than expected, and that the surgery is a success. Pray that she will have no complications, and that she will recover ahead of schedule. Pray for peace for Maddie and her mom and brother, as they are all worried.
  • 5-June 2013:  Maddie went to New York to see specialist about her double hip replacement surgery. They may have to delay the surgery, because they have to wean her off pain meds firs t(so she does not have withdrawal during surgery/recovery). Her mom is really concerned the withdrawals will be bad. Pray she can come off without any problems, and that they can go ahead with the surgeries. Pray for Maddie who is scared, and that she recovers quickly.
  • 29-April 2013:  Maddie went to New York to see the hip specialist. They are planning to have her right hip replaced on June 13, and the left hip 6 weeks later. Maddie's hips and shoulders have been severely affected by the chemo treatments to the point where she has to have both hips replaced at 14 years old. Pray that in the meantime her pain is manageable, and she can get around. Pray for the doctor, and that the surgery is successful, and she can get back her quality of life, and be able to move around like normal.
  • 5-March 2013:  Maddie's Spinal Tap and Bone Marrow test done last week. NO CANCER in bone marrow or spinal fluid. PTL!! Continue to pray that she remains cancer free, and that the pain in her hips and shoulders goes away.
  • 28-Feb 2013:  Maddie had a bone marrow test and spinal tap today to make sure there is no cancer present. She is tired and a little sore, but happy it is over. They are getting the results tomorrow. Please pray that the result come back clean, and that there is nothing new in her blood. Pray that her pain and discomfort go away, and her hips start feeling better. Looks like they may be doing the hip replacement surgery in May-June, if everything is good with her health. Maybe 6 weeks apart.
  • 1-Feb 2013:  Maddie has been in the hospital for a few days with a line infection and a high fever. The line injection can be really dangerous and uncomfortable, so she has been in the hospital for antibiotics, IV... Pray that the infection clears up and the fever goes away. Also pray that she can go home soon, as the mom, Maddie and brother are really tired.
  • 3-Jan 2013:  First the good news. Maddie finished her last chemo treatment on Dec. 31st!! Maddie has been suffering from extreme pain in her hips and shoulders, a side effect from all the treatment she has been receiving over the years. Her pain and mobility have gotten so bad, that they are considering having hip replacement surgery. Maddie is obviously very young for the operation, but can barely get around, and suffers from a lot of pain. They are going to New York to consider the surgery. If they do the surgeries, she will have to have the surgery again, in her 20's. Please pray that her condition dramatically improves, and she does not have to do the surgery. Pray that the cancer never comes back, and that she will begin to heal and start feeling better.
  • 15-Oct 2012:  Have not been in touch with Maddie lately. Will do so this week. Heard she is still in a lot of pain in shoulders, legs. She most likely will have to have shoulder surgery on both arms, and hip surgery when she feels better. Pray that the pain goes away right immediately, and that her spirits are lifted. Pray that she is healthy enough to get treatments, and the cancer stays in remission. Pray a blessing on Maddie and her family.
  • 15-May 2012:  Maddie has had a few really tough weeks, and has been really sick, with a high fever. Her mom was really concerned about her possibly relapsing because her blood counts did not go up for 2 weeks. If her counts were not up by today, they would have to do a bone marrow test. Thank God her counts were up today. Pray that her counts continue to go up, and that the treatment takes away the cancerous cells, and protects the good ones.
  • 14-March 2012:  Maddie has not been able to leave the hospital because her blood counts have been to low and she has been spiking fevers. Pray that her bloods counts come up, so she can go home, and pray that her fever and sickness go away.
  • 8-Nov 2011:  I went to visit Maddie in the hospital last week. She was in the hospital for 3-4 days to receive chemo treatments. She did pretty good with the treatments, and was able to go home on friday. Maddie looked great. She had been suffering through some serious infections in her legs causing pain and discomfort, requiring large incisions in her legs to help clean up the infections. The infections are gone, and the incisions are closed up. She will be doing OT and PT on her arms and legs, but most of the pain has gone away. Please pray that she continues to feel better, and that her spirits be lifted, as they continue their fight with cancer.
  • 12-Aug 2011:  Pray that Maddie's infections in her legs clear up, and do not spread anywhere else. Pray that the pain goes away, and that Maddie can start walking. Also pray that her spirit be lifted, and that she is no longer feeling sad or angry.
  • 8-Aug 2011:  The surgery went well. They said the infection in her tibia was still there and referred to it as a nasty infection. They cleaned the area out and put in antibiotic beads hoping that will clear the infection. She will remain on 2 IV antibiotics to also help fight the infection. They also made a new incision in the side of her knee and drained quite a bit of yellow fluid. They have taken cultures of the fluid and we are waiting to see if the infection in her knee is the same as in her tibia. We are thankful that her joint in her knee is not damaged and neither is the bone. Just lots of fluid. She has two drains in - 1 at each site and a leg immobilizer on. She is in quite a bit of pain and has been unable to get out of bed as of yet. Her appetite has improved a bit. She will need to go back in for surgery to remove the antibiotic beads in about 1-2 weeks and at that time they will look to see if she needs another clean out.
Samantha White - 13 years old
14-Nov 2012:  Samantha had a large tumor removed from her abdomen 8-10 months ago. I spoke with her father recently. He said they had a little scare. The doctor found a abnormality in her lymph nodes. The good news is at the last test nothing had changed, which is usually a good sign. Just pray that the cancer does not return, and that there is nothing wrong with her lymph nodes. Sam's form of cancer is not treatable with chemo/medications, so pray the tumors never come back. Pray that the Lord will give the family peace over the entire situation, and they can not worry so much about Sam's health.
  • 20-Feb 2012:  Samantha has been diagnosed with Juvenile Renal Carcinoma, which is a form of kidney cancer. She is recovering from her surgery, and they are waiting for the results from tests on the tumor. They should find out more in the next day or so. Please pray that the results come back good, and that the cancer has not spread. Pray that the cancer is treatable, and that she makes a full recovery. Also, Samantha wants to be able to go to Washington with her class this spring on their school trip. Pray that she will be able to go on the trip, and quickly get back to living a more normal life.
  • 17-Feb 2012:  Samantha's father works with me. She has been complaining about pain and discomfort in her stomach for a while. Doctors originally thought it was due to stress... She was admitted into the hospital in the last 2 days, where the doctors discovered a huge mass(tumor) in her stomach. She had emergency surgery to remove the tumor, but also had to remove one of her kidneys, because it was attached. She survived the surgery, but is not out of the woods yet. They will also find out soon if the tumor is benign or malignant. Pray that Samantha recovers quickly from her surgery. Pray that the tumor is not cancerous and that she will make a full recovery. Also pray for Charlie (dad) and his family, as they are distraught over the events of the last 72 hours.
Walter Williams - 19 years old - body rejecting heart transplant
12-May 2014:  Here is a letter from a friend of Walter a 19 yr. old in critical condition.
Chris, my name is Jeff Ervin I was referred to you by, Pat.. i ask that you please pray for a young man named Walter Williams 19, he has had a heart transplant .. about a year or two.. it appears that his body is rejecting it.. so please add him to your prayer list... Please pray that Walters body will no longer reject the Heart he has been given. Pray his body will heal and pray for wisdom for the doctors and nurses, to know how to best treat his situation.
Zachi
10-Sept 2012:  He was diagnosed with osteosarcoma when he was 7. He has had several leg surgeries for tumors and received a knee replacement and a telescoping rod to replace his femur bone! He has had 2 surgeries to remove metastasized lung tumors! His regiment of chemo therapy has exhausted almost all options. He also gets radiation! He loves the Lord and has a glorious singing voice with which He praises the Lord!

Last night he awakened with a high fever and vomiting! He is almost always on IV antibiotics as now! Zachi has been really excited starting middle school! He lives life right in the midst of his unspeakable suffering. He has been admitted to a hospital in Allentown, PA.
  • 8-May 2013:  Here is a link to Zachi's funeral video that he created. He also planned his own funeral, in which up to 800 people attended, including the town's mayor. Please continue to pray for the family as things quiet down and they continue to grieve over Zachi. Also please pray for Susie, that she can find a good job that fits her schedule nicely.
  • 29-Apr 2013:  Zachi has passed away, and is undoubtedly with the Lord. His faith through un comprehensible trials never waive red. Please pray for the family as they grieve the loss of this amazing kid.

    Zachi's family is asking for prayer. Zachi's pain is really getting bad, and hard to control. He is in pain all night. Please pray that God takes away his pain, and pray for the family, as it is hard to see your child suffer. Last Saturday many people in the community came to Zachi's house to sing him Happy Birthday and present him with a cake. He was able to see everyone from his bed by Skype.
  • 16-Apr 2013:  They brought him to the hospital over the weekend so he receive an epidural for the extreme pain in his shoulders. ... They also wanted to do MRI, radiation, tests...He decided not to do that, and Mark (dad) brought him home. Please lift up Zachi and his family, as they go through this together. Pray that Zachis' incredible faith is with him forever. Pray that Zachi is comfortable, and the pain goes away. Also, pray for pray for Mark, Susie and Zachis' brothers and sisters, for emotional strength. Lastly, pray for God's healing hand to come over Zachi, and for mercy and grace. The family is so thankful for all the prayers!
  • 3-Apr 2013:  Zachi is having lotsa great visitors! Last night they had an impromptu praise and worship service in their living room. Photo shows little ones sitting on floor taking it all in! Zachi continues to lose the use of his fingers, hands, hips n limbs but NOT his indomitable spirit! Thank you for your continued prayers. He has so much to deal with unable to do his normal things especially with his hands!
  • 28-Mar 2013:  Zachi's situation is getting worse quickly. Pray that there is not much pain and discomfort for him, and that the tumors stop pressing into his spine. Pray God puts his hands upon Zachi, and his presence be felt by the family. Pray somehow for peace for the family and Zachi as they go through this together. Also pray Roxane and Tony(grandparents) safe traveling mercies, and that they will get there to see Zachi.
  • 5-Mar 2013:  He had surgery last week to remove a tumor pressing into his spine. Here is a letter from Grandma:
    Zachi is home! Yay! He can move! His right/write hand is being fitted for a brace so he can write! Damage is from a bony tumor pressing on spinal cord. This has been such a bittersweet experience.. Thrilled at excellent results and thanking the Lord for all the care from the Pallative Health team advocating for a chair lift so he can sleep in his own cozy bed! Hospice is now on board providing much needed help! I had great experiences as a pastoral person for hospice and fully appreciate the support Marc and Susie and entire family are receiving. Cyberspace blessed us with an amazing 28 second message via video from Zachi 10 hours after surgery joking about having a pain in the neck! Thank you for ongoing prayer! Neighbors and friends have been putting in a ramp so Zachi can get in and out of the house for school, church and whatever else he might go to. This is an amazing miracle!!

    How Great Is Our God!! I love hearing Zachi singing that one!!!

    FYI - Zachi went to school today.
  • 25-Feb 2013:  Zachi is having surgery right now to try and remove a growth that is causing severe pain and the potential to cause paralysis to Zachi from the neck down. He is in Children's Hospital of Philadelphia(CHOP) having the surgery. The surgery is very risky, but necessary do to the place where the tumors are. Pray that God Guides the doctors hands throughout the surgery, and that the surgery is a success. Pray Zachi has no loss of feeling anywhere, and that his body heals quickly from the surgery. Also pray for Marc and Susan his parents and Zachi's sister Maggie who are obviously really concerned about him. Pray for peace for them, as they have had a long journey fighting Zachi's cancer.
  • 20-Feb 2013:  Zachi and Marc are in ambulance on way to CHOP children's hospital of Philly from Allentown hospital where severe swelling and leg pain are not coming from a clot. Now questioning neck surgery. Zachi has a fever. We need prayers for a very concerned 6 yr old sister Maggie and a wiped out Mom and Dad. Pray for Zachi that God will put his healing hand on upon him, and take away the pain and discomfort. Pray the swelling will go down and take pressure off the rest of his body. Pray a blessing upon Zachi right now. Give the doctors and nurses the wisdom how to best treat Zachi, and how to reduce swelling and pain. Also pray for direction for the doctors whether to have surgery or not. Also, lift up Marc and Susie (parents). Pray for peace and strength to continue to be strong for Zachi. Pray that through these trail their faith is somehow strengthened. Lastly pray for Zachi's 6 year old sister Maggie, who is really concerned about her brother. Pray that she have peace and faith in God.
  • 1-Feb 2013:  Severe shoulder pain is being caused by one of his inoperable lung tumors increasing in size and pressing on bone and causing nerve pain! I'm also asking for prayer for our son Marc and his wife Susie as they care for Zachi's sickness with Marc's two jobs and the other children to care for. Zachi's docs cannot believe he has no fluid in his lungs and that he is 'fine' not really sick with his situation. Zachi has 3 tumors in alobe of his right lung that 3 doctors are going to have a meeting tomorrow to decide about removing the whole lung or lobe of lung. We should know their decision tomorrow. The Doc says he is so full of life that they want to consider this surgery! Pray that Zachi's condition improves and the tumors and swelling near his optical nerve go down. Pray the doctors can do what is best for his situation. Also, pray for this family as they carry a heavy burden through this difficult time.
  • 30-Jan 2013:  Zachi has a swollen retina resulting in double vision. Sometimes his vision is normal! Quite upsetting! Tomorrow they will be going to his oncologist, the pain in his right hip has greatly increased even on pain meds. They are hoping radiation can relieve the pain. Last time it helped a lot! We had a great Christmas :) it helped so much! Today he got a double dose of chemo by mistake and was NOT hospitalized! Thank the Lord! He and the whole family are involved in a fund raising event today to help families pay their everyday expenses!! Zachi the fundraiser. He is such a great kid. What a heart! Thanks for helping them financially too! Prayers are so appreciated for all of us. Quite a journey with a faithful Lord. Please pray for Zachi. TODAY!! He has been taken to the clinic due to shoulder pain! His hip pain has greatly increased!
  • 14-Nov 2012:  Zachi is much better. On Thursday his 4+ year old port will be removed. They believe it is the source of his infection/fever. His blood pressure continues to be only 85/30 but the doctors are pleased with the strength of beat of his pulse! Thanks for praying for all of our family especially our son and his wife in this intense journey since early 2008!! PTL for His mighty sustaining power! Please keep praying for Zachi as he continues to fight this aggressive cancer. Pray the radiation and treatment get rid all the tumors, especially the inoperable one. Also pray taking the port out will get rid of the infection and fever. Also pray for the family, as they have been dealing with this horrible situation for over 4 years now.
  • 12-Nov 2012:  Please pray for our grandson.. our Zman, as we call him. He has been hospitalized with a moderate fever and a zero neutrophil count. He has been having radiation for one hip tumor. The other hip tumor is in a too dangerous place. He now has 2 inoperable lung tumors all osteosarcoma. Thank you for praying for everyone involved!
  • 22-Oct 2012:  Zachi has had osteosarcoma since he was 7! He turns 12 on Oct 29!! He is AMAZING! Last report, four months ago, showed he had 5 tumors in his lungs. One was so large that they declared it to be inoperable. He has had 2 surgeries to remove several tumors that metastasized from his legs. This 4 month test showed that the treatment worked and his lung tumors have shrunk! Please pray as in the past 4 months he has developed a large tumor on his left leg (Zachi has had several leg surgeries.. Titanium rod, knee replacements, etc. He starts radiation on the new leg tumor next week and possibly chemo AGAIN! Please pray for our son, his wife and other 4 children as they on keeping on! Pray for Zachi that the tumors continue to shrink and eventually go away. Pray that radiation and chemo (if necessary) get rid of the cancer. Also pray that Zachi and his family have a great birthday.
Zen - 4 years old - Stage 4, High Risk Neuroblastoma
XanderZen is a four year old boy from Connecticut who was diagnosed this week with Stage 4 , High Risk Neuroblastoma. He is facing many months of aggressive treatment. "Zen" ( his nickname), is a sweet boy who loves trees and animals, the clouds in the sky, the color orange, the letter "x" and all things Toy Story. He is just falling in love with Spider-man. He was admitted to the hospital Weds and he remains there still. His family is shattered by this news and need help to manage life. Both of his parents are with him in the hospital and family is helping with the other children. We are working on a fundraiser for June 14 and details will follow as they are confirmed. Please help this family! Click Here for his Go Fund Me account. Pleae pray that the cancer will not spread any further into his body. Pray that the chemo and other treatment, will work to get rid of al the cancer cells. Pray for healing and that his blood counts stay high, and he does not get any fevers, nausea...
Zsa Zsa - 2 1/2 years old
Zsa ZsaShe called herself Zsa Zsa. She was a beautiful Blonde haired, blue eyed angel only 2 1/2 years old, and just passed away suddenly. She lived with her grandmother (Mimi) and her dad. Mimi left for work at 8AM, said goodbye and got a call at noon that she was gone. I will update you as I find out more of what happened. Please pray for Mimi, her son, and everyone close to her. Pray for peace for the family, as they deal with this terrible news! Yesterday my granddaughter said "bye-bye Mimi" at 8am as I left for work. By noon she was gone. She just had a little cold. We won't know for a week what happened. Please say a little prayer.
Zoe - Biliary Atresia
ZoeHere is a beautiful little girl we met at the Ronald McDonald House. Zoe is planning on flying home to Guatemala soon, and needs her very expensive medicine before she leaves. We are now taking donations on charlotteswebofprayer.org thru our church Oasis. Go to Donate, and send checks payable to Oasis (501C non-profit). Indicate on the memo line Charlotte's Web. Here is Zoe's story:

Zoe was born in Guatemala. At 2 months of age, it was discovered that she had liver problems, a condition called ‘Biliary Atresia’ with complications of bile duct stricture. Zoe was flown to the United States in critical condition, her skin and eyes yellow and her lips bleeding. Johanna, her mom, did not think her little girl would make it. Upon arriving at Yale New Haven Children’s hospital, Zoe received a part of her father’s liver and recovered from the successful liver transplant after 8 ½ months here in the U.S. at the Ronald McDonald House of New Haven.

Zoe returned in September of 2009 for a 3-week stay for a catheter check. They decided not to remove the catheter at that time and send Zoe and her mom back to Guatemala, only to have her return again in February of 2010 with acute rejection. Zoe has been back now for 3 ½ months. They have removed the catheter and she is doing well. Zoe will return to Guatemala in a few weeks, but will probably have life-long problems that will need to be solved. Please pray we can get Zoe the funds to pay for her medicine, which is not available in Guatemala.
  • 11-March 2011:  Zoe had a liver transplant at Yale and was healthy enough to move back home with her family.
  • 7-Feb 2011:  We met Zoe through Owen's parents at The Ronald McDonald House. Her father gave her part of his liver so Zoe could live. They came up from Guatemala about a year ago, for the surgery. She was healthy enough to go back to Guatemala. Here is the email i received from Zoe's mom Bridgett, who is an amazing mother and person. Please keep praying for Zoe, who is going through right now the heaviest chemo.

    "Let me tell you that my beautiful Zoe's doing ok she's growing up like normal child and thanks God the test she had high right now is going down we are so happy this is the GGT 2 months ago she have the GGT in 292 and last weekend she have a test and now is 169 is great this have to be in like 55 but the good thing is coming down. I promise you i going to send you a pictures and you can see how is she doing. Is too smart she talk very well she can have a conversation without any problem is so sweet and she like dance, drawing and play with her brother they faith too but i think is normal because her brother been without us a lot of time is he would like to have more time just with me but I'm working about that you know share with both individual way but is no easy if i don´t have one of them i feel like is something missing me. About the virus she don´t take more medicine for this because they need the medication just when is high but like i told you we don't have the test for see the levels in Guatemala just can see + or - in november she had this test and she was + in one and - in the other and that's all we can do because the other choose the laboratory can do is send to USA the test but they say is too expensive so if she have the other test ok i think she will be fine for now she's doing ok and if she is ok all us are ok. Thank you very much for all your prayer because the prayer is the best our Lord never let us along He's always with us and with Him to our side is the best we can have."
  • 22-July 2010:  Zoe and her mom flew back to Guatemala. To be honest, I have not heard anything from them. She was able to go home with a large enough supply to go home, until she has to return to Yale New Haven. Please pray that she is doing great and in good health, and that her medicine continues keep her healthy.

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Yale-New Haven Children's Hospital

Yale-New Haven Children's Hospital

Helps children cope with adjustments of being in hospital by providing a variety of play experiences. Art and recreational activities are offered in the playroom, and is a great distraction for children to just be children. Child Life gave Charlotte a gift that made her smile for first time in 60 hours. Charlotte loved going to the playroom and using the toys and games, and some of her early rehab was done with the limited number of toys there.

Toy Closet Program Toy Closet Program

Provides toys to pediatric patients at Yale NH Hospital. Children can go to the toy closet and pick out a toy. Charlotte was able to go to the toy closet after going through a Bone Mallow Test. Kids usually get to go after a trying day (Chemo, Surgery, Tests…) to help lift their spirits.


The Tommy Fund

Helps to support children with cancer and their families with emotional and medical needs. The Tommy Fund offers a wide range of assistance to the families. They help parents out with all sorts of Bills (Mortgage, Car, Parking, Food…). They also support Research for Pediatric Oncology. The fund is supported through donations and through events like the Fall Family, Wipe Out Walk-a-Thon, and a golf tournament.

Acts 4 Ministry

Providing clothing, essential furniture and household goods, free of charge, to low-income individuals and families in need. Handed out clothing to over 4,000 individuals last year. Except donations of clothing as well as furniture. Are part of events like CityFest, the WOW Giveaway, and a back to school rally to purchase uniforms for children going to school that cannot afford to buy one themselves.

Contact Get in Touch



Donate

Please write your financial gift payable to "Charlotte's Web of Prayer" and mail it to:

Chris DePaolo
771 Allen Avenue
Cheshire, CT 06410

or by PayPal